Husband is booked for pre scan on June 1st. Problem is due to NHS confusion, red tape etc still needing Apalutamide education appointment, he has still not had a prescription for that drug. There is still a 2 week wait. He has been on Decapeptyl for 5 months now.
One of the issues is the poor communication by the hospital
He had an appointment for February when he expected to be prescribed Apalutamide but it turns out the consultant we saw deals with radiotherapy not the medication. Anything he discussed re medication was not shared or passed on.
3 phonecalls to numbers given by CSN to sort this out himself led to zero.
He has now written a letter to PALS and included a timeline of events.
This is an added stress we really dont need and i think totally unnecessary.
Will he need to delay the Radiotherapy? With luck he'll have been on Apalutamide for about 6 to 4 weeks
If current red tape is anything to go by he'll be collecting it from the pharmacy in his Radiotherapy gown!
Edited by member 13 May 2026 at 09:59
| Reason: Added information