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User
Posted 13 Feb 2026 at 16:16

Hi all

Diag April 24. Gleason 4+3=7. Pirad 5. Had radical prostatectomy robot assisted Aug 24. No radiotherapy. By the time of op my psa was 10 and it had reached seminal vesicles. Usual problems . Leaking and erectile dysfunction.  Was given solifenacin,  this was terrible for me. Vomiting etc. Sildenafil for erectile dysfunction.  Terrible indigestion.  Tried tadafil instead . Didn't work. Now on duloxetine for leakage and back on Sildenafil. Psa was 0.2 again in April 25. Been steady at 0.2 since . Last two weeks had hip and lower back pain. Lost 3.5kg in last week despite increased appetite , eating 3 meals a day instead of usual 1. Drenching night sweats. can't poop very well but not constipated.  Ribbon poop comes out eventually. Blood when wiping. Urine very strong smell. Been to see doctor today. Little interest from him  because last psa in December was 0.2. He advised laxatives.  Impossible to get hold of urology where I live. Anyone have any suggestions other than 2nd opinion as I live in small village where everyone knows everyone and dont want to be labeled a complainer. Doctors already dont like me cos I asked why they didn't diagnosis me with cancer when I complained of weight loss at 48 years old and they never did psa test until my arthritis doctor did one and reported to them it was at 6.2. I then had to ask for one . Felt let down . So doctors not especially helpful. Any advise would be grateful.  Regards woodstock 

Edited by member 13 Feb 2026 at 17:01  | Reason: Not specified

User
Posted 13 Feb 2026 at 20:29
Dear Woodstock,

I am so sorry that you find yourself in this situation. I very much hope that your symptoms turn out to be nothing more than a passing virus or something minor.

It saddens me that someone with your medical history, who is understandably concerned about their health, might be labelled a complainer. Your doctor should listen carefully to you and take your history into proper account. Even with a PSA of 0.2, depending on your surgical margins, histology findings and the results of your pre-operative imaging, you may be a candidate for adjuvant RT/HT.

Difficult though it may be, I hope you are able to trust your instincts and seek out a doctor who will truly listen to you. Even if it means obtaining a second opinion in a larger city and arranging further imaging tests. You are the world’s leading expert on your own body, and it sounds as though this will be important for your peace of mind.

Wishing you all the very best.

User
Posted 14 Feb 2026 at 12:51

Hi yeah urology are watchful waiting as psa is steady at 0.2. Oncologist said they will wait until it gets to 0.6 .. but urology said should only wait until 0.4. Either way I'm assured I'm fine. Doesn't feel like it to me. I'm a mechanic and have had so much time off with pain etc. I reckon we should all advise men to get job/ pay insurance before  your psa test cos the most crippling worry is not getting paid through all this. 

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User
Posted 13 Feb 2026 at 20:29
Dear Woodstock,

I am so sorry that you find yourself in this situation. I very much hope that your symptoms turn out to be nothing more than a passing virus or something minor.

It saddens me that someone with your medical history, who is understandably concerned about their health, might be labelled a complainer. Your doctor should listen carefully to you and take your history into proper account. Even with a PSA of 0.2, depending on your surgical margins, histology findings and the results of your pre-operative imaging, you may be a candidate for adjuvant RT/HT.

Difficult though it may be, I hope you are able to trust your instincts and seek out a doctor who will truly listen to you. Even if it means obtaining a second opinion in a larger city and arranging further imaging tests. You are the world’s leading expert on your own body, and it sounds as though this will be important for your peace of mind.

Wishing you all the very best.

User
Posted 14 Feb 2026 at 01:30

Woodstock, are you back under urology care, in my day 0.1 brought you back under urology, 0.2 was a trigger for educated guess salvage RT. Those figures have shifted but you should be of interest to urology.. 

I have had several recurrences and spread and never had the symptoms you describe. I have had plenty of water infections. The first infection prompted investigation and lead to the discovery of a surgical clip in the bladder. I have not seen it mentioned for a while so perhaps they have improved techniques.

A pharmacist can prescribe antibiotics for a water infection, that may be somewhere to start.

Added just clarify the PSA was and is 0.2 and not 0.02.

Thanks Chris 

Edited by member 14 Feb 2026 at 01:33  | Reason: Not specified

User
Posted 14 Feb 2026 at 12:51

Hi yeah urology are watchful waiting as psa is steady at 0.2. Oncologist said they will wait until it gets to 0.6 .. but urology said should only wait until 0.4. Either way I'm assured I'm fine. Doesn't feel like it to me. I'm a mechanic and have had so much time off with pain etc. I reckon we should all advise men to get job/ pay insurance before  your psa test cos the most crippling worry is not getting paid through all this. 

User
Posted 26 Feb 2026 at 08:45

Hi, well psa up to 0.3 now. Oh also had a fit test come back at 155. Guess it's gonna get busy soon. 

 
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