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Hubby Starting Darolutamide

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User
Posted 19 Jan 2026 at 09:02

Re Previous post we thought it would be Enzalutamide but now seen consultant medical oncologist and Darolutamide seems to be the best option.

Hubby Starting them today

Anyone have any experience or advice with taking Darolutamide. 

Always find personal experience very helpful.

Thanks again everyone 

User
Posted 19 Jan 2026 at 13:54

Hello, my 68 year old stage 4 T3bN1M1 husband has been on Decapeptyl and Darolutamide for the last 6 months after his initial diagnosis. He has had no noticeable side effects other than losing most of his post-puberty body hair. The loss of his bushy ear hair has made him very happy! He feels a bit weaker and more tired but nothing that really that interferes with his QoL. He hasn't had any hot flushes etc and he has his first bone density scan tomorrow. As is often stated, each person is different so hopefully your husband will have an equally non-evenful Darolutamide journey.

User
Posted 23 Jan 2026 at 21:27

Hello Julie,

I'm on triplet therapy and have been on Prostap and Darolutamide since mid 2024 (also had chemo at the time). I've not experienced any significant side effects at all - only the occasional hot flush and a little more tired generally but nothing significant. Best news is my PSA remains undetectable.

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User
Posted 19 Jan 2026 at 13:54

Hello, my 68 year old stage 4 T3bN1M1 husband has been on Decapeptyl and Darolutamide for the last 6 months after his initial diagnosis. He has had no noticeable side effects other than losing most of his post-puberty body hair. The loss of his bushy ear hair has made him very happy! He feels a bit weaker and more tired but nothing that really that interferes with his QoL. He hasn't had any hot flushes etc and he has his first bone density scan tomorrow. As is often stated, each person is different so hopefully your husband will have an equally non-evenful Darolutamide journey.

User
Posted 23 Jan 2026 at 21:27

Hello Julie,

I'm on triplet therapy and have been on Prostap and Darolutamide since mid 2024 (also had chemo at the time). I've not experienced any significant side effects at all - only the occasional hot flush and a little more tired generally but nothing significant. Best news is my PSA remains undetectable.

User
Posted 23 Jan 2026 at 21:35
Thank you so much

Great news re your PSA.

 
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