Just diagnosed aching in legs straight away !!

Ok thx, I also think,  why would they start aching days after , that’s why I’ve asked the question to see like you if anyone had any aches or pains early on ? 

Thx for your reply. 

Hi just an update, had the bone scan and told by the nurse today it’s clear . Which is brilliant and rules out any worry over pains in my legs. 
she has said that on my mri it’s been classed as t3a which is bordering on the edge. Got a ct scan Sunday then a consultant on 1/6. 
just hoping now it’s still contained. 
like every one the waiting is horrible. 
thx Neil 

Sorry you’re going through this. Try not to jump to conclusions yet — aching thighs can happen for many reasons, including stress and physical work. It’s good that your scans are already booked, as they’ll give a much clearer picture. If the pain becomes severe, you get weakness/numbness, or you feel very unwell, contact urgent care or NHS 111. Wishing you strength while you wait for answers.

Edited by moderator 25 May 2026 at 08:08  | Reason: gaming link

Just an update.

I went to see the consultant on Monday 1st June and was feeling very anxious because I was waiting for the CT scan results to find out whether the cancer was still contained.

I honestly couldn't believe it when he told me the results weren't back yet.

However, he said we would carry on with the planning as if it was contained because we need to get things moving, obviously subject to the CT scan confirming that it hasn't spread.

I didn't think prostate removal would be an option for me because I had part of my bowel removed a few years ago, but he said he is prepared to carry out the surgery if the CT scan is favourable.

So now I'm still waiting and checking every day to see if the results are back and whether it is contained.

One thing I forgot to ask was about radiotherapy. If I have the prostate removed, is radiotherapy something that is routinely given afterwards, or is that decision only made once they've removed the prostate and looked at the pathology results?

thanks again for everyone’s support, this really helps. 

Hi, they usually refer each  case to a multi-disciplinary team, MDT who decide what options to offer.  Although it's 10yrs since my op.  I was 4+3 and told it was on the edge might be T3a.   I was offered surgery or radiotherapy with hormones, and if I agreed to a full 24pin biopsy they'd consider active surveillance.   I opted for surgery and went to see the surgeon without speaking to an oncologist about radiotherapy.  The close to the edge bit pushed me to make a fast decision and Christmas was only a few weeks away so they'd be on holiday.

It seems you haven't considered seeing an oncologist and you're speaking to a surgeon.  Some people are willing to take longer to make a decision.  Being before Christmas any delay could add a month on so it was a miracle when the surgeon said he'd book a theatre and do it a week later when his secretary said he'd more or less finished for Christmas. 

Mine was a 4+4 after the op when they took a look at my whole prostate. The other good thing about an op is you know if it worked within a couple of months. Although as a window cleaner you might be out of action until it's healed unless you work mainly from the ground.  My window cleaner hasn't got a ladder.

They say there isn't much difference in outcome between surgery and radiotherapy although some say surgery is an old fashioned method and radiotherapy is improving.  You can have radiotherapy if your op result isn't clear but if you go for radiotherapy first it's very rare they'll do an op.

So good luck with your choices.  Keep us in touch.

Regards Peter 

Neil ,sods law you only miss important calls. I have been dealing with my father in law's current issues and they gave the option of leaving answer phone messages or sending texts if there was no reply. That option may vary in different areas.

I went straight for the surgery option although I did have salvage RT 3 years later. My op was 12 years ago and imagining has come on a long way since then.

Thanks Chris 

All I can say is a huge thank you to everyone who has replied.

I’m sure I’m like many others who have just been diagnosed — you haven’t got a clue what’s going on, what’s going to happen next, or what questions you should even be asking. This forum has been an absolute godsend and a great source of support and information.

Thank you all for taking the time to share your experiences and advice. I wish everyone here the very best as they navigate their own journey.

One question though: I was given a phone number for the key workers (nurse specialists). We’ve called three times and left messages with a few questions we wanted answered, but so far we haven’t had a single call back.

Is this standard, or have others had a similar experience?

some good news this morning , I had a call from the consultants secretary to say he wanted a face to face next week. I asked about the ct scan result but she says I can’t give it to you. 
obviously concerned and again awaiting game. 
then 10 minutes later I did get a call from  a neurology nurse. 
she said the ct scan was with her and she confirmed the cancer was Contained. 
Big relief as I’m sure everyone goes through the turmoil and the waiting is agonising. 
just waiting on a date now for the surgery. 

Edited by member 04 Jun 2026 at 17:57  | Reason: Not specified