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Stage 4 cancer with multiple sclerosis

User
Posted 01 Jun 2026 at 15:29

Afternoon all,

 

I have had MS for over 20 years and doing reasonably well so the stage 4 "on average you have 3 to 5 years to live" prostate cancer conversation was a blow.

Is anyone else out there with the same combination? The neurologist and hospital pharmacist want to stop treatment (second round of Mavenclad) as they are concerned that lowering my lymphocytes any further (I think) invites secondary cancer.

The oncologist was content with the apulatimide / mavenclad combo with respect to cancer and I suspect feels I won't be around long enough to worry about secondary cancers.

So if anyone out there is living this life it would be great to get there lived experience.

User
Posted 02 Jun 2026 at 04:38

nothing

 

Edited by member 09 Jul 2026 at 01:45  | Reason: Not specified

User
Posted 17 Jun 2026 at 16:32

I have persuaded the neurologist, oncologist and hospital pharmacist to meet with me in a few days time. I think the way forward is either Vumerity or no treatment at all.

Thank you for your thoughts

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User
Posted 02 Jun 2026 at 04:38

nothing

 

Edited by member 09 Jul 2026 at 01:45  | Reason: Not specified

User
Posted 17 Jun 2026 at 16:32

I have persuaded the neurologist, oncologist and hospital pharmacist to meet with me in a few days time. I think the way forward is either Vumerity or no treatment at all.

Thank you for your thoughts

 
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