Darolutamide anyone taking this?

User

Posted 12 Feb 2026 at 22:04

Looking into side effects of Darolutamide and how frequently it's prescribed nowadays.

It seems to be slightly gentler on the system.

But haven't had any replies to previous queries yet

User

Posted 14 Feb 2026 at 17:40

Antoinette, surprised no one has responded to your, posts.

Thanks Chris

User

Posted 14 Feb 2026 at 18:08

Yes so am I. I don't think it's given unless you're resistant to some of the others. His BP has improved quite a bit, mostly a green light, with a few Amber's. I think the pharmacist is getting back to him again next week.

Meanwhile it's still going OK. 🤞🤞so far day at a time. He's just got in from a long dog walk, we've been round some local gardens, done the weekly shop, he's just lighting the woodburner. I'm tired, even if he isn't!

User

Posted 05 Apr 2026 at 22:27

I've been taking Darolutamide for 3 months now with Leuprorelin injections.

I had very few side effects from the injections other than a bit of fatigue which dissappears with a decent walk and I have noticed no difference at all since starting the Darolutamide.

My pre treatment psa was 25 and it is now <0.02 so undetectable and I feel pretty healthy so I am very pleased that I was offered the medication.

User

Posted 05 Apr 2026 at 22:55

That's really good. I am so pleased for you. Husband is on Decapeptyl and should be starting Apalutamide fairly soon. He is currently fine and doing well. He walks most days and occasionally has a bit of a sweat which quickly passes. Hopefully things continue well xx

User

Posted 05 Apr 2026 at 23:11

I hope things continue well for your husband too.

It seems that exercise is very important when it comes to combating the fatigue.I have a dog who encourages me to walk in all weathers and when I could otherwise cop out of it!

I do get the occasional hot flush, my wife insists they are not proper ones lol but I find it only affects my head starting with my ears but clears quickly if I chuck the duvet off me for a few minutes.

User

Posted 05 Apr 2026 at 23:31

That's great. He walks a neighbour's Labradoodle 4 days a week and loves it. You're quite right it encourages him out in all weather's. He's due to take Apalutamide but I've looked into it and Darolutamide seems a gentler option. I'm very lucky as I myself had no menopause symptoms so no hot flushes or anything else.

User

Posted 07 Apr 2026 at 08:55

Hi thank you for that. He is still waiting for the appointment. He carries a fair bit of responsibility as our son 45 has a 'serious enduring mental health condition' ie stable , well etc but relies on husband for companionship etc. Also our daughter recently separated and bought her own house. We help with our granddaughters which we both love doing. We occasionally stay the night if she has a work trip. I feel this is a heavy load for him that other men may not have. Also at present he is her only 'man about the house'. We are currently helping do her garden. I'm hands on too and we do everything together. Today we're off for a bit of downtime together after coming back from a family holiday. Wonderful time, but need a rest now too!

User

Posted 07 Apr 2026 at 12:24

I had a bit more time to read a bit of your bio this morning, its awful that they are not asking him how he feels as its the first thing my oncologist does.

As he has not started any ARB drug yet its worth asking why he can't have the Darolutamide. I think they all achieve similar results with similar side effects but you are right in that it may be a bit easier on him.I'm told my BP needs to stay under 140/90.

I'm sorry to hear about your son's problems but that dependence and helping your daughter out will give him a purpose, believe me the fatigue isn't nice but we learn to live with it and still get things done...just a tad slower. I still walk my dog for miles, look after my large rural property and cut wood for 2 stoves.

He will be worrying about his family more than himself,I know I was but it all gets a lot easier once settled into a stable treatment plan.

I'm following a very similar path as I'm currently waiting to see a consultant to talk about 6 sessions of radiotherapy to my prostate now that the HT has settled it down.

User

Posted 07 Apr 2026 at 12:51

Megamilo99

Oh thank you for that. The problems with our son go back 25 years. He broke down at Uni. Classed a gifted pupil I'm afraid he was an awkward one to treat as always had correct answers to everything. We had 12 to 15 years of living hell. We had no holiday for 15 years. He was addicted to cannabis we believe in a effort to self medicate. Finally he was sectioned and finally diagnosed and is finally on a suitable medication. Husband and I are listed as carers but he gets on very well in supported accommodation etc.
But a constant factor. He has a lot of anxiety at times. He goes monthly for a blood test due to medication he's on. I have an extremely low opinion of the psychiatric profession. The only time in my life I've ever come close to slapping anybody in the face, was when a young lady psychiatrist commented. " you know your son quite well"
My husband is very similar to you indeed! We have a woodburner and he loves chopping wood. He has an array of chainsaws etc. We also have an allotment and a reasonable garden in an excellent village with a good community. He loves the outdoors whatever the weather. He is not a worrier. He is very calm and reasonable. The experience with our son has driven us closer indeed.

He is coping extremely well with Decapeptyl. None of this was too big a shock. His father had PC in his 70s and lived to be 93
We are just off to our boat for a night away . You have a lovely day too x

Edited by member 07 Apr 2026 at 13:17 | Reason: Not specified

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