Hello All
54 years old, I went to the GP due the frequency of going to the toilet.
PSA 42.6ugL
Had the MRI scan 17/05/25, results showed Prostrate gland appears normal in size and demonstrates diffuses dark T3 signal involving both lobes more evident on the left,
Normal MRI of the lumber spine.
No Features to suggest bony metastasis.
Multiple bilateral pelvic sidewall lymph nodes largest on the left.
Had Biopsy, CT Scan and Bone scan and I was told that I had Gleason score 9 and that I needed a PET Scan
I have found that the waiting is long but I am managing to keep my mind active by continuing to work so far but the poor sleep due the frequency of toilet visits makes it more difficult.
Each time we get some news or results both my wife and I get pulled back into the reality that this is actually happening.
Received results of PET scan in June that cancer had spread to multiple lymph nodes and was now incurable, I also needed to have an MRI of my liver as there was something showed up there, then Started Relugolix and told I would be seen in 8 weeks. At the next appointment I was given some positive news that whatever was on my liver didn’t look like it was cancer and they would leave it alone. I was then given Aplautamide to be taken in addition to the Relugolix.
Started having some side effects in that I can’t sleep and get really bad restless legs so advised to stop the aplautamide until the side effects stop then start taking just 3.