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ATOMS - incontinence

User
Posted 13 May 2026 at 15:14

Hi everyone


Thought I’d keep you updated on this as I know there’s not many on here who have had this procedure done and it may help others in the same situation.


Steve has been incontinent since his RARP in January 2024…you have to wait over 12 months for further investigations before any further action is recommended.


he had further NHS investigations in December 25 (euro dynamics and cystoscopy) and the surgeon explained that his remaining sphincter was not damaged but the gap between bladder and pelvic floor muscles was too big so the muscles were not able to exert the pressure needed to perform with the sphincter to stop the stress incontinence.


The surgeon confirmed the incontinence would never improve without intervention and he recommended surgery to fit an AUS.  This is still the gold standard in the UK for NHS treatment, however we have done quite a bit of research over the last 18 months and there is a relatively newer procedure (since 2014) it’s not widely used in NHS yet, partly because not many surgeons do it at the moment.  The main place is in Berkshire (NHS and private). I found out yesterday that they will be offering it in Scotland and Newcastle but likely private practices.


So we feel this is a better procedure for Steve because it’s classed as less risk and requires no manual user interface.  We visited the surgeon in Berkshire yesterday for a consultation and he told us that Steve’s situation was exactly the type that the ATOMS was meant to help (it bridges the gap to exert pressure on the pelvic muscles to keep the sphincter closed during stress/pressure)


Statistically, he said 75% of his patients are totally dry afterwards the other 25% with varying degrees of improvement.


Steve is booked in for surgery in July. Will keep updating.

User
Posted 13 May 2026 at 15:14

Hi everyone


Thought I’d keep you updated on this as I know there’s not many on here who have had this procedure done and it may help others in the same situation.


Steve has been incontinent since his RARP in January 2024…you have to wait over 12 months for further investigations before any further action is recommended.


he had further NHS investigations in December 25 (euro dynamics and cystoscopy) and the surgeon explained that his remaining sphincter was not damaged but the gap between bladder and pelvic floor muscles was too big so the muscles were not able to exert the pressure needed to perform with the sphincter to stop the stress incontinence.


The surgeon confirmed the incontinence would never improve without intervention and he recommended surgery to fit an AUS.  This is still the gold standard in the UK for NHS treatment, however we have done quite a bit of research over the last 18 months and there is a relatively newer procedure (since 2014) it’s not widely used in NHS yet, partly because not many surgeons do it at the moment.  The main place is in Berkshire (NHS and private). I found out yesterday that they will be offering it in Scotland and Newcastle but likely private practices.


So we feel this is a better procedure for Steve because it’s classed as less risk and requires no manual user interface.  We visited the surgeon in Berkshire yesterday for a consultation and he told us that Steve’s situation was exactly the type that the ATOMS was meant to help (it bridges the gap to exert pressure on the pelvic muscles to keep the sphincter closed during stress/pressure)


Statistically, he said 75% of his patients are totally dry afterwards the other 25% with varying degrees of improvement.


Steve is booked in for surgery in July. Will keep updating.

User
Posted 14 May 2026 at 16:28

Thanks Adrian


he has coped really well but I think he sort of had to put himself on the back burner (given that his incontinence wasn’t a life threatening situation) while we cared for his Mum the last 12 months; now she has passed away sadly, but it’s time for us to move forward with trying to solve his post surgery side effects!  Not that the incontinence and the ED directly affect each other…but it does get messy!!  I remember you mentioning plastic sheets before!


we await another clinic appointment in a few weeks to get the viridal duo 20mg dose increased as we built up to that dose and as the saying goes ‘not a sausage’

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User
Posted 14 May 2026 at 07:15
Sounds promising, will he still be able to have the AUS if he is one of the unlucky 25%?
User
Posted 14 May 2026 at 08:14

Hi, Debbie.


It's great to hear from you again and thanks for the update. I hope the surgery is a complete success.


Steve's RARP and recovery has been problematic. I admire how well you have coped with the difficulties. 


Best of luck. 👍

User
Posted 14 May 2026 at 16:22

Hi, yes he can have the ATOMS removed and at the same time the AUS put in.  To be honest if Steve gets 50% better than he is now, he will probably live with that, he’s really not keen on the AUS but who knows, that’s how he feels at this moment in time!

User
Posted 14 May 2026 at 16:28

Thanks Adrian


he has coped really well but I think he sort of had to put himself on the back burner (given that his incontinence wasn’t a life threatening situation) while we cared for his Mum the last 12 months; now she has passed away sadly, but it’s time for us to move forward with trying to solve his post surgery side effects!  Not that the incontinence and the ED directly affect each other…but it does get messy!!  I remember you mentioning plastic sheets before!


we await another clinic appointment in a few weeks to get the viridal duo 20mg dose increased as we built up to that dose and as the saying goes ‘not a sausage’

 
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