Lymph Node cancer

Dave, I have had two pelvic lymph nodes treated on two separate occasions. On both occasions I had 5 sessions of SABR treatment over a ten day period. There were no side effects from the SABR treatment. On the second occasion I went on six months of Bicalutamide, that did give me a few side effects, mainly it was an increase of breast tissue, my oncologist wouldn't prescribe any drugs to neutralise the effects of the bicalutamide. 

Are you going to the Genisis centre at Oxford,I had my PSMA scans there but had treatment done in the East Midlands. There was talk of having the second tumor treatment done at Oxford, mainly due to it's proximity to organs and they didn't think the local RT machine could do it. Fortunately it turned out I could have it done locally, saving a few 170 mile round trips. If you are going to Genisis Oxford they are lovely people there, great facilities, plenty of parking. 

Both lots of treatment apparently were successful . I had a further recurrence that found numerous hot spots but the previously treated lymph nodes showed no activity when scanned.

I was happy to chase rainbows but it got to the point were there were too many areas to treat and I started decapeptyl and apalutamide about a year ago.

Hope all goes well.

Thanks Chris 

Dave, are you having private treatment at Oxford. They do lay on transport if you are having some treatments. Remember you need to keep you distance from certain categories of people after a PSMA scan.

Thanks Chris 

I was told just to avoid getting too close to young children or pregnant women for a few hours after. Some suggest  the rest of the day . I still went home on the train as normal. Maybe depends how crowded it is likely to be if you can't change your seat.

Edited by member 20 Jan 2026 at 20:09  | Reason: Not specified

Hi Dave ,I ,12 years since radical prostatectomy and 11 years after salvage radiotherapy,too have seen spike in psa .3 months ago attended QE hospital for the 5 doses of sabr radiotherapy as lymph tumour had appeared in pelvis  .Today received phone call from oncology concerning latest psa blood test .Seems was 2.7 before Sabr and now is 1.7 .Not sure what next step could be ,but not holding my breath till it goes away lol.

Chris, I was told they could only treat up to 5 hotspots, others on here have been told 3 hotspots. My oncologist said he might be able to get away with having a second round of treatment but not to the same nodes and again limited to 5 or 3 hotspots on the NHS. So the first node was treated on the NHS.

I opted to use our medical insurance and go down the private route. I had the second  lymph node treated privately, then the next scan showed at least 5 hotspots and suspicious areas. The spread ranged from the pelvic area to the shoulders. He said it was too widespread for SABR and suggested HT. 

The HT started about ten months ago I was having good days and bad days. The blood pressure was being elevated by the apalutamide. The onco suggested stopping the apalutamide. I dropped to one quarter of the dose for a week and stopped altogether 12 days ago. I feel great,the addition of another tablet has dramatically reduced the BP. I have a conversation with the onco next week. 

I remember my wife saying, she thought she could see the light at the end of the tunnel, but it was someone with a torch bringing her even more work.

Thanks Chris 

Edited by member 03 Feb 2026 at 16:16  | Reason: Not specified

Hi Oxford is our nearest. Husband had a PET Scan there that showed PC in one node. He is on HT at present with a view to RT in June. 

He wasn't there very long at all, very efficient.  I think the radioactivity risk is actually minute . The staff have to be more careful I think 

Dave, sorry to hear that they have found more spread. I don't know about side effects with relugolix. I have struggled with apalutamide over the past few months but I am experimenting with the oral dosage with some success. 

Thake care. Thanks Chris