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User
Posted 16 Sep 2026 at 14:33

so after going through surgery , radiothearpy and hormone treatment, i feel low as  seem to have gone full circle the journey has started again as my PSA has slowly started to rise got a quickly booked PET SCAN on Monday next week, just needed to put it down in words as at a point can not really talk to anyone other than my partner , just fear the worse as the last 3+ years have been tough, has anyone else had this i have gone through all scenarios 

User
Posted 28 Sep 2026 at 10:58

thanks all have had a n update form the PET scan cells  has spread to 4 areas picked up by the PET scan which have a consultation about this week as will have either targeted RT on the 4 impacted areas along with 6 months of hormone, or HT for ever more will find out the reccomendations this week but even lower , i know im not alone but feels it

User
Posted 21 Oct 2026 at 11:48

Hi, again, mate.

I can fully understand your emotions. I hope your SABR is effective, and that your life can be restored to some normality. Good luck. 👍

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User
Posted 16 Sep 2026 at 15:41

Hi, as my profile shows dx Sep 2004, hit near enough cut of point of psa 2 in Apr 2017 to get tested again. For me that possible recurrence was by far harder to take than initial diagnosis. So just a taste of what you're going through right now. Hang on in there, get the result and then take it from there. 

Best of luck to you and yours

Ray

User
Posted 16 Sep 2026 at 16:13

thanks very hard to get a clear head as struggled with initial diagnosis

User
Posted 16 Sep 2026 at 17:06

So sorry to read your news just after I posted my own good news after my first 6 monthly PSA test following radiotherapy last February.  I realise in coming months or years my own PSA could start to rise again. I hope it won't but with this disease you just don't know. The anxiety will always be there.

I wish you all the very best with any future treatment.  There's so much they can do these days so try to stay positive. 👍

 

User
Posted 16 Sep 2026 at 19:34

Hi Makem,

I am sorry to hear that you might be looking at further treatment but lets hope it is not needed following your PET scan or there is a simple solution if there is.

I have had unsuccessful surgery and also recent salvage RT that I hope works for me this time so I think I know something of how you are feeling.

Good luck for Monday and let us know how you get on. 

If you want to compare notes you are welcome to PM me.

Al

 

User
Posted 17 Sep 2026 at 02:11
I also know what it feels like to have treatments fail. Initially this was RT along with HT, Then my first HIFU didn't do the job. I did persuade them to give me a second HIFU and I am still in remission after nearly 5 years after that. So my message is 'don't give up'. There is usually some further treatment that could be given. In my case it would now be systemic treatment if needed, if this second application of HIFU had failed because the hospital would not administer any further radical treatment to the Prostate even if that is where the tumour was, as they say my Prostate has been subject to enough radical treatment damage. What treatment a man can have depends on how much cancer is found and where it is found and what were the previous treatments.
Barry
User
Posted 17 Sep 2026 at 09:59

Hi, Makem.

I'm sorry that the salvage treatment hasn't quite finished the job. You are bound to be feeling low and disappointed. All I can do is echo the sentiments of others and hope the  the rogue cells are located and destroyed.

If putting things down in words helps you, please continue posting, you'll always get support here.

You're due a change of fortune. Hopefully the next phase of treatment will finally resolve the problem.

Good luck, mate. 👍

User
Posted 28 Sep 2026 at 10:58

thanks all have had a n update form the PET scan cells  has spread to 4 areas picked up by the PET scan which have a consultation about this week as will have either targeted RT on the 4 impacted areas along with 6 months of hormone, or HT for ever more will find out the reccomendations this week but even lower , i know im not alone but feels it

User
Posted 28 Sep 2026 at 15:19

Thanks for the update, mate. Whatever they decide, I hope it works. Good luck, 👍

User
Posted 28 Sep 2026 at 21:25
Fingers crossed they can target the 4 sites. It's not that long since the only option would have been HT for ever. As you are getting PSMA detections might be worth asking about Leutitium too.
User
Posted 21 Oct 2026 at 10:24
well after all the scanning and what not i start my next course of SABR radio therapy next week for 2 weeks covering four areas, not looking forward to it the pain on just an MRI to get in position for rib and shoulder was no fun, not sure what to expect all the unknown if the after effects will be worse than the prostate bed radio therapy , but all this was caught on a another rising PSA so just all get tested and keep an eye on anything out of the ordinary , still numb in shock sad angry but just need to get back on with living etec not easy keep safe everyone
User
Posted 21 Oct 2026 at 11:48

Hi, again, mate.

I can fully understand your emotions. I hope your SABR is effective, and that your life can be restored to some normality. Good luck. 👍

 
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