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Waiting on results

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User
Posted 04 Dec 2025 at 17:00

I had biopsies of the prostate taken on the 22 October and these were discussed by the MTD team last week and now waiting on an appointment to find out the results. No one will tell me anything over the phone. They said that I should recieve an appointment for next week or the following week. I am finding the whole situation really frustrating as it seems that no one will take to me about my situation from the team. This all started in June of this year when I had a raised PSA level they 8 weeks later a MRI scan and the 6 weeks later the biopsy. Is this not too long to wait for results or am I just being impatient. 

User
Posted 04 Dec 2025 at 17:48

Hello again, mate.

Waiting for over six weeks for your biopsy results does seem longer than usual, but I wouldn't read anything into. 

I was diagnosed during COVID, my clinical nurse specialist telephoned me with the results about three weeks after the biopsy.

Try not to worry, mate and good luck. 👍

User
Posted 16 Dec 2025 at 11:48
AS seems appropriate in present circumstances
Barry
User
Posted 17 Dec 2025 at 10:07

Hi Adrian, 

Just checked your profile & seen you have another undetectable p s a, congratulations mate long may it continue. I thought you may have put it on a new post I have been checking but I never came across it.

Anyway worth a quick desertion of the wagon if you haven’t already deserted 😂😂😂👍👍

 

User
Posted 17 Dec 2025 at 10:43

This article sums it up. Essentially 3+3 is very low risk. However some men take that as I can ignore it, and that is very unwise.

https://www.hopkinsmedicine.org/news/articles/2022/11/gleason-336-is-not-not-cancer

 

Dave

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User
Posted 04 Dec 2025 at 17:48

Hello again, mate.

Waiting for over six weeks for your biopsy results does seem longer than usual, but I wouldn't read anything into. 

I was diagnosed during COVID, my clinical nurse specialist telephoned me with the results about three weeks after the biopsy.

Try not to worry, mate and good luck. 👍

User
Posted 15 Dec 2025 at 15:14
Hi Friely,

Sorry to hear you are having such a long torturous wait. Have you heard any news?

User
Posted 15 Dec 2025 at 15:40

Was diagnosed on Friday prostate cancer early stage. Now considering active surveillance. 

User
Posted 16 Dec 2025 at 08:32

Hello again, mate.

Thanks for the update. If you dont mind  telling, what was your Gleason score? 

I'm a big fan of active surveillance, so long as it is active, and that you are monitored correctly. Here's an excellent video on treatment options, including AS.

https://youtu.be/zYTU94-8pTc?si=1Z29_l8rbTwF6DHl

Good luck.👍

 

User
Posted 16 Dec 2025 at 10:13

My score is 3 and 3 staging T2 active surveillance PSA 3 monthly MRI annually. PSA 11.10. 

User
Posted 16 Dec 2025 at 11:48
AS seems appropriate in present circumstances
Barry
User
Posted 17 Dec 2025 at 10:07

Hi Adrian, 

Just checked your profile & seen you have another undetectable p s a, congratulations mate long may it continue. I thought you may have put it on a new post I have been checking but I never came across it.

Anyway worth a quick desertion of the wagon if you haven’t already deserted 😂😂😂👍👍

 

User
Posted 17 Dec 2025 at 10:29
Friely.

Sorry about jumping in on your post, that above message should have gone to Adrian.

On your question regarding testing I think your choice of active surveillance is correct, their is significant evidence that 3+3 cancer should not be classified as cancer now.

So as long as you keep up with surveillance many would say that is the way to go.

All the best .

Jeff.

User
Posted 17 Dec 2025 at 10:33

Sorry to ask but what’s the evidence that 3 and 3 is not cancer? Just confused now. 

Edited by member 17 Dec 2025 at 10:39  | Reason: Not specified

User
Posted 17 Dec 2025 at 10:43

This article sums it up. Essentially 3+3 is very low risk. However some men take that as I can ignore it, and that is very unwise.

https://www.hopkinsmedicine.org/news/articles/2022/11/gleason-336-is-not-not-cancer

 

Dave

User
Posted 17 Dec 2025 at 10:55

Great article many thanks. 

User
Posted 17 Dec 2025 at 18:54

Hi Friely.

That link from Dave is correct & there is many more eminent doctors that share that view.

Like I advised earlier as long as correct active surveillance is followed up that is the main concern.

Of course it is everyone’s own decision on the treatment they undertake ie individual fitness, a persons age, quality of life. There is a bit of evidence showing people are getting over treated & having to go through all the side effects of those treatments.

All the best Jeff.

User
Posted 17 Dec 2025 at 19:55

Dr Scholz, categorically states that true Gleason 6 (3+3) does not metastasize. He states it is a harmless sub type cancer. He quotes research showing that 12000 men with 'pure' Gleason 6 and not one of them metastasized.

https://youtu.be/a0sjUallZQU?si=twhThcYjnoJTIaqQ

I believe his claims. However, the problem is, how can you be sure that you have 'pure' Gleason 6? Biopsies aren't conclusive, they can't guarantee that all cancer cells have been detected. As in my case, more aggressive grades are frequently missed. 

The only way, at present, you can be sure that you had pure Gleason 6, is if you've had your prostate removed and thoroughly checked. 

What I get from Dr Scholz is, Gleason 6 can grow, can breach the prostate capsule, can cause extraprostatic extension but it cannot metastasize, to lymph nodes or anywhere else.

Edited by member 17 Dec 2025 at 20:11  | Reason: Additional text

User
Posted 17 Dec 2025 at 21:25

Yes , and my understanding is that while a 3 does not evolve into a 4, or 4 into a 5 etc there needs to be constant vigilance as  4s or 5s etc  could still pop up elsewhere.

 
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