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Question re return of natural erections

User
Posted 21 Sep 2025 at 20:17

Can anyone answer a question from their experience of post RARP natural erections please.

my husband had his op 20 months ago and 100% nerve sparing one side and about 80% the other side.  So we are told that return of natural erections are likely for him, although we understand and certainly have read on here, that this takes between 2 and 3 years.

Steve was just wondering how those erections manifest themselves initially, so for those of you that have experienced this - was it just wake up one morning and there it was; or was it a slow, partial erection which improved steadily?

Steve has been using a pump all this time for rehab/penile health; Tadalafil and Sildenafil didn’t work for him and we are moving on about to try injections, appointment in a few weeks for the demo.

 

Debbie

User
Posted 22 Sep 2025 at 15:31
I had similar nerve sparing 100% one side 75% the other.

Mine started as grade 1 a few months after surgery and didn't improve until I started using Caverject at about 2 years. I too could not tolerate the tablets.

10 years later I get a grade 3 naturally but if I don't use a ring it will fade during the "action". A Firmtech ring really makes a big difference! Almost as good as new...

User
Posted 22 Sep 2025 at 23:44

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
Adrian, we didn’t know about the erection grading scale (although he always got a 10 out of 10 from me!)

I've just asked my wife what score she'd give my lovemaking. She said, "Six out of ten. Must try harder!" 😁

harder is always good!! Onwards and upwards…that should be our motto on here!

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User
Posted 21 Sep 2025 at 22:14

I had full nerve sparring. Still took more then 2 years for me to get anything close to what I had before. Some folks only have partial nerve sparring but report that their erections returned almost immediately. So I think you can read from that firstly there are no guarantees and second everyone is different. 

Sildenafil did not work for me but Tadalafil did which I take once a week for maintenance rather than just before for sex. Previously I was using the pump everyday. 

So specifically how did my erections start to manifest? My penis would become more semi erect before orgasm, took a while to get to that point. Now with the Tadalafil they manifest anytime since it actually works for at least 4 days. 

Sorry that Steve is having difficulties, my first year without a proper erections was frustrating so I can empathise. Hopefully the injections work.

 

 

 

User
Posted 21 Sep 2025 at 22:33

Hi Debbie.

There is an erection hardness grading scale.

 Grade 0 represents ‘not enlarged’, grade 1 represents ‘larger but not hard’, grade 2 represents ‘hard but not hard enough for penetration’, grade 3 represents ‘hard enough for penetration but not completely hard’, and grade 4 represents ‘completely hard and fully rigid’ 

 Two and a half years ago, I had non nerve sparing RARP. I was told that I would never have a natural erection again. Unfortunately up to now that is the case.

However, using penile injections, Invicorp, I get a grade 3 erection, which is better than nowt.🙂

https://community.prostatecanceruk.org/posts/t29845-Hooray-for-Invicorp.

Good luck.👍

User
Posted 22 Sep 2025 at 07:06

They often first show up as very short-lasting semi-erections in circumstances where he would previously have had erections, e.g. during the night or on waking in the morning, or during stimulation. The use of Sildenafil or Tadalafil will help these early indications appear earlier, so it's good to be testing them periodically even if you haven't found them useful for sex, providing they aren't causing unwanted side effects.

There is some evidence (although it's not overwhelming) that regular use of Tadalafil from the operation for 6 or so months speeds up recovery, because it improves blood flow to nerves damaged by the surgery, even when it's not generating erections. (There's no such evidence for Sildenafil, probably because it's short acting and doesn't generate continuous dosing.) I rather doubt that regular continuous dosing Tadalafil would help much 20 months later, but it's worth trying the largest event dose perhaps monthly as it may give you an earlier sign of things improving. You could ask for a stock of tablets with the injections, but they won't want you trying them at the same time.

Also, it's really great that he's been using the pump, because otherwise, 20 months of no erections would have done some serious damage to the erectile tissues, and they wouldn't work properly even for injections otherwise.

Edited by member 22 Sep 2025 at 07:10  | Reason: Not specified

User
Posted 22 Sep 2025 at 09:18

Originally Posted by: Online Community Member
Also, it's really great that he's been using the pump, because otherwise, 20 months of no erections would have done some serious damage to the erectile tissues, and they wouldn't work properly even for injections otherwise.

Hi Andy.

Here's an interesting video by Dr Scholz on penile atrophy. He recommends injections very soon after surgery. He doesn’t mention using pumps.

https://youtu.be/l2Mo3g8SDPw?si=nBNZV-9t9w5wkwk

I did lots of research into pumps and found that although the evidence indicated they aided erection recover, their benefits were only marginal.

Apparently most men, unbeknown to them 🙄, have 4 erections every night whilst asleep. That's pretty good penis exercise and is nature's way of keeping it healthy. Replacing these lost natural erections would need a hell of a lot pumping. You'd end up with arms like Popeye.

A lot of men, like me, may have other medical problems, which unfortunarelty rule out any erection tablets. 

I do think the benefits of pumps are over exaggerated on here. It made me feel anxious that because I wasn't using one, my todger, like an lambs umbilical cord would wither away and drop off.😁

Like most men, through RARP, I lost some penis length, but there's little that can be done about that. The shortening of the uretha during surgery shortens the penis. Having said that, there is some evidence suggesting that using pumps can help reduce that shortening.

I started Invicorp, without any pump rehab, seven months after surgery. It's worked well. The chemically induced rush of blood to my 'little fella' produced an almost instant grade 3 erection. It was about 80% as big and as hard as it was pre op but it was good enough to do the business. The erection lasts about an hour and a half, which is longer than I can. 😁

After that time, my penis remains more engorged with blood for another two hours at least (grade 2) It's not priapism. I get 5 shots of Invicorp every month. That's equates to about 20 hours of 'erections' per month. I think I'd have to do a lot of hand pumping to get the same performance.

Another thing, I gained some comfort from, is that as we get older, with or without prostate cancer, ED often becomes an issue. It is a very common problem. So even if PCa hadn't entered my life, the chances are, age and other disorders, would have probably deactivated me. 

Here's an interesting article on ED therapy following RARP. 

https://wchh.onlinelibrary.wiley.com/doi/10.1002/psb.1968

It concludes:

GPs and practice nurses have a vital role to play in the holistic care of these men with ED and will often be the trusted first point of contact for these patients along with their cancer nurse specialists. Patients are now better informed with regard to their post-prostate cancer ED treatment options. Creating an environment in which men can broach this subject and get timely assessment facilitates optimal care. GPs and their community team are skilled at delivering ED treatments already. All patients should have access to specialist ED services but treatment initiation does not need to be confined to secondary care. Integrated pathways with secondary care lead to the optimal management of this patient group.

Sadly, in my opinion, the probability and side effects of ED, aren't given enough attention. 

Edited by member 22 Sep 2025 at 10:25  | Reason: Add link

User
Posted 22 Sep 2025 at 10:19
Thanks everyone for your replies and advice…

Sadly Steve had side effects with both Tadalafil and Sildenafil, bad enough to warrant him not tolerating them

Adrian, we didn’t know about the erection grading scale (although he always got a 10 out of 10 from me!)

The whole process of the ED side of this experience has been painfully slow, partly due to the fact that Steve has never been handed back to our own Trust, because of his incontinence issue and awaiting more surgery he remains with the Trust that did the RARP, but has to go to GP for the ED issue, unbelievably our Trust never had an ED clinic until a few months ago, with a three month waiting list! We got seen last week with an appointment to go back for injection demo in four weeks.

At the appointment we were told that non nerve sparing men get prescribed injections straight away but those with nerves have to go through the various stages of tablets etc first. We will be prescribed either Viridal Duo or the generic Alprostodil, depending on availability (Caverjet no longer issued), 4 injections a month. I asked about Invicorp and quoted my research of some men having pain associated with the other drugs….she said she’d never heard of it and googled it there and then!! She said it was likely more expensive but she did say if Steve doesn’t tolerate the first drugs or they don’t work that she would try and prescribe invicorp.

User
Posted 22 Sep 2025 at 15:31
I had similar nerve sparing 100% one side 75% the other.

Mine started as grade 1 a few months after surgery and didn't improve until I started using Caverject at about 2 years. I too could not tolerate the tablets.

10 years later I get a grade 3 naturally but if I don't use a ring it will fade during the "action". A Firmtech ring really makes a big difference! Almost as good as new...

User
Posted 22 Sep 2025 at 16:00

Originally Posted by: Online Community Member
Adrian, we didn’t know about the erection grading scale (although he always got a 10 out of 10 from me!)

I've just asked my wife what score she'd give my lovemaking. She said, "Six out of ten. Must try harder!" 😁

Edited by member 22 Sep 2025 at 22:51  | Reason: Typo

User
Posted 22 Sep 2025 at 23:44

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
Adrian, we didn’t know about the erection grading scale (although he always got a 10 out of 10 from me!)

I've just asked my wife what score she'd give my lovemaking. She said, "Six out of ten. Must try harder!" 😁

harder is always good!! Onwards and upwards…that should be our motto on here!

 
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