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Tracing BRCA gene family history

User
Posted 28 Nov 2025 at 16:51

Screening by familial BRCA history can unintentionally exclude people on lower incomes and those from black backgrounds.

This is because access to earlier genetic testing in the UK has not been evenly distributed.

Historically, BRCA testing was offered mainly through breast and ovarian cancer pathways used more often by White, higher-income women who had clearer documented family histories and better access to specialist services.

 

Lower-income groups and black families were less likely to receive referrals, partly due to reduced engagement with genetic services, fewer recorded family histories, and structural barriers such as transport, time, and awareness.

As a result, BRCA status is known disproportionately for people from higher-income and White backgrounds. If a prostate cancer screening programme relies on “known BRCA mutation status” and family members to inform each other of this so that the men can request enhanced monitoring, it will systematically exclude many Black men and low-income men who may carry BRCA mutations but whose relatives have never been tested.

NorthernMan

User
Posted 28 Nov 2025 at 19:45

A recent literature review.

Racial disparities in Black men with prostate cancer: 

https://pmc.ncbi.nlm.nih.gov/articles/PMC9826514/#:~:text=PCa%20is%20one%20of%20the,care%20compared%20with%20White%20men.

Edited by member 28 Nov 2025 at 19:51  | Reason: Add link

User
Posted 28 Nov 2025 at 21:00

Disappointing that the 'Committee' making recommendations on screening men for PCa advocate only testing men with BRACA gene and not even black men who are known to be at higher risk. However, it's going out for consultation with ultimate decision to be taken by Health Secretary. Currently a subject on Sky News.

Edited by member 28 Nov 2025 at 21:03  | Reason: Not specified

Barry
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User
Posted 28 Nov 2025 at 19:45

A recent literature review.

Racial disparities in Black men with prostate cancer: 

https://pmc.ncbi.nlm.nih.gov/articles/PMC9826514/#:~:text=PCa%20is%20one%20of%20the,care%20compared%20with%20White%20men.

Edited by member 28 Nov 2025 at 19:51  | Reason: Add link

User
Posted 28 Nov 2025 at 21:00

Disappointing that the 'Committee' making recommendations on screening men for PCa advocate only testing men with BRACA gene and not even black men who are known to be at higher risk. However, it's going out for consultation with ultimate decision to be taken by Health Secretary. Currently a subject on Sky News.

Edited by member 28 Nov 2025 at 21:03  | Reason: Not specified

Barry
 
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