Hi
I am looking for some support or advice really, I apologise for the long winded background but I think I just need to get it out.
My Dad was 1st diagnosed with prostate cancer in 2020, He was treated with with radiation therapy and a course of HT. He finished his HT and then continued to have regular bloods. He thought had he had been cleared.
In Dec 2025 he finally went to his GP as he had a cough that had been ongoing since Oct. The GP was referred him for an xray re the chest, noticed his heart rate may have been irregular so sent him for an ECG and also reviewed all his previous prostate notes and saw that Dad missed a letter in 2024 telling him that his PSA had gone over 2 and he needed bloods doing, he had not been signed off from urology. the GP send him for bloods.
Turns out that dad has irregular heart rate, and he is on beta blockers and blood thinners. The xray showed mass so he had a CT scan. This showed cancer in the lungs, abdomen, lower back bones, prostate and lymph nodes. His PSA level was 21. This was all at the end of Jan 26. The prostate team immediately put him on HT and explained that as they didn't know if the lung cancer was prostate or new primary the Lung team would look after him and refer for a biopsy. He had to wait 5 weeks for the biopsy, which ultimately has shown that it is prostate cancer. The urology team are now waiting until the end of April to do CT and bloods again as will have been 12 weeks of HT.
The most distressing thing for him is that the cough gets worse by the day. He brings up fluid every time he coughs, and he is very breathless after a coughing fit or if he walks. He sits upright in a chair, and his feet and lower legs are very swollen, he wont raise them as he is convinced that makes the coughing worse. He can't get up and make himself a drink as he is too breathless, he doesn't leave the house. He has gone from being my mums carer and very active for a 78 year old in Dec 25, to now not being able to do anything.
We have asked the clinical team for a drain, but they said there's no point as the fluid will be back within 24 hours. I find visiting him really upsetting and I am so frustrated as he seems to be getting progressively worse. The wait is agonising. Is there any advice any one can offer?