Hi All - Just an update on my stage 4 incurable/treatable situation. Was diagnosed with PSA of 312 four months ago. Have had four weeks of hormone tablets and, so far, three injections of decapeptyl (ADT). Have declined chemo for now as value qol over length of life.
Cut to the chase: Had another PSA test this week and am now down to 0 3. And that's without the addition of darolutimide tablets which I started two days ago.
As anything 0.2 or below is classed as 'undetectable' I'm hoping now that the continuing injections and darolutumide will get me to that status. Obviously, if and when this combination ceases to control the spread,bitlk be time to consider chemo again.
For now though, I remain symptomless, as I have from day1, and very grateful for modern medicine.
Just wanted to share my current experience to bring a bit of sunshine to the subject for a change.