Notification

Error

10 years on.

Email this conversation Print this conversation
User
Posted 26 Sep 2026 at 11:32

Need a bit of help.


Radio therapy treated the cancer and we have been running with a PSA of .21 . Recently checked for bladder cancer as I was peeing blood. Negative.


Cystoscopy indicates it is damage to radiation weakened veins at the bladder entrance and together with radiation cystitis soreness things could be more comfortable.


When asked if any repair work could be undertaken there was a bit of a shoulder shrug. You might just have to learn to live with it. Cauterisation is very invasive. You are not young.


i wondered if any one else had found themselves in a similar situation and if they found a comfortable solution.


 

User
Posted 26 Sep 2026 at 20:52

There are a couple of treatments I'm aware of.


Hyperbaric Oxygen Treatment, where you have a number of sessions in a pressure chamber with increased oxygen level. This often requires a trip to a scuba diving centre or somewhere else which has a pressure chamber.


There are clotting agents which can be used in the urethra and bladder, although doing it at the bladder neck might be a challenge.

User
Posted 27 Sep 2026 at 10:30

Nick 2, I suffered very severe radiation cystitis, I did try a number of hyperbaric oxygen sessions but it was probably a bit too late when I started them. It took a long time to diagnose the problem.  Look up oxygen centres or MS oxygen centres, fortunately there was one a mile from my house. 


You could contact the Pelvic radiation disease association, they put me in touch with a couple of consultants. There was talk of bladder infusions but as I said, my diagnosis was a bit late. 


I was passing blood, blood clots and some very strange bits of tissue. My bladder shrunk and eventually I had to have a suprapubic catheter, hopefully your level of damage is not that bad.


Added. Just looked at your profile, my issues started a few months after salvage RT.


Thanks Chris 

Edited by member 27 Sep 2026 at 10:34  | Reason: Not specified

User
Posted 30 Sep 2026 at 18:41

My husband has radiation cystitis. He's been checked and treated with hyperbaric oxygen. No more blood in one year. If it comes back the uro suggests this time he will recommend hyaluronic acid instillation into his bladder. 

Show Most Thanked Posts
User
Posted 26 Sep 2026 at 20:52

There are a couple of treatments I'm aware of.


Hyperbaric Oxygen Treatment, where you have a number of sessions in a pressure chamber with increased oxygen level. This often requires a trip to a scuba diving centre or somewhere else which has a pressure chamber.


There are clotting agents which can be used in the urethra and bladder, although doing it at the bladder neck might be a challenge.

User
Posted 27 Sep 2026 at 10:30

Nick 2, I suffered very severe radiation cystitis, I did try a number of hyperbaric oxygen sessions but it was probably a bit too late when I started them. It took a long time to diagnose the problem.  Look up oxygen centres or MS oxygen centres, fortunately there was one a mile from my house. 


You could contact the Pelvic radiation disease association, they put me in touch with a couple of consultants. There was talk of bladder infusions but as I said, my diagnosis was a bit late. 


I was passing blood, blood clots and some very strange bits of tissue. My bladder shrunk and eventually I had to have a suprapubic catheter, hopefully your level of damage is not that bad.


Added. Just looked at your profile, my issues started a few months after salvage RT.


Thanks Chris 

Edited by member 27 Sep 2026 at 10:34  | Reason: Not specified

User
Posted 30 Sep 2026 at 18:41

My husband has radiation cystitis. He's been checked and treated with hyperbaric oxygen. No more blood in one year. If it comes back the uro suggests this time he will recommend hyaluronic acid instillation into his bladder. 

 
Forum Jump  
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2026 Prostate Cancer UK