Notification

Error

Help with my decision please!

User
Posted 01 Sep 2026 at 11:48

Hi everyone. (New to the site). 
I’m 68 years old, living in Glasgow. 
In July 2025 I was diagnosed with prostate cancer (T2 NO, Gleason3+3=6, PSA 9.3, CPG1). 
Subsequent PSA tests showed slight increases up to around 14 most recently. 
Latest MRI showed the two small lesions had grown too, and one getting close to the edge of the gland. 
Recommended to have either radiotherapy or surgery. 
I’ve had a telephone consultation with the surgeon and am meeting the oncology consultant next week. I’ve then to decide which option to take.
My head’s all over the place tbh.  
I’d really welcome any advice etc - my wife’s doing her best, and is so supportive, but some “hands on” chat would be great. 
Thank you. 

User
Posted 01 Sep 2026 at 19:46

Thank you very much for the info and link Adrian. I’ll check that out this evening. 
really appreciate the support 👍

User
Posted 01 Sep 2026 at 22:12

Hi TL, John from North Lanarkshire. Welcome to the forum. I was 70 at diagnosis 5+3 PSA 47 T3b. I was told Hormone Therapy straight away and Radiotherapy. HT for me was a major challenge. Having read on here about the irreversible effects of non nerve-sparing surgery I am happy now that for whatever was the reason it was not an option. The Lanarkshire Beatson is a centre of excellence. They are currently upgrading their RT machines. The radiological staff are wonderful. If you opt for RT ask to go there. To find out more about treatments and side effects go to the Maggie’s centre at Monklands. Make sure you know about the relative merits of either treatment before you decide. 2 years down the line from RT and over 1 year from HT my PSA is 0.3. I think that’s a result. It’s been a rough journey but I have been able to work full time. Best wishes for your decision.  John

Show Most Thanked Posts
User
Posted 01 Sep 2026 at 16:33
Hi TL,
I am so sorry that you are facing this horrible choice. Having been there two years ago, I know just how much this will scramble your mind and both decisions will seem like options you don't want to take. You have done the right thing by coming on here and asking for other people's experience.

I can only speak from my experience and I had to go down the surgery route. I had a condition called Ulcerative Colitis and this prevented me from having radiotherapy. So the first tip is to make sure you have informed your treatment team of any conditions you might have. My team were not aware of the Colitis until I told them!

Assuming you don't have any other medical conditions then the things to know about the surgery route is:
You need to know if your operation will be nerve sparing? In some cases the removal of the prostate will require the removal of the nerves around the prostate. If these are removed then you are 95% certain to never have a natural erection again. My operation was non-nerve sparing and I haven't had an erection ever since and have come to terms with that being my fate.
My operation left me incontinent for 5 months. The NHS provided pads that I had to wear for those 5 months. I still have a minor weakness that means a sneeze or cough may end in a tiny leak. When I over exercise or have a bad cold there is a higher risk of leaks, but nothing that has been so bad that people could see anything.
The operation will shorten your penis by 1 to 2 inches. As I don't get erections this is not a huge problem for me. I do use a vacuum pump (provided free on NHS) and a cock ring does make it possible to have penetrative sex but this is not perfect as it can be uncomfortable and there can be issues where the penis bends around the ring (I don't have this, but have read it from others in the same boat).
Obviously the above is a lot to handle and I needed help. I had cognitive behaviour therapy from November 2024 to January 2025, which helped me to come to terms with the above. I would encourage you to see your GP and get a referral, but be aware it is a long waiting list.
Before the Colitis set my treatment path, I did have the same choice as you. I was going to choose the surgery and my main motivation was I wanted the cancer out of me. After the operation they do a full examination of your prostate and they informed me that the original diagnosis of Gleason 4+3 had changed to Gleason 4+4, as they had found that the tumour had breached the prostate and my risk of spread was now higher. I am glad I had the surgery for this reason as I am now clear where I stand.

If you have any more questions on the surgery please ask. I am sure someone from the radiotherapy route will soon respond. I wish you all the best with this choice and wish you all the success in the world with whatever route you choose.
User
Posted 01 Sep 2026 at 17:07

Thank you so much for your reply Paul. 
This was very helpful - I’ve no other medical issues to complicate matters thankfully. 
I’ve been leaning towards the surgical route for the same reasons you were, but will await my oncology appointment next week before deciding. 
Thank you again for your support and valuable information. 
TL

User
Posted 01 Sep 2026 at 17:25
If it helps, I would add that I am living my best life having recently retired and my wife doesn't mind me saying that our sex life is wonderful as we took on the challenge to explore all the ways possible to express our love. It's a great challenge to help with your recovery. Don't see it was a negative - make it a positive!
User
Posted 01 Sep 2026 at 18:37

Thank you! 👍

User
Posted 01 Sep 2026 at 18:58

Hi. Richard here. I too have been diagnosed with 3 + 3 Gleason stage 1, and only today had my consultations with oncology. I have been offerred AS, Surgery and RT. So I am having to make a choice too. Its hell isn't it. My PSA was 5.1 which they told me was low, and I am low risk etc, but I feel I just want rid, so AS I feel is not for me. I am guessing you have been on AS? For how long if you don't mind me asking.


The fear of waiting for things to progress surely has to be worse than slowing it down at least with either surgery or RT. Rubbish choices all of them though

User
Posted 01 Sep 2026 at 19:18

Hi, TLGlasgow.


I'm sorry that you've joined 'The Club', but welcome to the forum


Here's a useful video on treatment options and their possible side effects.


https://youtu.be/zYTU94-8pTc?si=xW83bOb0AVFQFD2l


I had surgery rather than radiotherapy because at that time radiotherapy involved seven weeks of 35 hospital visits, which wouldn't have suited me. Now, sometimes, this can be reduced to just five zappings.


Good luck, with whatever you chose. 👍

User
Posted 01 Sep 2026 at 19:45

Apologies for my ignorance Richard, but what is AS?

User
Posted 01 Sep 2026 at 19:46

Thank you very much for the info and link Adrian. I’ll check that out this evening. 
really appreciate the support 👍

User
Posted 01 Sep 2026 at 20:02

Active surveillance!  Got it, sorry for earlier reply. 
Yes I thought I was fine and dandy too until the last couple of months. 
And yes, not an attractive choice in sight. 
Having this forum though is helping me so much, and I’ve only been registered since this morning. 


Thanks so much for your reply and support - really appreciated. 

User
Posted 01 Sep 2026 at 22:12

Hi TL, John from North Lanarkshire. Welcome to the forum. I was 70 at diagnosis 5+3 PSA 47 T3b. I was told Hormone Therapy straight away and Radiotherapy. HT for me was a major challenge. Having read on here about the irreversible effects of non nerve-sparing surgery I am happy now that for whatever was the reason it was not an option. The Lanarkshire Beatson is a centre of excellence. They are currently upgrading their RT machines. The radiological staff are wonderful. If you opt for RT ask to go there. To find out more about treatments and side effects go to the Maggie’s centre at Monklands. Make sure you know about the relative merits of either treatment before you decide. 2 years down the line from RT and over 1 year from HT my PSA is 0.3. I think that’s a result. It’s been a rough journey but I have been able to work full time. Best wishes for your decision.  John

User
Posted 01 Sep 2026 at 23:03

Thank you so much John - that’s really quite encouraging.  I’m near to the Beatson at Gartnavel where I’ll be seeing my oncology consultant next week, and know they’re top people there.  
I’ll certainly take everything in before making any decision. 
Thanks again John 👍

 
Forum Jump  
©2026 Prostate Cancer UK