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HIFU experience?

User
Posted 12 Aug 2026 at 08:28

So, I'm very early on this journey, diagnosis yesterday, Gleason 4+3 and 14mm diameter cancer, with 10% intermediate cells. 


HIFU has been suggested, and to be fair it sounds almost too good to be true.
So I'm looking for anyone who has experience of HIFU and the negatives around it?

As this is al very new, I'm also considering just monitoring for a while, I've no idea if this s a new complaint or something I've had for years...

User
Posted 12 Aug 2026 at 09:24

Hi, Iain.

I'm sorry that you've been diagnosed with prostate cancer but welcome to the forum, mate. You'll get lots of help and support here.

Here's an excellent video on treatment options and possible side effects. Focal therapy starts about 36 mins into the presentation.

https://youtu.be/zYTU94-8pTc?si=xW83bOb0AVFQFD2l

I think there are a few lads on here, but not many, who've had HIFU as a primary treatment, perhaps they may comment.

Please keep us updated and good luck. 👍

Edited by member 12 Aug 2026 at 09:50  | Reason: Add link

User
Posted 12 Aug 2026 at 18:56
Hi Iain,

That is an excellent video Adrian has posted and it was one of the participants that gave me HIFU on two occasions for failed radiotherapy and has now done over a thousand HIFU procedures, which essentially is the same as for HIFU given as an initial treatment. It quite often takes two treatments to do the job and you have to be carefully selected and found to be suitable. They also do Cryotherapy in cases where the cancer is in a position where the HIFU probe cannot reach or Nanoknife (Irreversible Electroporation), a more recent procedure, which can be used more widely in the Prostate.

As regards the HIFU procedure, I started my journey home about an hour after coming round from the aneasthetic and was driven home about 210 miles from London to Devon. The next day there was some swelling and I had to sloutch back when sitting, rather like after having a biopsy to lessen pressure on the tender parts. The catheter was removed a week later and I was almost back to normal. Some 5 years on, I am still in remission.

HIFU generally has less incidence of incontinence and erectile dysfunction than surgery. However, in some cases where HIFU has proved unable to do the job, RT or Prostatectomy may be required and this is made more difficult after HIFU (Like Prostatectomy after Radiation)

Barry
 
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