Trying to get an ED consultation

Apologies if referencing the specific hospital may have seemed disparaging. I have nothing but praise for them. The whole process from tests to surgery and after care has been really good. It's just this particular area has felt a little lacking. 

Hi, Ken.

Welcome to the forum, mate.

Three years ago, I had RARP. Mine was non-nerve sparing. I was told that the chances of me ever having a natural erection again were remote. Unfortunately, up to now, that has has been the case. 

The NHS Trust where I was treated, booked RARP patients an ED clinic appointment about six months after surgery. That's when I was taught how to use penile injections. They were later prescribed, to me and have been very successful. 

It seems to me, dealing with ED can vary enormously from Trust to Trust. I get the impression that generally there is not enough emphasis on ED.

In a perfect world, I think you should be prescribed ED tablets very soon after surgery. They improve blood flow to the penis and you should also get medical advice on pumps, and other ED treatments. 

If you do not look after your penis, you may end up with penile atrophy, which may cause permanent ED issues.

Like myself, some men, usually due to heart conditions, may not be able to take ED tablets. I was put straight onto injections.

Personally, I've never used pumps, despite research suggesting they do help penile rehabilitation. 

My advice would be push for tablets and get a pump. Go to your ED clinic appointment, and make a list of questions you want answering.

I did a conversation on penile injections. In it  are  posts relating to ED issues in general. It might be of some use to you.

https://community.prostatecanceruk.org/posts/t29845-Hooray-for-Invicorp

Good luck, mate. 👍

Edited by member 03 Feb 2026 at 18:38  | Reason: Typo

Hi Ken_Long

I can understand your frustration because I was in a similar position 15 years ago. A very experienced and friendly  surgeon performed RARP, he told me to start doing pelvic floor execises, informed my GP to prescribe Viagra and a Vacuum Erection Device (NHS prescribe) and that was all. So I had to rely on information via Google and PCUK and it was basically a DIY job!

While you are waiting for help it is worth doing the following, if you are not:

Massage your penis, testicles and masturbate to orgasm; this helps the blood to flow and is the beginning of waking up you penis and parts of you brain which have been traumatised by the treatment. Of course you will not ejaculate but may eject urine. Be gentle and you could find that quite enjoyable and if your wife/partner takes part mutual pleasuring is amazingly erotic. You don't need an erection to start enjoying sex

Do pelvic floor exercises two/three times a day (don't overdo it); if you are not totally continent the exercise is convenient to do while sitting on the toilet. 

Above all be patient and regard this new normal as an opportunity to enjoy sex in a novel and imaginative way. If your nerves were preserved you will began to see improvement. I never regained my erectile function but we are still having amazing sex.

good luck.

Edited by member 03 Feb 2026 at 18:31  | Reason: Not specified

Pratap is the authority on this. My husband bought the Soma Erect . I believe thats the one recommended by the NHS.

It was about £240 so not cheap, but this your current and future health so may be useful investment. He gets on well with it, using it when he has a shower. 

Also check out a down to earth you tube series A Touchy Subject.  She reviews pumps, and gives a lot of advice for rehabilitation following RARP. She has a free course you can sign up to by email. 

Adrian

If I am not mistaken Dr Scholz is very much against prostatectomies and that may be the reason he does not mentions pumps.