I could be in trouble

User

Posted 19 Mar 2026 at 14:25

I have been off hormone therapy for a year now.
My last PSA reading six months ago was 0.5, this week it’s gone to 2
I understand that anything above 2 means the cancer is still there, the nurse said she would discuss my case with the oncologist and get back to me. She thinks that they will retest me in three months and take it from there.
Any thoughts?

User

Posted 19 Mar 2026 at 19:57

A three month wait for a test is not good enough. Time to apply some pressure for action now.

Jules

User

Posted 19 Mar 2026 at 19:59

Thanks for your advice. Hopefully, I will hear from them soon.

User

Posted 19 Mar 2026 at 23:49

Rodger I would be looking for the next test in four weeks.My PSA sometimes shot up after treatment.

Thanks Chris.

User

Posted 20 Mar 2026 at 08:55

I will let you know what they come up with. Although, to say that my oncologist isn’t very user friendly is a massive understatement.

User

Posted 27 Mar 2026 at 10:12

I’ve got a face to face appointment with the oncologist on 19th May.

I thought it would have been sooner and I haven’t been sent a blood test form either.

User

Posted 27 Mar 2026 at 11:17

Your PSA is doing one of two things. As you still have a prostate it could be rising to whatever level is appropriate for your prostate, post ADT, that figure could be 2. Or it could be your PSA is doubling every three months, going from 0.5 to 2.0 over a six month period. A PSA test now would probably come back about 2.1 which would prove nothing. A PSA test is three months time will either come back about 2 or about 4, that would clearly establish whether your PSA has leveled out or is continuing to double. So I can see why they want to wait until May. I would have thought you will have a PSA test prior to that meeting.

Dave

User

Posted 27 Mar 2026 at 13:15

Thanks for that Dave, I really appreciate your input.

I will post any updates.

User

Posted 27 Mar 2026 at 13:19

Good luck Roger. You are a little ahead of me, as I have just stopped HT after three years. I shall also be watching (and worrying a little) about my PSA as it bounces. Hope yours turns out to be nothing more than that. Cheers, David

User

Posted 27 Mar 2026 at 14:56

Thanks David, the best of luck to you too.

User

Posted 27 Mar 2026 at 20:38

Hi Roger, will be following your progress so keep us informed. I was also T3BN1M0 Gleeson 8 although my psa was around 119 when dignosed, also high risk for micro mets. But no point in dwelling on that, ADT has kept me undetectable for 3 years so it had some benefit. Now we just have to keep positive and take one test at a time! We got this, David

User

Posted 28 Mar 2026 at 11:03

I will keep you updated, my PSA was also undetectable on ADT.

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