Newbie/About me

User

Posted 09 Jul 2026 at 09:38

Hi folks, nice to be here. My name is Jeff and I am 11 days post RARP and catheter came out yesterday. I was diagnosed with PC (T2c - 4:3 - Gleason 22.5) in February following an MOT I had requested the month before; although investigations should have been started 3 months before. At the end of October 25 I completed a GP triage form which listed all the tell tale signs of PC and was told it was just a UTI and given ABX to take without even being seen by a GP. The Dr who did my MOT was appalled that I had not been seen earlier and put me straight on the Fast Track list and here I am now as the say.

Edited by member 09 Jul 2026 at 10:17 | Reason: Not specified

User

Posted 09 Jul 2026 at 10:25

There has been much discussion on here regarding individuals requesting PSA checks and national screening. Unfortunately as we've lost our search facility. I can't find any of these conversations and post you links to them.

Apparently they are revamping the site and hopefully restoring the search button will be a priority.

User

Posted 09 Jul 2026 at 10:39

You can search the site with a normal Google search, preceeding your search terms with

site:community.prostatecanceruk.org

Edited by member 09 Jul 2026 at 13:01 | Reason: Not specified

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User

Posted 09 Jul 2026 at 10:00

Hello, Grizzley.

Welcome to the forum, mate.

I was also 66 years old, when I had RARP three years ago. My profile tells my story.

It might be an idea to add to your profile what your intial PSA level was, your cancer staging and Gleason score.

I hope after the catheter removal that you don't suffer too much incontinence. I also hope that when you get your post-op histology results and PSA check that they are favourable.

It's a shame about your GP's surgery misdiagnosis cock- up. Talking of cock-ups, I also hopre that you have no erectile dysfunction issues. 😁

Good luck and I wish you a full and speedy recovery.👍

Please keep us updated on how you progress.

Edited by member 09 Jul 2026 at 10:07 | Reason: Typo

User

Posted 09 Jul 2026 at 10:09

Thank you Adrian for your greeting and tips, I will add those details shortly.

Misdiagnosis isn't the tip of the iceberg unfortunately though is it? I know several guys who have asked for a PSA blood test and have had to jump through hoops to get one done, even after telling the surgery they have been advised by PC Nurse Specialists. Its disgusting and the system needs a kick up the backside.

User

Posted 09 Jul 2026 at 10:25

Apparently they are revamping the site and hopefully restoring the search button will be a priority.

User

Posted 09 Jul 2026 at 10:39

You can search the site with a normal Google search, preceeding your search terms with

site:community.prostatecanceruk.org

Edited by member 09 Jul 2026 at 13:01 | Reason: Not specified

User

Posted 09 Jul 2026 at 10:53

Hi Grizzly,

Welcome and wishing you a speedy recovery.

My mates, (who are all well over 50) all tell me about the challenges and obstacles they have had getting tested since my diagnosis has given them the collywobbles.

Luckily all their tests have come back clean, so I kinda guess why the reluctance to test wholesale so to speak, but then again it only takes one like me, the 1 in 8, who really should have got tested earlier, hey ho, hindsights a wonderful thing.

You are right though, it seems GP's all to often drop the ball on many patients presenting with serious diseases.

My Dad was sent home with gaviscon for indigestion, 18 months later he died of oesaphogal cancer.

ATB,

hawkz

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