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First time on the site.

User
Posted 23 Aug 2026 at 12:41

Hi, I’m Neil from Aberdeenshire, 69yo, diagnosed in May with PC, G8 (5+3). I’ve had CT and

full body bone scans, no metastasis detected. I have met with the consultant Urologist twice

now, the last appointment was to discuss treatment options. I’ve decided on surgery after

researching all the options presented, there was no shortage of information, online and from

U Can nurses on the Urology ward. My next appointment is on the 2nd September for a 

pre-op assessment, hopefully, a date for surgery soon after.

A few months have passed since being diagnosed and the present day, however I’ve just been

getting on with it, the only problem I’m having is the nausea and dizziness from taking Tamsulosin,

even though I take it at night before sleeping, I still feel the effects next day, this medication was

prescribed after my biopsy in early April of this year. I guess perseverance is the answer.

I’m just here to introduce myself, I hope I haven’t overshared.

 

Thank you.

 

Neil

 

 

 

 

User
Posted 23 Aug 2026 at 16:40

Hello Neil, as a fellow Scot may I be the first to welcome you to the club heretofore we had no idea existed or would be joining. I am in North Lanarkshire and at the age of 70, just under 3 years ago was diagnosed like you as Gleeson 8 (5+3). Again, like you the CT and bone scans were both clear. However the cancer in my case had crept into the seminal vesicles (T3b) which I expect is the reason I was told I would commence Prostap 3 HT and receive RT.  I can understand your relief in having the option of removal and read that you have fully researched the options.  Is the surgery to be nerve sparing? HT, for me was no walk in the park and after 15 months with the agreement of the oncologist stopped the treatment. Not sure what my decision would have been had I the option of surgery.   Coming off HT my PSA initially rose to 0.9, then to 1 and in April it had fallen back to 0.4. which seems like the right direction. Next meeting with the oncologist is this Friday. Fingers crossed it stays there.

Best wishes for your treatment. Be sure to keep us informed of your progess.

John 

User
Posted 23 Aug 2026 at 19:50

Hi Neil,

There's no such thing as overshared as everyone is a bit different, more information makes it easier to comment if you want it. 

A bit of housekeeping, most people don't use their real name as searches can find it and putting as much on your profile as possible is helpful as people won't want to keep reading through your posts if you intend on contributing a a lot. 

Hopefully you get your operation date soon as it's usually done shortly after the pre-op.   I got my op date first and then hardly had time to fit the pre-op in. 

People suggest you read the PCUK Tool Kit and write on here how you're getting on or questions although you can ring a nurse. 

Tool Kit link; https://shop.prostatecanceruk.org//our-publications/all-publications/tool-kit?limit=100  it is downloadable.

All the best Peter

 

User
Posted 23 Aug 2026 at 20:14

Re tamsulosin, you could try taking it earlier, maybe early evening, rather than at bedtime.  That’s what I was advised by the medics when I complained of dizziness on getting up in the mornings. 

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User
Posted 23 Aug 2026 at 16:40

Hello Neil, as a fellow Scot may I be the first to welcome you to the club heretofore we had no idea existed or would be joining. I am in North Lanarkshire and at the age of 70, just under 3 years ago was diagnosed like you as Gleeson 8 (5+3). Again, like you the CT and bone scans were both clear. However the cancer in my case had crept into the seminal vesicles (T3b) which I expect is the reason I was told I would commence Prostap 3 HT and receive RT.  I can understand your relief in having the option of removal and read that you have fully researched the options.  Is the surgery to be nerve sparing? HT, for me was no walk in the park and after 15 months with the agreement of the oncologist stopped the treatment. Not sure what my decision would have been had I the option of surgery.   Coming off HT my PSA initially rose to 0.9, then to 1 and in April it had fallen back to 0.4. which seems like the right direction. Next meeting with the oncologist is this Friday. Fingers crossed it stays there.

Best wishes for your treatment. Be sure to keep us informed of your progess.

John 

User
Posted 23 Aug 2026 at 19:50

Hi Neil,

There's no such thing as overshared as everyone is a bit different, more information makes it easier to comment if you want it. 

A bit of housekeeping, most people don't use their real name as searches can find it and putting as much on your profile as possible is helpful as people won't want to keep reading through your posts if you intend on contributing a a lot. 

Hopefully you get your operation date soon as it's usually done shortly after the pre-op.   I got my op date first and then hardly had time to fit the pre-op in. 

People suggest you read the PCUK Tool Kit and write on here how you're getting on or questions although you can ring a nurse. 

Tool Kit link; https://shop.prostatecanceruk.org//our-publications/all-publications/tool-kit?limit=100  it is downloadable.

All the best Peter

 

User
Posted 23 Aug 2026 at 20:14

Re tamsulosin, you could try taking it earlier, maybe early evening, rather than at bedtime.  That’s what I was advised by the medics when I complained of dizziness on getting up in the mornings. 

 
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