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Getting my head around the fact I have cancer!

User
Posted 20 Aug 2025 at 12:34

Hi guys, I'm not sure why I'm writing this, as I don't usually join forums. However yesterday at my 4th cycle of chemo, my nurse suggested I should! Basically I am struggling to get my head around the fact I have advanced prostate cancer. It's obvious I have, but my head doesn't want to except this situation. I have been referred to McMillan for counseling, but unfortunately this will not start now for about 8 weeks. Has anyone else been struggling to except they have cancer? Or I am I being melodramatic! Kindest regards Grant.

User
Posted 20 Aug 2025 at 19:42

Hi Grant,

I'm sorry that you've got advanced PCa, but welcome to the forum, mate.

By saying your "mind doesn't want to except your situation", do you mean that you are mentally struggling to cope and deal with your diagnosis.

I think most men when initially diagnosed suffer from anxiety and depression to some degree. Some come to accept the situation others need a bit of help to cope with it. 

You are reacting normally and certainly not being melodramatic.

As Peterco says there are counselling services available to you. You could also contact your GP who might prescribe antidepressants which may chemically ease your worries and lighten your mood.

You'll also get plenty of support here, most of us can fully empathise with how you feel.

Good luck, mate.πŸ‘

User
Posted 20 Aug 2025 at 20:48

This is quite common, as most men don't have any symptoms, and indeed usually feel very well. So being told you have a serious condition which needs treatment and the treatment is going to make you feel worse can be understandably difficult to accept.

Sorry you're here, but hopefully we can answer questions for you. For many people, having answers and understanding what and why treatments are done can help and reduce the anxiety-generating unknown.

User
Posted 21 Aug 2025 at 11:36

Hi Adrian, thank you for your supporting reply. Basically, I feel absolutely normal, apart from my hair deciding it would rather be somewhere else apart from my head! And at the moment, that is my biggest issue. I know I shouldn't care what other people think, but no hair makes me feel embarrassed. I have plenty of support from family and friends, work colleagues and management. My cancer nurse at the GP is amazing, but the McMillan counseling has been moved from 2-4 weeks to 6-8 weeks. I understand they are busy, but that is a hurdle I didn't expect. I'm trying my best to stay positive, so fingers crossed 🀞🏻. 

User
Posted 24 Aug 2025 at 11:08

Hello Grant πŸ‘‹πŸ» 

Sorry to find you here, this space will be valuable for support and advice so make sure you use and abuse it! 

My partner has recently been diagnosed with advanced metastatic PC, we both work in mental health and recognise the power of acceptance when it comes to big life events which this certainly is......however.....how you are feeling is completely normal, dont push it or worry about this part of how you are feeling, hopefully counselling will help🀞🏻....once you begin to accept this, you will start processing it better and then be able to move forward with this diagnosis being part of you.....its isn't going away, your new normal will take time to process, not just for you but everyone close to you. Its strange cos just before my partner was diagnosed we had conversations about how one of us would likely get cancer and how devastating that would be, even if curable and here we are 8 weeks later facing incurable PC, with no symptoms of any early disease......we are going with it cos we have no option, we dont want it, we don't agree with this s*** deal we have but its here and part of us now. 

Good luck Grant, keep talking♥️

Edited by member 24 Aug 2025 at 11:09  | Reason: Not specified

User
Posted 24 Aug 2025 at 11:36
If you didn't have one from the start of your treatment it may be too late now but some men having chemo benefit from having a 'Cold Cap'. This can stop or reduce hair loss with Chemo Treatment. Worth asking about and mentioned here as others in similar position may benefit.

Hope your treatment works well.

Barry
User
Posted 24 Aug 2025 at 16:24
I am another who struggled with accepting I had cancer. My diagnosis was in March 2024, the operation was June 2024, but it wasn't until months later that I really was hit by the realisation that I had cancer and my life was forever changed. I had a non-nerve sparing operation which means I have permanent ED.

Literally yesterday, I was talking to someone and when I told them I had PC last year, they reacted by saying, 'isn't that the cancer where you are likely to die of old age before you die of the cancer'. This is such a kick in the teeth when you have been through so much and the cancer has changed my life so much. It is also such an insult to all those men who have died young when struck with PC. As always, I tried to correct this wrong thinking but it's like shouting at windmills.

You are normal for struggling with knowing that you have PC. I recently took part in a survey about the after effects of PC and was told that mental health was a constant thing that men were reporting. I hope you get the help necessary to come to terms with this terrible disease.

User
Posted 24 Aug 2025 at 23:52

Hi Grant.

Took me about 6 months before realisation kicked in I had Stage 4 cancer. Found first few months of treatment brutal but 7 years on don't really think about it too much apart from PSA test time.

Lost some great brothers on this site along the way but still a lot of the old stalwarts still around.

You just have to try to keep yourself fit and focus on the fact that every day week month and year is a bonus and live life as much as you possibly can.

 

User
Posted 26 Aug 2025 at 14:25

I am hoping to be an old stalwart here. I felt so alone when I first wrote on this, however I feel I have made some amazing friends without even meeting! I know it will take time, but reading about other experiences has been extremely reassuring. And we are normal, just in a different way.

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User
Posted 20 Aug 2025 at 18:45
I personally didnt have a problem accepting I had cancer, albeit 'only' locally advanced, not knowingly anyway. Plenty of us do though and a lot of people benefit from counselling via the li!es of macmillan, maggies, gp, holistic therapy charities etc. I did suffer depression whilst on the HT etc treatment I had, a common effect, antidepressants from gp really helped.

Peter

User
Posted 20 Aug 2025 at 19:42

Hi Grant,

I'm sorry that you've got advanced PCa, but welcome to the forum, mate.

By saying your "mind doesn't want to except your situation", do you mean that you are mentally struggling to cope and deal with your diagnosis.

I think most men when initially diagnosed suffer from anxiety and depression to some degree. Some come to accept the situation others need a bit of help to cope with it. 

You are reacting normally and certainly not being melodramatic.

As Peterco says there are counselling services available to you. You could also contact your GP who might prescribe antidepressants which may chemically ease your worries and lighten your mood.

You'll also get plenty of support here, most of us can fully empathise with how you feel.

Good luck, mate.πŸ‘

User
Posted 20 Aug 2025 at 20:48

This is quite common, as most men don't have any symptoms, and indeed usually feel very well. So being told you have a serious condition which needs treatment and the treatment is going to make you feel worse can be understandably difficult to accept.

Sorry you're here, but hopefully we can answer questions for you. For many people, having answers and understanding what and why treatments are done can help and reduce the anxiety-generating unknown.

User
Posted 21 Aug 2025 at 11:30

Hi Peter, thank you for your reply. I think I have been hard on myself as it has all happened so quickly. I was tested in April, had a scan I thought would be fine. Then the most brutal biopsy I have ever known! All 31 biopsy samples came back aggressive. This shocked me to say the least. After the PET scan had shown it had spread was the last straw I think. My GP cancer nurse is amazing, it's just I was told 2-4 weeks by McMillan for counseling, and now it's gone to 6-8 weeks. I'm glad I took the first step to reach out to you all in this forum, as just to get one reply has lifted my spirits. Thank you πŸ™πŸ»

User
Posted 21 Aug 2025 at 11:36

Hi Adrian, thank you for your supporting reply. Basically, I feel absolutely normal, apart from my hair deciding it would rather be somewhere else apart from my head! And at the moment, that is my biggest issue. I know I shouldn't care what other people think, but no hair makes me feel embarrassed. I have plenty of support from family and friends, work colleagues and management. My cancer nurse at the GP is amazing, but the McMillan counseling has been moved from 2-4 weeks to 6-8 weeks. I understand they are busy, but that is a hurdle I didn't expect. I'm trying my best to stay positive, so fingers crossed 🀞🏻. 

User
Posted 21 Aug 2025 at 11:44

Hi Andy, thank you for the kind words. I too am glad I am here with you all. In one day I feel so welcomed, and I am starting to relise I am very far from being alone. My exceptance of cancer is going to be a struggle, but knowing I can fall back here and vent my frustrations, good or bad has given me a great deal of relief. πŸ’―πŸ’ͺ🏻

User
Posted 24 Aug 2025 at 11:08

Hello Grant πŸ‘‹πŸ» 

Sorry to find you here, this space will be valuable for support and advice so make sure you use and abuse it! 

My partner has recently been diagnosed with advanced metastatic PC, we both work in mental health and recognise the power of acceptance when it comes to big life events which this certainly is......however.....how you are feeling is completely normal, dont push it or worry about this part of how you are feeling, hopefully counselling will help🀞🏻....once you begin to accept this, you will start processing it better and then be able to move forward with this diagnosis being part of you.....its isn't going away, your new normal will take time to process, not just for you but everyone close to you. Its strange cos just before my partner was diagnosed we had conversations about how one of us would likely get cancer and how devastating that would be, even if curable and here we are 8 weeks later facing incurable PC, with no symptoms of any early disease......we are going with it cos we have no option, we dont want it, we don't agree with this s*** deal we have but its here and part of us now. 

Good luck Grant, keep talking♥️

Edited by member 24 Aug 2025 at 11:09  | Reason: Not specified

User
Posted 24 Aug 2025 at 11:36
If you didn't have one from the start of your treatment it may be too late now but some men having chemo benefit from having a 'Cold Cap'. This can stop or reduce hair loss with Chemo Treatment. Worth asking about and mentioned here as others in similar position may benefit.

Hope your treatment works well.

Barry
User
Posted 24 Aug 2025 at 16:24
I am another who struggled with accepting I had cancer. My diagnosis was in March 2024, the operation was June 2024, but it wasn't until months later that I really was hit by the realisation that I had cancer and my life was forever changed. I had a non-nerve sparing operation which means I have permanent ED.

Literally yesterday, I was talking to someone and when I told them I had PC last year, they reacted by saying, 'isn't that the cancer where you are likely to die of old age before you die of the cancer'. This is such a kick in the teeth when you have been through so much and the cancer has changed my life so much. It is also such an insult to all those men who have died young when struck with PC. As always, I tried to correct this wrong thinking but it's like shouting at windmills.

You are normal for struggling with knowing that you have PC. I recently took part in a survey about the after effects of PC and was told that mental health was a constant thing that men were reporting. I hope you get the help necessary to come to terms with this terrible disease.

User
Posted 24 Aug 2025 at 23:52

Hi Grant.

Took me about 6 months before realisation kicked in I had Stage 4 cancer. Found first few months of treatment brutal but 7 years on don't really think about it too much apart from PSA test time.

Lost some great brothers on this site along the way but still a lot of the old stalwarts still around.

You just have to try to keep yourself fit and focus on the fact that every day week month and year is a bonus and live life as much as you possibly can.

 

User
Posted 26 Aug 2025 at 14:25

I am hoping to be an old stalwart here. I felt so alone when I first wrote on this, however I feel I have made some amazing friends without even meeting! I know it will take time, but reading about other experiences has been extremely reassuring. And we are normal, just in a different way.

 
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