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🎉 25 years of our Online Community! 🎉

User
Posted 01 Sep 2026 at 12:22

Hi everyone, 


In July, the Prostate Cancer UK Online Community turned 25 years old! 🎉


To celebrate the amazing impact this space has had and continues to have for so many, we collected thoughts and reflections from members for an article recognising this impressive milestone. You can access the article on our website Health Hub here:


Celebrating 25 years of our Online Community | Prostate Cancer UK


 


We wanted to say a massive thank you to everyone who shared their thoughts and reflections on the forum - we had more feedback than we expected to receive or that we could fit into one article! It was incredibly heart-warming and inspiring to read your stories and experiences.


We really value the knowledge, thoughts and support all of you share on 24/7, all year round. It is the time you all generously give to this space and each other that makes this community what it is. Thank you! 💙


All the best, 


Payge – Peer Support Senior Officer (Online Community) 

User
Posted 01 Sep 2026 at 12:22

Hi everyone, 


In July, the Prostate Cancer UK Online Community turned 25 years old! 🎉


To celebrate the amazing impact this space has had and continues to have for so many, we collected thoughts and reflections from members for an article recognising this impressive milestone. You can access the article on our website Health Hub here:


Celebrating 25 years of our Online Community | Prostate Cancer UK


 


We wanted to say a massive thank you to everyone who shared their thoughts and reflections on the forum - we had more feedback than we expected to receive or that we could fit into one article! It was incredibly heart-warming and inspiring to read your stories and experiences.


We really value the knowledge, thoughts and support all of you share on 24/7, all year round. It is the time you all generously give to this space and each other that makes this community what it is. Thank you! 💙


All the best, 


Payge – Peer Support Senior Officer (Online Community) 

User
Posted 08 Sep 2026 at 04:00

I joined in oooooooh.............. 2008. Had to check as it was so long ago! I was on HT at the time and was researching extensively on what PCa treatments were available worldwide. I realised what a complex and multifaceted subject Prostate Cancer was with evolving and refined ways to treat and many other aspects and considerations. I learnt much from the prolific posters on the forum back in the day and met some of them at the meetings we had at Birmingham and at Leicester annually. A member was able to get their Oncologist to attend on more than one of these meetings to talk and answer questions and there was also a talk by the late Jane Plant on fighting cancer by selective diet etc, on one occasion. Members came from far and wide, some with their partners. Despite many having advanced PCa and of course this being much discussed, there was banter, mirth and comrardery. The very nice man who organised the event over several years was glad to pass organising the meeting over to this Charity who adopted it for one occasion. It was pointed out to them, well before the event, as I can personally attest, that numbers would be down if there would not be a speaker. This proved to be the case, and to such an extent that Prostate Cancer UK never organised another. Sad really, as some members additionally stayed overnight at the venue before or after the meeting. Many if not most of these men have since died but those that remain we will remember.


There are many men who read what is posted, even if they are not members or they may be members but do not post. In either case, along with those who post frequently or occasionally, the forum provides information and support for those that want or need it. The combined pool of knowledge increases as members contribute, even by askng or answering questions. detailng experiences and advising what they have learnt about new ways of diagnosing and treating PCa and cancer related matters. So hopefully, the Community will continue to be able tto support men and their families.


 


 

Edited by member 08 Sep 2026 at 04:04  | Reason: Not specified

Barry
User
Posted 07 Sep 2026 at 16:49
Great achievement PCUK 25 years. Invaluable to me in the dark days of 2018 when first diagnosed.
Special mention for some great guys and special supporting women who are no longer with us. RIP 💔
User
Posted 01 Sep 2026 at 12:36

What a fantastic achievement- and long may it continue!


I have been touched by the stories on this forum and by the strength shown by so many.


I wish I had found this place earlier in my journey- it is so comforting that we can all help each other.


 

Best wishes - stay positive


CeePee

User
Posted 02 Sep 2026 at 10:43

I think it's a really good forum, and it was invaluable to me when I was going through treatment 7-8 years ago, so I put a lot of effort in afterwards to pay back for others. I did drop out of it for a while when there were the server problems, but I eventually noticed you fixed those and I participate again now.


Although it's all patients, I found the quality of the information really good, and if something incorrect was posted, it was quickly corrected by others. That's not true of many other forums.

User
Posted 03 Sep 2026 at 09:15

Hi and Congratulations to a great club that is invaluable to it's members old and new.


I found a wonderful community when i was struggling to come to terms with prostate cancer 10 years ago this month and trying to decide what procedure to take robotic surgery or Brachytherapy and found a welcoming friendly bunch that still had a sense of humour but doing their best to help you get through the first few months.


I sign in every day and try to help where possible, long may it last good luck .


John.

User
Posted 05 Sep 2026 at 08:34

Another here who signs in every day although I rarely join in these days. 


The forum is such a valuable resource and I am always amazed at the quality of knowledge and empathy shown. 


Thank you all for your contributions and wishing you all the very best.


Janet 

User
Posted 05 Sep 2026 at 08:58

Originally Posted by: Online Community Member
Another here who signs in every day


Me too, Janet. It's become my second home. 😁

User
Posted 08 Sep 2026 at 07:42

Well said Barry.


Thank you for support - even though I have only been here since May I have found it a great source of knowledge support and good humour.


I was most vocal in my support of this forum when speaking to the PCUK team in Glasgow on Sunday.


Your point about the meet ups is interesting - on Sunday at the Tour de 4 those of us with Stage 4 had the opportunity to wear a golden armband to let others know (discreetly) .  This prompted several lovely conversations with total strangers with whom I had a lot in common- and indeed was  a highlight of the day.  Additionally several people have commented that they found this approach quite touching…


From what one of the commentators was saying there were around 150 of us at the event amongst thousands of supporters and other riders.


So to PCUK - how about meet ups? Would this be possible on a national or regional level on occasion?


 

Best wishes - stay positive


CeePee

User
Posted 09 Sep 2026 at 08:58

Originally Posted by: Online Community Member


Well said Barry.


Thank you for support - even though I have only been here since May I have found it a great source of knowledge support and good humour.


I was most vocal in my support of this forum when speaking to the PCUK team in Glasgow on Sunday.


Your point about the meet ups is interesting - on Sunday at the Tour de 4 those of us with Stage 4 had the opportunity to wear a golden armband to let others know (discreetly) .  This prompted several lovely conversations with total strangers with whom I had a lot in common- and indeed was  a highlight of the day.  Additionally several people have commented that they found this approach quite touching…


From what one of the commentators was saying there were around 150 of us at the event amongst thousands of supporters and other riders.


So to PCUK - how about meet ups? Would this be possible on a national or regional level on occasion?


 



 


Hi CeePee, 


I've heard about the meet ups that used to be organised by members here but don't know too much about Prostate Cancer UK led events. However, I think it's a really interesting idea that could have a lot of value.


I've passed the point onto my wider department for discussion and I'll see what I can find out about previous events and opportunities for events in the future. I'll update you when I have some information 😊


Many thanks, 


Payge - Peer Support Senior Officer (Online Community)

User
Posted 05 Sep 2026 at 12:39

Brilliant community for information and support particularly when first diagnosed and I was getting none. 

User
Posted 05 Sep 2026 at 19:25

I joined in 2016.  I don't post much nowadays as my PCa was successfully treated.  The information on this forum contributed to that successful outcome.


The forum, alongside the Specialist Nurse phone service, was absolutely fantastic.  


Thank you so much, PCUK.

User
Posted 08 Sep 2026 at 22:59

Well done.  I find that members' treatment experiences are sometimes the first I've heard of them, particularly what others are newly getting on the NHS or where they're travelling to be treated.


Things over time such as MRI before biopsy, brachytherapy and where it's offered, psma scanner availability, focal treatments being offered. 


Getting accumulated info on that can be useful if you want to be able to discuss your treatment and favour certain options.


 

Edited by member 08 Sep 2026 at 23:08  | Reason: Not specified

User
Posted 09 Sep 2026 at 10:18

According to my calculations, since the forum began there have almost been 267,000 posts. Averaging over 10,500 per year and nearly 30 posts per day. 


Lyn Eyre must be the greatest stalwart of the forum. She joined in 2009, and made 14,842 posts, 5.56% of all post made. What an incredible contribution she made. I still miss her wit and wisdom. I hope she's okay. 

User
Posted 09 Sep 2026 at 10:44

Originally Posted by: Online Community Member


According to my calculations, since the forum began there have almost been 267,000 posts. Averaging over 10,500 per year and nearly 30 posts per day. 


Lyn Eyre must be the greatest stalwart of the forum. She joined in 2009, and made 14,842 posts, 5.56% of all post made. What an incredible contribution she made. I still miss her wit and wisdom. I hope she's okay. 



 


Pretty spot on with those calculations, Adrian! 😊 As of today, the stats are:


Number of posts: 267,013


Average posts per year: 10,621


Average posts per day: 29


I can see the immense impact that LynEyre had on this community. In my short time working on this forum, I've noticed so many individuals who are real pillars of this forum. Thank you to everyone who gives so much of their time to support others!  

User
Posted 11 Sep 2026 at 12:27

George what a very nice guy. I did try contacting him a long time ago but got no responce. I know his PCa was well advanced and he was on Intermittent HT so has likely passed.


Lyn took over from Elise as a prominent poster. She was called the White Angel or Dove or something like that and was a nurse. Unfortunately she suffered burn out. Her mother also called Elise was quite a character. I remember one year at the Leicester meet she went round sitting on all the men's laps! The Mill on the Soar at Leicester provided a good central location with beautiful lake beyond the garden. As well as the adjacent accommodation, there was a block of flats where many attending the meet stayed for a night or more. https://www.booking.com/searchresults.en-gb.html?aid=311076&label=hotel-115333-gb-wIa%2AYP2MevaVotybasJUkwS114157501120%3Apl%3Ata%3Ap1%3Ap2%3Aac%3Aap%3Aneg%3Afi%3Atikwd-658971051%3Alp9194039%3Ali%3Adec%3Adm%3Appccp%3DUmFuZG9tSVYkc2RlIyh9YVujEjbMrKBVEQO8hCDrg-c&gclid=EAIaIQobChMI6_n0i6zmlgMVkUFBAh0NQR1YEAAYASAFEgIiVfD_BwE&redirected=1&city=-2591097&highlighted_hotels=115333&hlrd=no_dates&source=hotel&expand_sb=1&keep_landing=1&sid=cd6aec5dcde7a764631940b711f2ed49


 


Happy times!


 

Edited by member 11 Sep 2026 at 12:28  | Reason: to highlight link

Barry
Show Most Thanked Posts
User
Posted 01 Sep 2026 at 12:36

What a fantastic achievement- and long may it continue!


I have been touched by the stories on this forum and by the strength shown by so many.


I wish I had found this place earlier in my journey- it is so comforting that we can all help each other.


 

Best wishes - stay positive


CeePee

User
Posted 02 Sep 2026 at 10:43

I think it's a really good forum, and it was invaluable to me when I was going through treatment 7-8 years ago, so I put a lot of effort in afterwards to pay back for others. I did drop out of it for a while when there were the server problems, but I eventually noticed you fixed those and I participate again now.


Although it's all patients, I found the quality of the information really good, and if something incorrect was posted, it was quickly corrected by others. That's not true of many other forums.

User
Posted 03 Sep 2026 at 09:15

Hi and Congratulations to a great club that is invaluable to it's members old and new.


I found a wonderful community when i was struggling to come to terms with prostate cancer 10 years ago this month and trying to decide what procedure to take robotic surgery or Brachytherapy and found a welcoming friendly bunch that still had a sense of humour but doing their best to help you get through the first few months.


I sign in every day and try to help where possible, long may it last good luck .


John.

User
Posted 05 Sep 2026 at 08:34

Another here who signs in every day although I rarely join in these days. 


The forum is such a valuable resource and I am always amazed at the quality of knowledge and empathy shown. 


Thank you all for your contributions and wishing you all the very best.


Janet 

User
Posted 05 Sep 2026 at 08:58

Originally Posted by: Online Community Member
Another here who signs in every day


Me too, Janet. It's become my second home. 😁

User
Posted 05 Sep 2026 at 12:39

Brilliant community for information and support particularly when first diagnosed and I was getting none. 

User
Posted 05 Sep 2026 at 19:25

I joined in 2016.  I don't post much nowadays as my PCa was successfully treated.  The information on this forum contributed to that successful outcome.


The forum, alongside the Specialist Nurse phone service, was absolutely fantastic.  


Thank you so much, PCUK.

User
Posted 07 Sep 2026 at 16:49
Great achievement PCUK 25 years. Invaluable to me in the dark days of 2018 when first diagnosed.
Special mention for some great guys and special supporting women who are no longer with us. RIP 💔
User
Posted 08 Sep 2026 at 04:00

I joined in oooooooh.............. 2008. Had to check as it was so long ago! I was on HT at the time and was researching extensively on what PCa treatments were available worldwide. I realised what a complex and multifaceted subject Prostate Cancer was with evolving and refined ways to treat and many other aspects and considerations. I learnt much from the prolific posters on the forum back in the day and met some of them at the meetings we had at Birmingham and at Leicester annually. A member was able to get their Oncologist to attend on more than one of these meetings to talk and answer questions and there was also a talk by the late Jane Plant on fighting cancer by selective diet etc, on one occasion. Members came from far and wide, some with their partners. Despite many having advanced PCa and of course this being much discussed, there was banter, mirth and comrardery. The very nice man who organised the event over several years was glad to pass organising the meeting over to this Charity who adopted it for one occasion. It was pointed out to them, well before the event, as I can personally attest, that numbers would be down if there would not be a speaker. This proved to be the case, and to such an extent that Prostate Cancer UK never organised another. Sad really, as some members additionally stayed overnight at the venue before or after the meeting. Many if not most of these men have since died but those that remain we will remember.


There are many men who read what is posted, even if they are not members or they may be members but do not post. In either case, along with those who post frequently or occasionally, the forum provides information and support for those that want or need it. The combined pool of knowledge increases as members contribute, even by askng or answering questions. detailng experiences and advising what they have learnt about new ways of diagnosing and treating PCa and cancer related matters. So hopefully, the Community will continue to be able tto support men and their families.


 


 

Edited by member 08 Sep 2026 at 04:04  | Reason: Not specified

Barry
User
Posted 08 Sep 2026 at 07:42

Well said Barry.


Thank you for support - even though I have only been here since May I have found it a great source of knowledge support and good humour.


I was most vocal in my support of this forum when speaking to the PCUK team in Glasgow on Sunday.


Your point about the meet ups is interesting - on Sunday at the Tour de 4 those of us with Stage 4 had the opportunity to wear a golden armband to let others know (discreetly) .  This prompted several lovely conversations with total strangers with whom I had a lot in common- and indeed was  a highlight of the day.  Additionally several people have commented that they found this approach quite touching…


From what one of the commentators was saying there were around 150 of us at the event amongst thousands of supporters and other riders.


So to PCUK - how about meet ups? Would this be possible on a national or regional level on occasion?


 

Best wishes - stay positive


CeePee

User
Posted 08 Sep 2026 at 22:59

Well done.  I find that members' treatment experiences are sometimes the first I've heard of them, particularly what others are newly getting on the NHS or where they're travelling to be treated.


Things over time such as MRI before biopsy, brachytherapy and where it's offered, psma scanner availability, focal treatments being offered. 


Getting accumulated info on that can be useful if you want to be able to discuss your treatment and favour certain options.


 

Edited by member 08 Sep 2026 at 23:08  | Reason: Not specified

User
Posted 09 Sep 2026 at 08:58

Originally Posted by: Online Community Member


Well said Barry.


Thank you for support - even though I have only been here since May I have found it a great source of knowledge support and good humour.


I was most vocal in my support of this forum when speaking to the PCUK team in Glasgow on Sunday.


Your point about the meet ups is interesting - on Sunday at the Tour de 4 those of us with Stage 4 had the opportunity to wear a golden armband to let others know (discreetly) .  This prompted several lovely conversations with total strangers with whom I had a lot in common- and indeed was  a highlight of the day.  Additionally several people have commented that they found this approach quite touching…


From what one of the commentators was saying there were around 150 of us at the event amongst thousands of supporters and other riders.


So to PCUK - how about meet ups? Would this be possible on a national or regional level on occasion?


 



 


Hi CeePee, 


I've heard about the meet ups that used to be organised by members here but don't know too much about Prostate Cancer UK led events. However, I think it's a really interesting idea that could have a lot of value.


I've passed the point onto my wider department for discussion and I'll see what I can find out about previous events and opportunities for events in the future. I'll update you when I have some information 😊


Many thanks, 


Payge - Peer Support Senior Officer (Online Community)

User
Posted 09 Sep 2026 at 10:18

According to my calculations, since the forum began there have almost been 267,000 posts. Averaging over 10,500 per year and nearly 30 posts per day. 


Lyn Eyre must be the greatest stalwart of the forum. She joined in 2009, and made 14,842 posts, 5.56% of all post made. What an incredible contribution she made. I still miss her wit and wisdom. I hope she's okay. 

User
Posted 09 Sep 2026 at 10:44

Originally Posted by: Online Community Member


According to my calculations, since the forum began there have almost been 267,000 posts. Averaging over 10,500 per year and nearly 30 posts per day. 


Lyn Eyre must be the greatest stalwart of the forum. She joined in 2009, and made 14,842 posts, 5.56% of all post made. What an incredible contribution she made. I still miss her wit and wisdom. I hope she's okay. 



 


Pretty spot on with those calculations, Adrian! 😊 As of today, the stats are:


Number of posts: 267,013


Average posts per year: 10,621


Average posts per day: 29


I can see the immense impact that LynEyre had on this community. In my short time working on this forum, I've noticed so many individuals who are real pillars of this forum. Thank you to everyone who gives so much of their time to support others!  

User
Posted 11 Sep 2026 at 08:18

I attended the Leicester and London events for a number of years including the PCUK organised one. The wonderful George had organised the events for a number of years and PCUK organised the final one when George found the organisation getting a bit too much for him, he put so much time and energy into it. I actually organised a smaller event after that close to George’s home town but then Covid happened the following year and I’m not aware of anything since.


Maybe there is scope for more, less formally organised, events in a variety of regions? Or maybe in conjunction with support groups? 

User
Posted 11 Sep 2026 at 12:27

George what a very nice guy. I did try contacting him a long time ago but got no responce. I know his PCa was well advanced and he was on Intermittent HT so has likely passed.


Lyn took over from Elise as a prominent poster. She was called the White Angel or Dove or something like that and was a nurse. Unfortunately she suffered burn out. Her mother also called Elise was quite a character. I remember one year at the Leicester meet she went round sitting on all the men's laps! The Mill on the Soar at Leicester provided a good central location with beautiful lake beyond the garden. As well as the adjacent accommodation, there was a block of flats where many attending the meet stayed for a night or more. https://www.booking.com/searchresults.en-gb.html?aid=311076&label=hotel-115333-gb-wIa%2AYP2MevaVotybasJUkwS114157501120%3Apl%3Ata%3Ap1%3Ap2%3Aac%3Aap%3Aneg%3Afi%3Atikwd-658971051%3Alp9194039%3Ali%3Adec%3Adm%3Appccp%3DUmFuZG9tSVYkc2RlIyh9YVujEjbMrKBVEQO8hCDrg-c&gclid=EAIaIQobChMI6_n0i6zmlgMVkUFBAh0NQR1YEAAYASAFEgIiVfD_BwE&redirected=1&city=-2591097&highlighted_hotels=115333&hlrd=no_dates&source=hotel&expand_sb=1&keep_landing=1&sid=cd6aec5dcde7a764631940b711f2ed49


 


Happy times!


 

Edited by member 11 Sep 2026 at 12:28  | Reason: to highlight link

Barry
 
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