6 years later

User

Posted 31 May 2026 at 11:30

After 6 years of being on apalutamide and prosap and doing ok my psa has started to rise after a psma scan in 2023 it had gone to my spine. 3 years of being ok o went for a ct scan and 13mm 14mm and 16mm nodes in my lung also I have 2 hernias and diverticulitis a d some nodes on my kidney,I had no idea ,still feeling fine but very worried

Pungle

Edited by member 01 Jun 2026 at 13:26 | Reason: Not specified

User

Posted 01 Jun 2026 at 15:27

Hi Pungle, sorry to hear things are not going as good as we would hope, after lots of treatments, I have been on the decapeptyl and apalutamide, for a year, so far so good. Are there any plans for focal treatment to the spine. Best wishes for the future.

Thanks Chris

User

Posted 01 Jun 2026 at 16:55

Hi Chris,thanks for reply,I am on prostap and apalutamide now but psa has started to rise,just had the nurse tell me I am having a psma pet scan as soon as they can get me in.ihad a ct scan and a nuclear scan in the last month they are just now giving me the psma to see in more detail I think.probably chemo next because the nodes in my lung.

Nice to hear you are doing ok good luck

User

Posted 02 Jun 2026 at 11:26

The PSMA PET scan will show up which bits of cancer are not being suppressed by the hormone therapy. It sounds like you might have several more spots than you knew about before, and if those are active, they will most likely look to chemo to try and reset the cancer back to being hormone sensitive (controlled by the hormone therapy). Wishing you the best and keeping fingers crossed.

User

Posted 02 Jun 2026 at 14:19

Thanks Andy,

Just arrived back from hospital and the only new nodes that were found were on the lung but psma may find more as you say.could be a while before I get a scan and the wait for chemo so try and put it out of mind a bit

Pungle

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