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ED clinic wait times

User
Posted 22 May 2026 at 06:58

Hi

Just wondering what I could do to speed up my appointment at the ED clinic.I had 15% nerve sparing RARP in Jan 2025.Have been on Sildanifil ,vacuum pump but dead as a Dodo downstairs.Think invicorp is my best hope .I was referred 6 months ago.Any Ideas 🤔

User
Posted 22 May 2026 at 13:47

Hello, mate.

I had non nerve sparing RARP. I was automatically booked an ED appointment six months after surgery, and started Invicorp shortly afterwards.

I'd chase your ED appointment up with your consultant or your CNS. 

It's disgraceful that youve had to endure such a delay.

Good luck. 👍

User
Posted 03 Aug 2026 at 21:25

Hi

Just a quick update ,I finally had my ED appointment today,with a lovely nurse Jackie at my local Hospital.We discussed my current situation,no response to Viagra at all ,quite literally as Dead as a Dodo despite still having sexual desires and not finding the vacuum pump suitable to achieve sufficient stiffness for Sex.

We agreed that injections were probably the best option, Jackie then went to the fridge and returned with the kit ,sterile swab,2 lengths of needle and a bottle of alprostadil.She then took me through the process of sterilisation,attaching the long needle ,insertion into the bottle ,filling the syringe ,exchanging the needle to the shorter one (hope I never miss this step 🙏)The next bit was over to me ,sterilise the area,avoid any veins and go for it ,don't mess about just go for it .

She seemed pleased with my technique,no blood when I removed the needle ,shorts up and off to the waiting room for 15 mins(glad no one  else was there)I could sense something stirring down below.Jackie collected me and we went to evaluate the results .We both concluded that although I had an erection it was still a bit flaccid .No worries she said ,it is a bit trial and error ,I will increase the dose on the prescription and see how it goes.

Onwards and Upwards (I hope 🙏)

User
Posted 04 Aug 2026 at 14:12

Hi Adrian

Thank you for your response and information,you are right about the need for a "real video",it's a tough job but someone has to do it ,probably someone who is ex military 🤔

Regards

Swannie

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User
Posted 22 May 2026 at 13:47

Hello, mate.

I had non nerve sparing RARP. I was automatically booked an ED appointment six months after surgery, and started Invicorp shortly afterwards.

I'd chase your ED appointment up with your consultant or your CNS. 

It's disgraceful that youve had to endure such a delay.

Good luck. 👍

User
Posted 22 May 2026 at 19:11

I think it all depends on your Trust. For me three years of HT finished January 2023. I haven't had an erection since I started in January 2020. All I've been offered is Sildenafil and Tadalafil. Neither worked. Never been offered ED clinic, never been offered Invicorp. I think they think because I'm 70 it doesn't matter despite me telling them it really does. I think you really have to push. Personally I've given up trying though I have my four monthly oncology review tomorrow and will raise it yet again for the umpteenth time.

User
Posted 03 Aug 2026 at 21:25

Hi

Just a quick update ,I finally had my ED appointment today,with a lovely nurse Jackie at my local Hospital.We discussed my current situation,no response to Viagra at all ,quite literally as Dead as a Dodo despite still having sexual desires and not finding the vacuum pump suitable to achieve sufficient stiffness for Sex.

We agreed that injections were probably the best option, Jackie then went to the fridge and returned with the kit ,sterile swab,2 lengths of needle and a bottle of alprostadil.She then took me through the process of sterilisation,attaching the long needle ,insertion into the bottle ,filling the syringe ,exchanging the needle to the shorter one (hope I never miss this step 🙏)The next bit was over to me ,sterilise the area,avoid any veins and go for it ,don't mess about just go for it .

She seemed pleased with my technique,no blood when I removed the needle ,shorts up and off to the waiting room for 15 mins(glad no one  else was there)I could sense something stirring down below.Jackie collected me and we went to evaluate the results .We both concluded that although I had an erection it was still a bit flaccid .No worries she said ,it is a bit trial and error ,I will increase the dose on the prescription and see how it goes.

Onwards and Upwards (I hope 🙏)

User
Posted 03 Aug 2026 at 23:09

 

Hi Swannie.

Thanks for the update and well done, mate. 

There is an erection scale, formally known as the Erection Hardness Score (EHS). It is a simple four-point medical tool used to rate erection firmness. It ranges from grade 0 (no enlargement) to grade 4 (fully rigid).

Understanding the EHS Grades:

Grade 0: The penis does not enlarge.

Grade 1: The penis enlarges, but it is not hard.

Grade 2: The penis is hard, but not hard enough for penetration.

Grade 3: The penis is hard enough for penetration, but not completely rigid.

Grade 4: The penis is completely hard and fully rigid.

Even with Invicorp, I'd said mine are Grade 3. Not as hard as they were pre-surgery but good enough for penetrative sex.

Keep practising, pal. 👍

It is crucial to inject correctly. In my opinion a quick supervised injection at an ED clinic is not enough. You are invariably embarrassed and forget all you're told.

To improve my technique I've viewed numerous internet videos of people demonstrating how to inject. However, they always use a plastic  penis. I'm sure viewing  a video of a man injecting his penis would be much more helpful. The same applies to using VED pumps.

There is a 'real' demonstration of a man, who'd had PCa and RARP, using a VED on the 'A touchy subject' site. I did find a video of a man demonstrating an ED injection in his penis, but it was on a sort of porn site! 

I can't believe that in these liberated days, when ten of thousands of men are struggling with ED issues, that it is nigh on impossible  to view how to use injections and pump on a REAL penis.

I contacted PCUK today asking whether I could post links to the two 'real demonstrations' that I've found, and if not would the consider making their own. As yet I've had no reply.

And before anyone asks,  I haven't volunteered to do the demonstration. 😳

Edited by member 03 Aug 2026 at 23:46  | Reason: Typo

User
Posted 04 Aug 2026 at 14:12

Hi Adrian

Thank you for your response and information,you are right about the need for a "real video",it's a tough job but someone has to do it ,probably someone who is ex military 🤔

Regards

Swannie

 
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