Gleason 4+4 T2 waiting for CT and Bone scan

Hello Mark,

So sorry you find yourself here, however there's lots of very helpful people, info and advice on this forum.

We've been where you are, waiting for results is hugely stressful and worrying. It's very hard to think of anything else but it does get easier once a plan is in place for treatment. 

I was a similar age to you (48) when diagnosed. Whilst waiting for my bone scan results I was convinced the pain I was having in my big toe must be the cancer. Luckily all was clear and it was more to do with my poor football skills that caused it!

If you don't mind me asking what was your PSA result and what brought you to be tested?

Generally prostate cancer is slow moving so you should be able to take your time choosing which treatment path you want to take, don't feel rushed. 

I took the RT/HT route in the end, if you click on peoples username's it will take you to there profile which most people use to detail the diagnosis and treatment

There's a useful video that goes through the various treatment options, I see if I can find it, someone else may well beat me too it!

All the best

John

Hi, Mark.

Im sorry to hear that you've been diagnosed with prostate cancer, but welcome to forum, mate. You'll get plenty of help and support here.

I can't really add much to what John has said. It would be helpful, if you don't mind, giving your PSA level. Your T2 staging is good news indicating that the disease is prostate confined. Hopefully, your CT and bone scan will confirm this.

You and John are younger than most of us old codgers. Its a shame that PCa has entered your life at an earlier age, but it means you are more likely to be fitter and stronger to deal with it.

Please keep us updated, and good luck with your scans, and whatever treatment you chose. 👍

Hi Mark - one of the old codgers here!

I have been on the PCa journey for one year now and have had Hormone Therapy combined with Chemotherapy - what is known as Triplet Therapy.  This week I will be discussing Radiotherapy with my consultant....

The early stages are an absolute whirlwind - your mind will be all over the place and you will likely be petrified about the future - however, things do get a bit better once a treatment pathway is identified and then started upon.  We have all been there and loads of t-shirts in all sizes have been bought!!!  I proudly wore my Man of Men PCUK t-shirt to each of my chemo sessions!!

I would suggest that you have a look at the publications section of the PCUK website and get hold of their Toolkit - this is a pack which contains a lot of very useful information.  Each section usually has a set of questions which are a useful prompt for your meetings with medics.  I was pleasantly surprised that my CNS was one of the contributors to the information leaflets.

Personally I have found the Headspace app very useful - their Coping with Cancer course was helpful in the early days and I still use it for a little calming meditation.

There is lots of support on here - ask your questions, have a grumble, rage at the world - we will listen.

Hi Mark,

Very well done for being proactive, you've saved yourself from potentially a much more difficult and less treatable position. Mine was luck, or more correctly having a very thorough nurse checking lots of things include a PSA test when I went to the doctor for something else.

As Adrian your staging suggests prostate confined which gives you lots of options for treatment and likely a curative path. I was told the bone scan was done as a matter of routine, in fact mine was scheduled before the biopsy results were back. Your PSA is also relatively low, it can run into the 100s or 1000s in advanced cases

Good luck with your scans

John