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Starting chemo after enzalutamide

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User
Posted 24 Aug 2026 at 19:52

Hi all


its taken me a long time to come on here but I have found the conversations very helpful and reassuring. Hubby was diagnosed 4 years ago (treatable but not curable) and been on enzalutamide. Although it hasn’t spread and PSA was still undetectable, 3 monthly CTs were showing the tumour was growing so chemo commenced last Tuesday. He’s had afew issues with chest pain (went to A&E and all ok) and now back pain but specialist nurse has said it is likely the injections he’s having to help boost his bone marrow is the cause. Anyone else had these sort of issues at the start? Many thanks for reading this x

User
Posted 25 Aug 2026 at 08:15

Hi


Keep a diary after every infusion,note down pains/feelings/sensations etc daily,you'll probably find they are roughly the same after every injection.


I did that after 10 cycles of docetaxel a couple of years ago,i found it helped me know what to expect week by week.


All the the best with your other half's journey.


Phil 

User
Posted 25 Aug 2026 at 09:16

Thanks Phil, yes we have started making notes as hard to remember all the details once a day goes by. Thanks for taking time to reply

User
Posted 25 Aug 2026 at 10:14

Hi


I found that as the process continued the recovery time lengthened each time and the respite period grew shorter, so just something to watch out for.


Also if you have any problems discuss them with the team at the infusion/consultation.  I have peripheral neuropathy now (loss of feeling in fingertips and toes) and my dose was dropped halfway through.  Any little niggle pass it on!!  I also had stomach/swallowing problems and was prescribed medication to counter them - which worked.


 

Best wishes - stay positive


CeePee

User
Posted 25 Aug 2026 at 12:26
Found the chemo a tough gig, completely flattened me, just seemed to leave me exhausted.
Remember going to visit my son in Shrewsbury between infusions 5 and 6 and I could barely climb a hill.
Couple of years later I walked up the same hill, it was a breeze.
Guess secret is take it easy don't try and do to much, listen to your body.
Everyone's journey is different, some of the guys on here breezed through it and carried on working. Hope your partners journey is an easy one.
Good luck
User
Posted 25 Aug 2026 at 23:39

Thanks for the advice and replying

User
Posted 25 Aug 2026 at 23:41

Thanks for the advice and that there is hope at the end of the chemo 

 
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