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Treatment plan for advanced locally to one node

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User
Posted 04 Dec 2025 at 21:52

Husband now has treatment plan.

He has his first HT injection on 9th December. Decapeptyl. 4 weeks first. 

Routine gp bloods on 12th to check cholesterol etc and calcium. He has already been prescribed vitamin D as apparently he is low in that.

Then follow up with GP on 16th.

Next appointment at hospital on 6th Jan as follow up. 

At some point he will have Apalutamide added to the mix. I  understand why but am very concerned about side effects. Hopefully if it's not good it may be swopped for something else. I'm learning to take each day as it comes already 😌 

 

User
Posted 04 Dec 2025 at 23:04

Antoinette, I am on decapeptyl and apalutamide. I have been on them since march this year. The hot flushes are probably the most annoying for me and I get a couple most evenings. I did get mood swings at the start but they seem to have eased off. They are struggling to get my blood pressure under control. I am taking vitamin D every day. All in all, it is all quiet tolerable. 

Thanks Chris 

User
Posted 05 Dec 2025 at 19:26
With the hot flushes, I did have many flushes day and night but expected them, I had acupuncture and that really helped me, the hot flushes eased considerably if he fancies giving that a go-tho I know it doesnt help everyone. They can help with other aspects too sleep, stress etc. I hadnt had acupuncture before and I was really impressed.

Peter

User
Posted 06 Dec 2025 at 15:27

I was T3b PSA 35 indeterminate nodes [ at least one ] Gleeson 9 boy .

2 years of Androgen Deprivation and 20 sessions of Radiation , PSA now 0.11 , testosterone normal range and feeling normal again , there is light at the end of the tunnel.

it may return but getting on with Life and enjoying it , 70 next .

User
Posted 06 Dec 2025 at 22:06

Oh thank you. We just had his birthday. The same to you. I wish you the very best x 

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User
Posted 04 Dec 2025 at 23:04

Antoinette, I am on decapeptyl and apalutamide. I have been on them since march this year. The hot flushes are probably the most annoying for me and I get a couple most evenings. I did get mood swings at the start but they seem to have eased off. They are struggling to get my blood pressure under control. I am taking vitamin D every day. All in all, it is all quiet tolerable. 

Thanks Chris 

User
Posted 04 Dec 2025 at 23:17

Well that's something reasonable to hear. Thank you for replying to me, I appreciate it. I am concerned about the BP side too. 

I've bought a Embr wave device for hot flushes. I'm hoping it helps. I've seen they do.  They are expensive but i got one off ebay. The unknown is quite daunting! 

 

User
Posted 05 Dec 2025 at 19:26
With the hot flushes, I did have many flushes day and night but expected them, I had acupuncture and that really helped me, the hot flushes eased considerably if he fancies giving that a go-tho I know it doesnt help everyone. They can help with other aspects too sleep, stress etc. I hadnt had acupuncture before and I was really impressed.

Peter

User
Posted 05 Dec 2025 at 23:53

Thank you Peter for that. I've had acupuncture. He's a pretty open minded sort of chap and I'm sure would be willing to give it a go. Thank you 

User
Posted 06 Dec 2025 at 15:27

I was T3b PSA 35 indeterminate nodes [ at least one ] Gleeson 9 boy .

2 years of Androgen Deprivation and 20 sessions of Radiation , PSA now 0.11 , testosterone normal range and feeling normal again , there is light at the end of the tunnel.

it may return but getting on with Life and enjoying it , 70 next .

User
Posted 06 Dec 2025 at 19:29

Hi Mike Thank you for that. Feeling bit more positive and he is a very practical sort of chap. His father had prostate cancer back in the 1990s and lived to be 93. He had radiotherapy. 

We'll just take a day at a time and do the best we can x 

User
Posted 06 Dec 2025 at 21:52
I felt very down at the start of this journey but not now .

Had a spinal operation 2 months ago which went well .

Cataracts to sort in January and continue moving on .

Best wishes and seasons greetings.

Mike .

User
Posted 06 Dec 2025 at 22:06

Oh thank you. We just had his birthday. The same to you. I wish you the very best x 

 
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