Hi there. This might be a bit late for you John, but it might also help someone who finds it.
I first visited my GP in December, had PSA, (4.5: just over normal for age 63), MRI and biopsy, and was diagnosed by the end of February with T2N0 (stage 2). ADT and radiotherapy was far more appealling to me than prostatectomy. I started on Bicalutamide and didn't notice a thing. They prepare the pituitary gland for the shock of the enforced testosterone embargo. Bicalutamide lasted four weeks, with the ADT injection in the third week.
Its now the end of June, radio hasn't started yet, but I know my PSA level is now below 1. So that's all good stuff.
I have not had the side effects I was worried about. I thought I would turn into Ada Shufflebotham (the Les Dawson character in my profile pic).
The only side effect I do have is fatigue, and while this might not be medically accurate, it certainly feels like cumulative fatigue. The first few weeks after the ADT injection, there was nothing to report at all. The fatigue began about a month after and it got more and more noticeable for a couple of months. The difference from day to day was imperceptible but I got to a stage where I'd think "I could have done this a couple of weeks back".
It now seems to have levelled out, and I have grown used to it. It is definitely in the way, but I am still working (desk job) pretty much full time, but taking proper rests (instead of "breaks") and doing flexible hours. I'm working from home most days because some days I just can't contemplate driving. As for home life I am definitely doing less. I will do a stint of gardening or something for maybe 45 - 60 minutes and that's me done for the day. I have a sleep in the afternoon or evening. I'm conscious that the radiotherapy has a delayed onset side effect of fatigue and I am expecting to be out of commission for a couple of weeks.
Is it worth it? Absolutely! I consider myself very lucky to have been diagnosed with this instead of cancer somewhere like my bowel, lungs, brain or pancreas. Sure, I'm going to die in any case but probably not of this. This side effect is the price I am more than happy to pay, and its less than I thought I would have to pay, for an extension to my life which, when I was a much younger man, would not have been worth contemplating.
Also, I have started wearing outrageous Hawaiian shirts, because they put a smile on the faces of family and strangers alike. We have to be positive about this. Not a forced smile but a deep seated appreciation for what those thousands and thousands of scientists and clinicians and engineers have achieved, which is the power to extend our lives. It is bloody amazing.