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Hello from a difficult patient

User
Posted 11 Apr 2026 at 14:34

Hi all,

Been lurking for a while, thought it was time to introduce myself.

Diagnosed in 2022 with Gleason 3+4. I was told surgery was required - within 6 weeks. Radical prostatectomey recommended. Something didn't sit right. I asked questions — a lot of questions — and the more I dug into the research, the less convinced I became that rushing to treatment was the right call for me.

I chose active surveillance against all the medical advice. Changed my diet significantly, started a structured exercise regime, and spent hundreds of hours reading the published evidence on what actually moves the needle for men in my position.

Three years on, no cancer progression on the last biopsy. Still on Active Surveillance. Still asking questions.

Along the way I got so frustrated by the gap between what the research shows and what men are actually told at diagnosis that I wrote a book about it. It's not a medical textbook. It's the story of what happened to me and why I think the system processes men rather than informing them.

I also built a free website that tries to organise the research on supplements, exercise and lifestyle interventions by evidence quality — because I got tired of trying to separate forum anecdote from published data.

Not here to tell anyone what to do. Every man's situation is different. But happy to share what I've learned and hear from others on the same path.

Paul S

Edited by moderator 15 Apr 2026 at 09:12  | Reason: Removal of product and service mentions.

 
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