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Surgery soon - questions and advice

User
Posted 28 Oct 2025 at 12:31

Hi All...Im 52 & I was diagniosed in June this year with Gleason 3+4, a massive shock & after a roller coaster of decisions between Brachy and surgery,  I have opted for robotic surgery in a few weeks time. 


Not looking forward to it at all but reading some of the stories on here does help

I keep thinking of loads of questions but any general  tips for my hospital stay, living with and dealing with the catheter  & general advice for the 1st few weeks of recovery would be great. The recovery is a big worry and the thought of getting back to work and being incontinent is a concern.


When they take the catheter out, I understand they need to make sure the tubes have healed internally, how do they check that or do they just assume they wouldve healed after 7 - 10 days?

Im also very active, have many of you managed to get back to activities and sport that you were doing pre op?

Thanks all

User
Posted 28 Oct 2025 at 17:31

Best of luck with the Op next month as you’re being in good hands at London Bridge. I stayed at the London Bridge Hotel the night before and got a quiet room which worked well as less stress on the morning because it’s an early check-in. I think HCA have a room rate to get a few quid off but it’s still London prices.

the urethral connection or anastomosis which is made during the operation should heal without issue if you are careful… the catheter is removed after 10 to 14 days.

I’d say go easy on it for the full three months and then after that you can do what you like. After three months I got back into the gym started doing weights etc ease myself back into it…..for the last couple of years been doing full on calisthenics without issue. 

continence post surgery is to a point down to surgeon skill. I suspect if you’re at London Bridge you’re having one of the top guys so hopefully that should be taken care of. I suspect that they’ll be using Neurosafe as well as part of the procedure so you’re lining up all the cards in your favour.

If they’re using retzius sparing approach, which tries not to disturb The nerves below the bladder, this tends to give a higher probability of quicker post surgery continence.

London Bridge has good facilities and is effectively in Guys cancer centre….good size rooms and ensuite with TV and all the channels. Plus I found the food very good which you’ll get mostly stuck into day two.

One of best things I did was to buy some Canterbury full length zip track trousers which makes catheter management super easy. I also bought pads of varying grades just to be all kitted up.

A bucket is useful to put your night catheter bag in which is about 2 L size. catheter management just takes them getting used to really and it’s easy to get stressed. we are all here Should you have any questions or need a sounding board which I found super useful.

take a extra long charging cable for your phone because the sockets although they’re next to the bed can be longer than a meter of wire. 

Other than that it was fairly easy although like others I was quite stressed but managed to keep it together. When I woke up I realised it was in many respects less trouble than having my tonsils out.

 

Edited by member 28 Oct 2025 at 17:38  | Reason: Not specified

User
Posted 28 Oct 2025 at 16:54

Hi there,

My husband 55 had surgery just coming up to 4 weeks ago. He found the catheter mildly annoying but not painful  , the 10 days went quickly and after he had the catheter removed he had to wait a couple of hours until they were happy he could pass urine . He has had absolutely no continence issues not even a dribble. Needed the loo a few times through the night for the first few days. Not tried erections yet but did have a slight stirring the morning after surgery. The bit he has found the worst is the daily injection you have to thin the blood.  Keep up with your pelvic floor exercises as I think this did greatly improve his outcome. Good luck 

 

User
Posted 28 Oct 2025 at 17:02

Wow small world mate I also had mine done privately at London Bridge , your not meant to mention names on here but surgeon DC also works out of the Royal Marsden 👍 and yes it was his CNS , she is also a doctor in her own right 

Yes and funny you mention pre assessment checks as I was told initially to go the day before for the checks but then I got a call from London Bridge saying they needed to do them at least 2 days before, I am nowhere near London so had to book a hotel for some extra nights and go early 

they do look after you there mate 👍

 

User
Posted 28 Oct 2025 at 17:19

It’s natural to be worried mate I was dreading it but strangely was really calm on the day and was quite funny waking up and asking the nurse how long it would be before they did it as I didn’t even realise it had been done 

one thing to mention is if they do it the same the pre assessment checks are done at St Olaf’s house, next door to St Olaf’s house is London Bridge hospital BUT it’s not the London Bridge hospital where you will be having the surgery , it was only by chance that I asked the nurse at Pre assessment about parking and she told me , the main hospital is about 5/10 mins walk away , not sure why it’s called by the same name, very confusing  

User
Posted 28 Oct 2025 at 17:24

Thanks a lot...it will help if I go to the right place :-)

Appreciate the info, Im sure I will have more questions in the next couple of weeks

User
Posted 28 Oct 2025 at 17:38

Ask away mate if you have any queries we have all been there 👍as you can see tech guy above is very knowledgeable on the subject and he helped me a lot when I was waiting for surgery 

User
Posted 28 Oct 2025 at 17:43

Yeah bit of a run around between bloods done at one place next to shard and then pre assessment at another tucked away in a room upstairs somewhere. Just don’t be afraid of asking directions as easy to get lost with all the sub buildings all over the place. 

One the plus side can’t miss The Shard lol

 

User
Posted 28 Oct 2025 at 18:56

IMF, hope all goes well for you, my top tip is a packet of your favourite biscuits for a midnight snack after surgery.

The following link has lots of suggestions and there are other links within some posts.

https://community.prostatecanceruk.org/posts/t31026-What-do-I-need

Thanks Chris 

User
Posted 28 Oct 2025 at 21:41

Sounds good. I saw the Prof who is an absolutely legend with robotic and laparoscopic prostate cancer surgery. 

retzius sparing is how the prostate is approached to avoid the nerves under the bladder. Access area is known as the cave of retzius.

neuroSAFE pays dividends with nerve sparing as the prostate is checked by a pathologist on standby while you are open. They do quick frozen sections of the prostate to check the boarders are clear and/or take additional tissue if needed. So helps give near real-time visibility so nerve sparing is more optimal plus negative margin reassurance.

User
Posted 29 Oct 2025 at 10:51

Hi, IMF73.

Welcome to the forum mate.

My PSA was only 6.6, yet my final diagnosis was Gleason 9 (4+5), capsular breach, T3a.

Nine hundred and eighty seven days ago, (not that I'm counting 🙂), I had RARP.

According to my wife, my life is now back to normal.

Fitness: Still in good shape. Almost spherical.

Continence: Still dribble too often.

Sex life: Still very infrequent, and nothing to write home about.

Edited by member 29 Oct 2025 at 16:31  | Reason: Typo

Show Most Thanked Posts
User
Posted 28 Oct 2025 at 16:40

Hi Mate

56 here , I had the same as you 3+4 and had surgery on 22nd August 

First thing I would say is for me the fear of the op was worse than the op itself, went in put to sleep then woke up to ice cream , was groggy that was about it , I was in hospital for 2 days and nights and just chilled out, watched telly and had the odd walk around the ward block

I have to be honest I struggled a bit more than most with the catheter , I had a few blockages , but then my CNS gave me some tips, firstly they sent me out with it all tucked into a like a bandage pouch which squashed it up , once I took it out of this pouch it didn’t happen as much , another good tip she gave me was when it is connected to the night bag let it hang free , I put it on a pillow ( so it wouldn’t pull ) in the direction of and over the night bag , I found this worked quite well

not sure what you mean about them checking internal tubes, I have never heard that before, when I had the catheter taken out it was just a case of weeing a certain amount to ensure you can go ok and that was it 

to be honest once the catheter was out I felt fine in myself and you have to remind yourself that you have had major surgery as I certainly felt I could do more but I didn’t as I know that there is a lot of healing going on that I couldn't see or feel , I was also very lucky as I was dry straight from catheter removal and have stayed that way , hope I’m not tempting fate

now 9 weeks down the line I’m just starting to get back in the gym but limiting myself until I have my consultation tomorrow where I will be asking how much I can now do 

all the best with it mate and just shout out if you have more queries 

Nick

User
Posted 28 Oct 2025 at 16:49
Hi Nick Thanks for the info & reply - very helpful & reassuring.

Sounds like you're recoverign really well, I am worried (like all of us Im sure) about the continence side of things but it sounds like that wasnt an issue for you. Im doing lots of pelic floor exercises, so I am hoping they will be helping.

They are planning to do nerve sparing but it soinds liek they wont know 100% until they are doing the procedure.

Great to hear you are getting back to the gym and active again too.

You mention the CNS - I assume you mean nurse? Did you speak to them prior and have a pre op assessment (blood tests etc)? Im having mine done at Londion Bridge but havent been told to come in prior yet

Thanks again

User
Posted 28 Oct 2025 at 16:54

Hi there,

My husband 55 had surgery just coming up to 4 weeks ago. He found the catheter mildly annoying but not painful  , the 10 days went quickly and after he had the catheter removed he had to wait a couple of hours until they were happy he could pass urine . He has had absolutely no continence issues not even a dribble. Needed the loo a few times through the night for the first few days. Not tried erections yet but did have a slight stirring the morning after surgery. The bit he has found the worst is the daily injection you have to thin the blood.  Keep up with your pelvic floor exercises as I think this did greatly improve his outcome. Good luck 

 

User
Posted 28 Oct 2025 at 17:02

Wow small world mate I also had mine done privately at London Bridge , your not meant to mention names on here but surgeon DC also works out of the Royal Marsden 👍 and yes it was his CNS , she is also a doctor in her own right 

Yes and funny you mention pre assessment checks as I was told initially to go the day before for the checks but then I got a call from London Bridge saying they needed to do them at least 2 days before, I am nowhere near London so had to book a hotel for some extra nights and go early 

they do look after you there mate 👍

 

User
Posted 28 Oct 2025 at 17:10

Thats great to hear. Sounds like it may be a different surgeon but yes its going to be private at London Bridge.

Im waiting to hear about a pre assessment. Its all getting a bit close now!!!
The closer it gets the more little worries :-) 

User
Posted 28 Oct 2025 at 17:19

It’s natural to be worried mate I was dreading it but strangely was really calm on the day and was quite funny waking up and asking the nurse how long it would be before they did it as I didn’t even realise it had been done 

one thing to mention is if they do it the same the pre assessment checks are done at St Olaf’s house, next door to St Olaf’s house is London Bridge hospital BUT it’s not the London Bridge hospital where you will be having the surgery , it was only by chance that I asked the nurse at Pre assessment about parking and she told me , the main hospital is about 5/10 mins walk away , not sure why it’s called by the same name, very confusing  

User
Posted 28 Oct 2025 at 17:24

Thanks a lot...it will help if I go to the right place :-)

Appreciate the info, Im sure I will have more questions in the next couple of weeks

User
Posted 28 Oct 2025 at 17:31

Best of luck with the Op next month as you’re being in good hands at London Bridge. I stayed at the London Bridge Hotel the night before and got a quiet room which worked well as less stress on the morning because it’s an early check-in. I think HCA have a room rate to get a few quid off but it’s still London prices.

the urethral connection or anastomosis which is made during the operation should heal without issue if you are careful… the catheter is removed after 10 to 14 days.

I’d say go easy on it for the full three months and then after that you can do what you like. After three months I got back into the gym started doing weights etc ease myself back into it…..for the last couple of years been doing full on calisthenics without issue. 

continence post surgery is to a point down to surgeon skill. I suspect if you’re at London Bridge you’re having one of the top guys so hopefully that should be taken care of. I suspect that they’ll be using Neurosafe as well as part of the procedure so you’re lining up all the cards in your favour.

If they’re using retzius sparing approach, which tries not to disturb The nerves below the bladder, this tends to give a higher probability of quicker post surgery continence.

London Bridge has good facilities and is effectively in Guys cancer centre….good size rooms and ensuite with TV and all the channels. Plus I found the food very good which you’ll get mostly stuck into day two.

One of best things I did was to buy some Canterbury full length zip track trousers which makes catheter management super easy. I also bought pads of varying grades just to be all kitted up.

A bucket is useful to put your night catheter bag in which is about 2 L size. catheter management just takes them getting used to really and it’s easy to get stressed. we are all here Should you have any questions or need a sounding board which I found super useful.

take a extra long charging cable for your phone because the sockets although they’re next to the bed can be longer than a meter of wire. 

Other than that it was fairly easy although like others I was quite stressed but managed to keep it together. When I woke up I realised it was in many respects less trouble than having my tonsils out.

 

Edited by member 28 Oct 2025 at 17:38  | Reason: Not specified

User
Posted 28 Oct 2025 at 17:38

Ask away mate if you have any queries we have all been there 👍as you can see tech guy above is very knowledgeable on the subject and he helped me a lot when I was waiting for surgery 

User
Posted 28 Oct 2025 at 17:40

I stayed at London Bridge hotel matey and they still do a discount 👍

User
Posted 28 Oct 2025 at 17:43

Yeah bit of a run around between bloods done at one place next to shard and then pre assessment at another tucked away in a room upstairs somewhere. Just don’t be afraid of asking directions as easy to get lost with all the sub buildings all over the place. 

One the plus side can’t miss The Shard lol

 

User
Posted 28 Oct 2025 at 18:55

Thanks so much.
Im about an hour from London  so will be travelling up in the morning

Yes, its at London Bridge & the surgeon seems v good and is v experienced, yes he's using Neurosafe too so fingers crossed. Im not sure on the Retzius approach though, I will ask them that. Thats different to the nerve sparing isnt it?

Im keen to hopefully get back to sport but wont be rushing it, good to hear you were back at the gym after 3 months and now back active.

Thanks for all these tips

Originally Posted by: Online Community Member

Best of luck with the Op next month as you’re being in good hands at London Bridge. I stayed at the London Bridge Hotel the night before and got a quiet room which worked well as less stress on the morning because it’s an early check-in. I think HCA have a room rate to get a few quid off but it’s still London prices.

the urethral connection or anastomosis which is made during the operation should heal without issue if you are careful… the catheter is removed after 10 to 14 days.

I’d say go easy on it for the full three months and then after that you can do what you like. After three months I got back into the gym started doing weights etc ease myself back into it…..for the last couple of years been doing full on calisthenics without issue. 

continence post surgery is to a point down to surgeon skill. I suspect if you’re at London Bridge you’re having one of the top guys so hopefully that should be taken care of. I suspect that they’ll be using Neurosafe as well as part of the procedure so you’re lining up all the cards in your favour.

If they’re using retzius sparing approach, which tries not to disturb The nerves below the bladder, this tends to give a higher probability of quicker post surgery continence.

London Bridge has good facilities and is effectively in Guys cancer centre….good size rooms and ensuite with TV and all the channels. Plus I found the food very good which you’ll get mostly stuck into day two.

One of best things I did was to buy some Canterbury full length zip track trousers which makes catheter management super easy. I also bought pads of varying grades just to be all kitted up.

A bucket is useful to put your night catheter bag in which is about 2 L size. catheter management just takes them getting used to really and it’s easy to get stressed. we are all here Should you have any questions or need a sounding board which I found super useful.

take a extra long charging cable for your phone because the sockets although they’re next to the bed can be longer than a meter of wire. 

Other than that it was fairly easy although like others I was quite stressed but managed to keep it together. When I woke up I realised it was in many respects less trouble than having my tonsils out.

 

User
Posted 28 Oct 2025 at 18:56

IMF, hope all goes well for you, my top tip is a packet of your favourite biscuits for a midnight snack after surgery.

The following link has lots of suggestions and there are other links within some posts.

https://community.prostatecanceruk.org/posts/t31026-What-do-I-need

Thanks Chris 

User
Posted 28 Oct 2025 at 21:41

Sounds good. I saw the Prof who is an absolutely legend with robotic and laparoscopic prostate cancer surgery. 

retzius sparing is how the prostate is approached to avoid the nerves under the bladder. Access area is known as the cave of retzius.

neuroSAFE pays dividends with nerve sparing as the prostate is checked by a pathologist on standby while you are open. They do quick frozen sections of the prostate to check the boarders are clear and/or take additional tissue if needed. So helps give near real-time visibility so nerve sparing is more optimal plus negative margin reassurance.

User
Posted 29 Oct 2025 at 10:51

Hi, IMF73.

Welcome to the forum mate.

My PSA was only 6.6, yet my final diagnosis was Gleason 9 (4+5), capsular breach, T3a.

Nine hundred and eighty seven days ago, (not that I'm counting 🙂), I had RARP.

According to my wife, my life is now back to normal.

Fitness: Still in good shape. Almost spherical.

Continence: Still dribble too often.

Sex life: Still very infrequent, and nothing to write home about.

Edited by member 29 Oct 2025 at 16:31  | Reason: Typo

 
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