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Had extensive radiotherapy 50 years ago

User
Posted 24 Aug 2026 at 16:12

I had extensive radiotherapy for testicular cancer way back in 1975. Tissue in my pelvic area is fragile but my consultant seems hell bent on further radiotherapy even though it is suggested that this may cause issues such as major incontinence. Is there any clear guidance on this issue?

User
Posted 24 Aug 2026 at 22:13
Talk about being a survivor! Impressive.

The only thing is that there will be few patients from that time to share experiences with, and probably even fewer oncologists.

So my comments are speculation. But I think it is likely that even 50 years ago they will have taken efforts to ensure the radiation doesn't spread beyond their target - with testes that should have been easily achievable with lead shields even if the machines of the time weren't as tightly focussed as now. If that was the case, you probably remember, there is no obvious reason that you would be more in risk of incontinence than any other patient undergoing radiotherapy. In general with modern machines they can target the beam to minimise side effects, not that anything is guaranteed.

Good luck. As far as I know incontinence is not often a big issue with radiotherapy these days, and the odd bit of leakage easily managed by wearing a pad. But that will also depend on your particular situation and treatment, so you need to discuss with your oncologist.

User
Posted 25 Aug 2026 at 08:51
Thanks for your thoughts. Sadly they did not make any efforts to shield back then. They irradiated from mid thigh to just under my rib cage, chasing lymph glands I guess. Since then a couple of consultants, for other problems,have said I have very fragile skin which might not heal after surgery. If its fragile on the outside I guess its also fragile on the inside. Also, I have IBS from the surgery for my last cancer, a retroperitaneal lyposarcoma, back in 2021.
User
Posted 25 Aug 2026 at 09:47
Think this is definitely one where you have to trust the professionals. Definitely get a second opinion though.
User
Posted 16 Sep 2026 at 09:34

Originally Posted by: Online Community Member

I had extensive radiotherapy for testicular cancer way back in 1975. Tissue in my pelvic area is fragile but my consultant seems hell bent on further radiotherapy even though it is suggested that this may cause issues such as major incontinence. Is there any clear guidance on this issue? heardle

That sounds like a really difficult history, especially after the previous radiotherapy and surgery. I agree with @francij1 that getting a second opinion would be sensible in a situation this complicated, particularly if there are concerns about how the previously treated tissue might respond.

I’d want the radiotherapy team to have the details of your 1975 treatment and the more recent surgery before making a decision. Hopefully they can explain the potential benefits and risks clearly and discuss whether there are alternatives.

Edited by member 16 Sep 2026 at 09:35  | Reason: Not specified

User
Posted 16 Sep 2026 at 14:04

I think there are two aspects to this.

Will anyone be able to find your previous radiotherapy dosing records?
I was supporting someone a few years ago who had exactly the same issue. The hospital where they had their previous radiotherapy still existed, but it was now a very different establishment and hadn't had any radiotherapy facilities there for decades. They didn't have the radiotherapy records from 50 years ago. He contacted the health authority and they went on a hunt, but initially it looked like the records were lost. However, they were eventually found in the radiotherapy department of the nearest district general hospital. This enabled the medical physicists to plan his prostate radiotherapy to miss the areas treated 50 years ago. Radiotherapy treatment for testicular cancer is often higher up than the prostate (i.e. nowhere near the testicles), but not always.

The second thing is that although the mantra has always been that you can only treat any tissue once for radiotherapy because it's given it's maximum lifetime dose, this is no longer considered as set in stone as it once was. Providing your original treatment was a number of years ago, retreatment is now being offered in some cases. In your case, the target is going to be different, so any overlapping areas probably didn't have the full dose anyway, and aren't going to with the prostate cancer treatment either, and again this increases the scope for treatment.

Also, depending on your diagnosis, something like brachytherapy might be suitable which doesn't have any entry/exit wound, and therefore that wouldn't overlap with previous radiotherapy.

User
Posted 17 Sep 2026 at 02:27
We don't seem to have a full diagnose of your Prostate cancer, Assuming this is confined to the Prostate, and not high grade, an alternitive might be Focal Treatment, as this can be more precisely administered to avoid collaterial damage. Suggest you ask about this if you are a suitable candidate.
Barry
 
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