It's all happening now ..... or is it!

I can't remember when I last posted on here other than when responding to another chaps post and thought it was about time I gave you a brief update on what's been going on lately.

I'll take it for granted that most of you have never read anything I've posted in the past, particularly as most were in the GOOD old days of the previous forum.

Just for the record a brief summary of how it all started and progressed for me:

2006 PSA on the move, two biopsies but nothing found but PSA Free and Total said otherwise but changes to lifestyle and diet appeared to keep things under control until

2015 HoLEP  carried out and low grade Gleason 6 found and carried on life as I had for the previous 9 years.

2022 to 2025. Under the care of a Uro who just kept an eye on things and dealt with my kidney issues as and when required.  All this suited me fine until he told me he wanted to biopsy me as it was almost 20 years since my last one.  I asked why as everything was ticking over nicely i.e. PSA still hovering around 2.6 with the occasional bounce up to 3 and then back again.  Slight increase in size of tumour he says "what, all of 2mm in ten years" I say, so you can stick your biopsy plans for the time being.  A bit of a falling out ensued and now with another Uro who actually listens and respects my views on my prostate health and where I expect it to go in the next few years.

However, she would still like me to be biopsied and seeing as I liked her brand of approach to my prostate health I agreed and in the meantime she referred me for a PET scan, whole body bone scan, up to date PSA test and MRI prostate. a week after these scans and test she rings me and cancels the biopsy, whoopee I think to myself, a reprieve from that 8 inch long needle.

She and the MDT are confused as my scans are contradicting each other, so a different approach was made to determine what is going on as my bone scans found "highlights" on my spine at L5 (all historic), a couple on my ribs (again all historic) and some "highlights" on my skull vault (again historic). The PET scan highlighted an area on my pelvis (guess what, yes, historic) but nothing else.

So for good measure I've been referred to another consultant who specialises in finding primary cancers that are causing they secondaries in my bones, who scheduled a full bloods workout of 28 individual tests, along with a colonoscopy, gastroscopy, CT Colonoscopy, CT from neck to groin, MRI skull and another MRI prostate. All this and I'm asymptomatic and have been for decades.

I'm certainly getting a through going over and believe it or not I'm enjoying the journey and to cap it all I received a letter from my lady Uro last week informing me that my latest MRI prostate is "clinically insignificant" which means they are deffo not looking for a secondary emanating from it.  Looks like the biopsy road has been closed for the time being.

So, for the foreseeable future I'll continue to sit back and enjoy the ride and work on the principle that I'm not going to die from PCa rather than from it, assuming that is the suspected secondaries turn out to be from a primary yet to be found which may eventually lead to my being shuffled off this mortal coil in the next few years but that's another story.

Keep well guys and stay positive.

Edited by member 07 May 2026 at 11:23  | Reason: typo