Hi
I have ben on darolutamide since the beginning of February, having already started on Zoladex implants - so two HTs...Also had chemo, just finished 3 days ago!!
Difficult to put a finger on what has caused what but in terms of HT I have stopped growing a beard (almost) and am hanging on to my moustache - which I have had since I was about 16. I am certainly putting weight on but that I am sure is the steroids that go along with the chemo. What little hair I had has now gone due to chemo - but not an issue.
Emotionally I have found a big change - I can get quite upset about stuff especially if it is sad news. I have had wobbles when awake in the middle of the night - and wondered what on earth I am doing to myself. I try not to get too upset in company but do occasionally let myself go when alone.
Manboobs are a real thing! I exercise (weights/resistance bands) to make sure that I have chest muscle to compensate.
I do get hot flushes but these wax and wane, and can be so dependant on where I am in the treatment phase, whether I have had hot food/drink ... I just let them wash over and then get on with stuff. At night I have a handy fan by the bed which is USB rechargeable (John Lewis I think) and this does help. Bed coverings are on and off, and I sometimes potter off to the spare room to prevent my other half from getting disturbed.
Killing off the testosterone has its effects - which are well documented -and these have impacted me.
BUT - life goes on, the weather is great and I can get to see the grandkids soon and have a break.
Plenty of exercise and healthy eating fights the fatigue, and I do not drink alcohol or have caffeine. Keeping well hydrated is the key - try and stick to the recommended 2litres per day (but stop early enough in the evening to minimise trips in the night).
CeePee
Best wishes - stay positive CeePee |
User
It is a battle at times & you are right keeping active it is the best thing to do.
My hubby is on antidepressants and these really help him with depression it is a known side effect of the hormone treatment, but also normal to have a wobble.
Don't be shy in mentioning depression and getting treatment the difference of being on antidepressants in my husband is like living with a different person, he used to get very quiet and reflective and I wondered what I had done wrong.
Grandkids are great aren't they ❤️
Thank you for your honest open reply wishing you all the best with your treatment.