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Leakage control.

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User
Posted 16 Sep 2025 at 10:11

Hi, I’m looking for some advice from those with some experience.  Yesterday I had a TWOK for the 2nd time, (the first was not successful) and I now have a good flow. My question is what is the best way to control the leakage in terms of pads etc.  I only seem to need to pass when I stand up from sitting down, and it’s then a rush to the bathroom. I’m currently wearing padded pants with an extra pad shoved down the front, which I’m changing once a day.  I’m scared to venture too far from home at the moment so would welcome any advice/ experience as to what others have found works for them.   I’m using an app to do the PF exercises and have found I can wake up 3 times at night to use the bathroom without too much trouble.  Thanks, Glenn

User
Posted 16 Sep 2025 at 20:40

Hi GlennH, 

Sounds like you have started pretty well so far.

I think getting the right pad choice is quite a bit of trial and error. I first tried heavy duty pull ups but they were far too bulky. I then went to a mid range pull ups for active days (playing golf). These worked very well with Tenna 3 my preferred other option for less active days. Initially I was using 3/4 a day but over time this reduced and then I got down to Tenna 2. I found the pull ups really good for confidence but they were too hot and sweaty this summer.

6 months post RALP I’m now down to Tenna pant liners for non active and Level 1 for active days. One per day.

I did buy a urine pot for days out and driving trips but fortunately only needed to use it 2 or three times but it was good to know it was there.

Then there was the complete rucksack of spare clothes. Used it first time out following a bit of a disaster. I always carried 2 to 3 spare pads as well.

I did purchase a dribble stop thing. Used it once and not very successfully. 

I also got the MacMillan toilet card although I tried to use it once on the rail network with limited success. Otherwise it worked well and again improved confidence.

Lots of personal preference in the end after trial and error and reading lots of good advice on here. 

 

 

 

User
Posted 16 Sep 2025 at 21:21
Glenn, what you describe sounds typical for the first few days. I bought a packet of pull-ups and before I'd used them all I had got fed up with them and moved on to pads. I did need quite a few a day for the first few weeks, I used to carry a rucksac with spares all the time and became expert on where there were toilets I could pop into. I think I must have stayed relatively local those first weeks, I never went as far as carrying a substantial clothing change.

The good thing is it gets better. About six weeks after the operation we went to Greece on holiday - it had been booked for our daughter's half term well before I was diagnosed let alone operated. I still needed to change pads at intervals, but to find I could manage the activities I would normally do on those holidays (including dinghy sailing and some very cautious cycling) was a huge psychological boost. Improvements continued, and the next milestone was the point where a single spare pad (which goes in my back pocket) was enough to cope. I still carry a spare pad now.

Fingers crossed it will all be getting better for you.

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User
Posted 16 Sep 2025 at 20:40

Hi GlennH, 

Sounds like you have started pretty well so far.

I think getting the right pad choice is quite a bit of trial and error. I first tried heavy duty pull ups but they were far too bulky. I then went to a mid range pull ups for active days (playing golf). These worked very well with Tenna 3 my preferred other option for less active days. Initially I was using 3/4 a day but over time this reduced and then I got down to Tenna 2. I found the pull ups really good for confidence but they were too hot and sweaty this summer.

6 months post RALP I’m now down to Tenna pant liners for non active and Level 1 for active days. One per day.

I did buy a urine pot for days out and driving trips but fortunately only needed to use it 2 or three times but it was good to know it was there.

Then there was the complete rucksack of spare clothes. Used it first time out following a bit of a disaster. I always carried 2 to 3 spare pads as well.

I did purchase a dribble stop thing. Used it once and not very successfully. 

I also got the MacMillan toilet card although I tried to use it once on the rail network with limited success. Otherwise it worked well and again improved confidence.

Lots of personal preference in the end after trial and error and reading lots of good advice on here. 

 

 

 

User
Posted 16 Sep 2025 at 21:21
Glenn, what you describe sounds typical for the first few days. I bought a packet of pull-ups and before I'd used them all I had got fed up with them and moved on to pads. I did need quite a few a day for the first few weeks, I used to carry a rucksac with spares all the time and became expert on where there were toilets I could pop into. I think I must have stayed relatively local those first weeks, I never went as far as carrying a substantial clothing change.

The good thing is it gets better. About six weeks after the operation we went to Greece on holiday - it had been booked for our daughter's half term well before I was diagnosed let alone operated. I still needed to change pads at intervals, but to find I could manage the activities I would normally do on those holidays (including dinghy sailing and some very cautious cycling) was a huge psychological boost. Improvements continued, and the next milestone was the point where a single spare pad (which goes in my back pocket) was enough to cope. I still carry a spare pad now.

Fingers crossed it will all be getting better for you.

 
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