I could be in trouble

User

Posted 19 Mar 2026 at 14:25

I have been off hormone therapy for a year now.
My last PSA reading six months ago was 0.5, this week it’s gone to 2
I understand that anything above 2 means the cancer is still there, the nurse said she would discuss my case with the oncologist and get back to me. She thinks that they will retest me in three months and take it from there.
Any thoughts?

User

Posted 19 Mar 2026 at 19:57

A three month wait for a test is not good enough. Time to apply some pressure for action now.

Jules

User

Posted 19 Mar 2026 at 19:59

Thanks for your advice. Hopefully, I will hear from them soon.

User

Posted 19 Mar 2026 at 23:49

Rodger I would be looking for the next test in four weeks.My PSA sometimes shot up after treatment.

Thanks Chris.

User

Posted 20 Mar 2026 at 08:55

I will let you know what they come up with. Although, to say that my oncologist isn’t very user friendly is a massive understatement.

User

Posted 27 Mar 2026 at 10:12

I’ve got a face to face appointment with the oncologist on 19th May.

I thought it would have been sooner and I haven’t been sent a blood test form either.

User

Posted 27 Mar 2026 at 11:17

Your PSA is doing one of two things. As you still have a prostate it could be rising to whatever level is appropriate for your prostate, post ADT, that figure could be 2. Or it could be your PSA is doubling every three months, going from 0.5 to 2.0 over a six month period. A PSA test now would probably come back about 2.1 which would prove nothing. A PSA test is three months time will either come back about 2 or about 4, that would clearly establish whether your PSA has leveled out or is continuing to double. So I can see why they want to wait until May. I would have thought you will have a PSA test prior to that meeting.

Dave

User

Posted 27 Mar 2026 at 13:15

Thanks for that Dave, I really appreciate your input.

I will post any updates.

User

Posted 27 Mar 2026 at 13:19

Good luck Roger. You are a little ahead of me, as I have just stopped HT after three years. I shall also be watching (and worrying a little) about my PSA as it bounces. Hope yours turns out to be nothing more than that. Cheers, David

User

Posted 27 Mar 2026 at 14:56

Thanks David, the best of luck to you too.

User

Posted 27 Mar 2026 at 20:38

Hi Roger, will be following your progress so keep us informed. I was also T3BN1M0 Gleeson 8 although my psa was around 119 when dignosed, also high risk for micro mets. But no point in dwelling on that, ADT has kept me undetectable for 3 years so it had some benefit. Now we just have to keep positive and take one test at a time! We got this, David

User

Posted 28 Mar 2026 at 11:03

I will keep you updated, my PSA was also undetectable on ADT.

User

Posted 28 Mar 2026 at 22:25

Hi Roger that...I see from your bio you lost weight on 4/3 diet...I like to know what that is as i have found it difficult loosing weight while on HT...hope you're next results are favourable...rgds David...

User

Posted 29 Mar 2026 at 13:20

Hi David,

My version of the 4/3 diet was to eat 600 calories a day for three consecutive days and then eat normally. I tried the 5/2 diet first on non consecutive days but it didn’t work for me.

The advantage of intermittent fasting, is that your metabolism doesn’t slow down to compensate and your weekends aren’t ruined.

User

Posted 29 Mar 2026 at 14:43

I'll give that a go as i have 2 rest days without exercise so that would be time to try it out...HT has really made it difficult...thanks for the feedback...regards David...

User

Posted 29 Mar 2026 at 14:45

When I first started it, nothing happened for two weeks and then the weight started to fall off.

User

Posted 14 Apr 2026 at 12:48

I’m booked in for a NM Ga68 PSMA PET CT whole body scan on Friday, but I’m unlikely to know the outcome until my oncology appointment on May 19th.

User

Posted 15 Apr 2026 at 09:17

Well that is a positive move and should conclusively show if you have recurrent cancer cells active anywhere in your body. Shame the scan operators are not allowed to tell you anything, as they know on the day of anything is showing up. My best advice would be to enjoy every day between now and the appointment with the Oncologist, instead of mentally fast forwarding to that day. Best of luck, David

User

Posted 15 Apr 2026 at 10:05

Thanks David, I will keep you posted.

By all means PM me, if you have any questions.

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