Hi all firstly this site is amazing and I have finally plucked up the courage to post. I’m Jamie a 55 year old man from Devon I had a radical prostate removed I’m March 2025, my Gleason score was 4*3 and intermediate risk but due to delays in surgery due to my weight and having to lose so much before he would operate when they removed the prostate it was mainly 4’s and 5’s and has escaped the gland. I had pain in my pelvis pre surgery that stopped for two months after and staters again in September 2025, during my MRI it showed two specks on my right iliac blade and following PET said no clear up take. Here we are in August 2026 the pain in my hip and pelvis are waking me up my PSA was 0.01 but is now 0.10 and my consultant will not offer me a PET to see what is going on. I am on nuropathic medication and this helped with my shoulder randomly but nothing else , I’m not incontinent and manage a 75% erection so I know I’m lucky but still feel something is not right , I have heard said they want 0.2 before considering PET scan but I’m worried about the wait as it was very aggressive cancer in the end