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Stressed Newbie here

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User
Posted 18 Jul 2026 at 21:15

Yesterday I was diagnosed with prostate cancer.

PSA 54.9

Geason ( 4+5) 9

T2C N1 M1

Grade 5 

 

Aged 54.....  awaiting PET scan to check an indeterminate spot on left rib....  referred to clatterbridge as were local...I have zero symptoms feeling a bit stressed 😕 

User
Posted 19 Jul 2026 at 10:14

Thanks for getting in touch. Glad to hear that you are still with us. It certainly helps hearing stories like yours. 

User
Posted 19 Jul 2026 at 10:04
Your initial diagnosis is quite similar to what mine was (PSA 32 Gleason 9, T 2-3, N?) and that was 19 years ago! My profile is on here if you want to wade through it, however I think it is largely irrelevant as the treatments I received have been superseded. I merely hope to cheer you up with the evidence that you can survive at least another 20 years with a diagnosis like yours :)
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User
Posted 18 Jul 2026 at 21:57

Sorry you're here mate. That is a very unusual staging. What is the extent of metastasis and lymph involvement you are already aware of?

User
Posted 18 Jul 2026 at 22:21

They are checking these with the Pet scan

User
Posted 18 Jul 2026 at 22:51

Hi, Jason.

Welcome to the forum.

Me, and a couple of others had suspicious/indeterminate 'hot spots' on our bones, which turned out to be old injuries or arthritis.

You're bound to feel anxious, mate. Unfortunately all you can do is wait for the scan and results. I hope they are favourable and a treatment plan is put in place to cure/treat the problem. 

Please keep us updated and best of luck. 👍

 

User
Posted 18 Jul 2026 at 23:01

Thank you 😁

User
Posted 19 Jul 2026 at 10:04
Your initial diagnosis is quite similar to what mine was (PSA 32 Gleason 9, T 2-3, N?) and that was 19 years ago! My profile is on here if you want to wade through it, however I think it is largely irrelevant as the treatments I received have been superseded. I merely hope to cheer you up with the evidence that you can survive at least another 20 years with a diagnosis like yours :)
User
Posted 19 Jul 2026 at 10:14

Thanks for getting in touch. Glad to hear that you are still with us. It certainly helps hearing stories like yours. 

 
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