2019 TURP biopsy negative. Urinary stricture appeared which I self catheterise every 14. days. Will often get a UTI if I don't take one Co-Amoxiclav at same time. Works well. PSA 0.7.
2022 PSA 1.7. Took no notice as NHS requires 6.5 for red flag!
2024 PSA 4.x. Again no action
2025 PSA around 5.x now realised the velocity was high. Dr not really worried (only if around 20ish!). No symptoms (well, I guess there wouldn't be.
2026 PSA 5.8. Still Dr not concerned but mentioned fast rise and referred me but they sent me away (less than 6.5 AND prostate no hard 'lumps'. So I paid for a mpMRI. Result: worrying lesion 9mm density 0.22 in 30cm prostate. Referred back to NHS. Biopsy: lesion gleeson 8/9!!! Rest of prostate quiet. Scans showed no metastasis.
July 2026 put on Orgovyx (just finished 1st months pack). 2ndaries so far light, hot flushes, one or two other changes. 1st post Orgovyx PSA due 20th with MCT team nurse appnmt on 27th.
Two thoughts I am following now having done some research (which I use Leo AI to gather for me), one is diet due to forthcoming testosterone depletion and of course what my case should be. My conclusion so far is that I should have a complete prostatectomy reason being radiation will likely hurt my stricture and even close it up. Advantage is removal of the lesion and restructuring of urethra with the chance of no stricture. I am happy to suffer erectile dysfunction so they can 'go wide' to catch any residual cancer 'spots'. And of course eventually get off ADT. Accept the fact that monitoring/radiation will be required if things get active again.
So far I have got myself some ISOPURE Whey protein, Creatine powder and Calcium Citrate all powders which I have started by mixing with yoghurts. the full mix is low fat milk, Chia seeds, 200g yoghurt ration of 6:1:0.5 of those powders. I don't know if I'm too early but I guess I need to experiment.
Exercise?, yes I am always active on my allotment, starting power walk (aim to get over 7K steps eventually) and do resistance stuff but not sure the regime yet.
I am only to happy to get advice from those further down the path. Mentally I don't seem to be stressed much (yet!?) and need to fight this. The only thing I am worried about is the MCT having a different view and me accepting something different than to get that blighter out of the picture!
Thanks for your time.