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Why Do DR not get it?

User
Posted 09 Jun 2026 at 07:25

Just had my annual PSA test following multiple tests since RP 2022. All were undetectable but since my last test in October my PSA test has risen to 0.09. The DR has put no action required. Well yes I understand that, I have been on this treadmill to know that this is not necessarily a return of cancer. But surely you would think they would request another test in 3 months to check if this was a blip or if something is going on. Fortunately my consultant wrote on my last letter that if there was any change he was to be contacted. I am now left with having to plead my case with my GP.

User
Posted 09 Jun 2026 at 09:35

Hi, Jim.

We're on a similar timescale and treatment path. I had RARP about six months after you. Fortunately, my last PSA test, like all those before was undetectable. However, I know that I'm still at risk of BCR.

Although the slight rise may not be linked to BCR, it does warrant further investigation. I think sometimes GPs knowledge of prostate cancer and the care and management of it is very limited. I'm pretty sure I know much more about the disease than most of mine.

I've also found that often there's a lack of communication between hospital consultants and GPs. 

If I were in your position, I'd be be contacting your surgery and asking them to inform your consultant of the rise or telephoning the consultant's secretary and telling them yourself.

I may have been lucky, but my consultants secretary has been fantastic. Whenever I've had any concerns she's promptly passed the details to him and quickly informed me of his response.

Best of luck, mate.👍

User
Posted 09 Jun 2026 at 11:55
Be very careful with GP PSA results post treatment, you may find it has not even been looked at by a human at all. My first 0.1 was at the GPs and they said it was normal because it was less than 4!!

Since then I have been monitored quarterly by the hospital oncologist, suggest you request the same.

User
Posted 09 Jun 2026 at 14:44

I had similar experience and when I questioned it I was told that the normal/no action required comments were added at the lab where, of course, my history was not known. I am certain that whoever reviewed the result at my GP surgery either failed to review my history or was unaware of the importance of small increases in readings that fell within recommended normal levels. 

User
Posted 11 Jun 2026 at 09:25
Been playing PSA ping pong for 11 years now, whatever else you decide DO NOT let it spoil your holiday, nothing will happen for at least 3 months so it really is not worth worrying about.
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User
Posted 09 Jun 2026 at 09:35

Hi, Jim.

We're on a similar timescale and treatment path. I had RARP about six months after you. Fortunately, my last PSA test, like all those before was undetectable. However, I know that I'm still at risk of BCR.

Although the slight rise may not be linked to BCR, it does warrant further investigation. I think sometimes GPs knowledge of prostate cancer and the care and management of it is very limited. I'm pretty sure I know much more about the disease than most of mine.

I've also found that often there's a lack of communication between hospital consultants and GPs. 

If I were in your position, I'd be be contacting your surgery and asking them to inform your consultant of the rise or telephoning the consultant's secretary and telling them yourself.

I may have been lucky, but my consultants secretary has been fantastic. Whenever I've had any concerns she's promptly passed the details to him and quickly informed me of his response.

Best of luck, mate.👍

User
Posted 09 Jun 2026 at 09:59
Hi Jim,

I totally agree with Adrian, although I would go straight to the consultant's secretary. My RP was in June 2024 and my PSA has slowly climbed from 0.02 to 0.21 over the two years.

I was still under my consultant so when I exceeded 0.2, I was sent for a scan that thankfully found nothing. I would be on Salvage Radiotherapy Treatment, but I have Ulcerative Colitis and the risks of making my life hell are very high with this course of treatment. So, the decision we have taken together is to keep monitoring till I get to 0.5. If I get there then I will have another PSMA CT Scan and hopefully they will find the little sh*t.

Given that your latest result is 0.09 then, if there is anything new, it will be too small to find on a scan. A scan can't find anything till about 0.2. However, the consultant does need to be aware and in my case when I reached 0.06 I was put on three monthly blood tests. So please do chase this up with your consultant but be aware that at this point you're not facing anything definitive.

I so hope this helps and please stay positive, it may not be anything!

User
Posted 09 Jun 2026 at 11:55
Be very careful with GP PSA results post treatment, you may find it has not even been looked at by a human at all. My first 0.1 was at the GPs and they said it was normal because it was less than 4!!

Since then I have been monitored quarterly by the hospital oncologist, suggest you request the same.

User
Posted 09 Jun 2026 at 14:44

I had similar experience and when I questioned it I was told that the normal/no action required comments were added at the lab where, of course, my history was not known. I am certain that whoever reviewed the result at my GP surgery either failed to review my history or was unaware of the importance of small increases in readings that fell within recommended normal levels. 

User
Posted 09 Jun 2026 at 16:52

Thanks everyone.

It came as shock of course, which it must do for everyone. What's worse I am on a seven day round walk in the Lakes so I cannot do anything until I get back. Of course it's put a downer on things. My wife who I care for (The walking holiday is my week off) is in bits.

So I have had time to read through some of the guidelines and it would seem I need to contact the oncology team first. 

Thank you everyone for pointing me in the right direction.

Edited by member 09 Jun 2026 at 21:31  | Reason: Not specified

User
Posted 11 Jun 2026 at 09:25
Been playing PSA ping pong for 11 years now, whatever else you decide DO NOT let it spoil your holiday, nothing will happen for at least 3 months so it really is not worth worrying about.
User
Posted 16 Jun 2026 at 14:37

Hi Paul

I was exactly the same as you - .02 post op to .21 after 2 years. at this point I was sent for a PET scan which showed one area of METs on the hip and one on the sternum.  Had SABR to the two areas at the end on March. The prostate bed and surrounding area was clear. Diagnosed Gleeson 6 in March 24 and RALP in Dec 24.

Good luck with your PET scan when you get it.

 
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