Where could I get HIFU?

Hi again, Bret.

As I said earlier, mate, I'm not medically trained, but I'm sure there must be curative treatments available for your T3b prostate cancer which will not risk worsening your eye condition.

In your other conversation you mentioned:

It's rare, but not unknown, to have surgery on T3b disease. Even when surgery is used in cases of T3b, it's usually backed up with radiotherapy and HT. In that conversation they appear to have considered RALP, and only ruled it out because it's done in the Trendelenburg position, where you're lying tilted with your head tilted below your feet. I can understand why that might put additional pressure on your eyes, and why it might not be a suitable treatment option.  However, if that's their only concern, why aren't they considering open surgery where your body is level during the operation. 

It seems they are happy to proceed with EBRT and HT, which is the standard way of treating T3b PCa.

If that's the case, who has warned you that your scheduled external beam radiotherapy may affect your eyesight?

Please don't get me wrong, Bret. I don't know all the facts, but from what you've said, I am simply questioning what you've apparently been advised. 

Of course there are risks in all treatments. I know EBRT can cause urinary, bowel, and other problems. However, because it's a  treatment directed at specific areas these problems are usually confined to those areas.

I'm just a bloke who's had PCa and took an interest in the disease. However, I've never heard of EBRT causing or exacerbating eyesight problems. I would at least double check the further lose of vision concern, before rejecting curative treatments and increasing the risk of prostate cancer metastasis.

Edited by member 16 Oct 2026 at 08:57  | Reason: Additional text

Also, although the vast number of cases are now done using the robot, remember surgeons are trained doing the Prostatectomy using the old way and that on occasion, due to break down of the robot, the surgeon reverts to the old way, so must retain his/her robot less skill. Indeed, there are some surgeons who prefer getting their hands inside and the greater sense of feel this provides.

Edited by member 16 Oct 2026 at 22:17  | Reason: Not specified

All methods of treating Prostate Cancer have their successes and failures, so you will find men that are happy with results and those that are unhappy with the option they had. So one needs to consider how a large number of men have done who were considered suitable. This does work slightly against Radiation Oncologists. The reason for this is that surgeons want to cherry pick patients for Prostatectomy or Focal Treatment and for difficult cases can steer men to RT. In fact that happened in my case, where the surgeon didn't want to operate, so escorted me to the Radiation Consultant who was lumbered with a difficult case with greater risk of failure.

The most advanced form of Radiation in my case failed and it was the two administrations of HIFU that put me into remission and with virtually no side effects, although the previous Radiation had stopped erections. So don't be persuaded by a few good or bad reports.

As regards HIFU, this video by a leading practitioner is interesting. https://www.youtube.com/watch?v=vksmmvzLBYA

There are not many practitioners doing Focal Treatment and those that do often work in two or more hospitals. Here is a list but as Focal Treatment is on the increase there may now be more. I can't see the name of the Professor at UCLH who is one of the most experienced with HIFU having done well over a thousand administrations including mine on the list. But they are almost all south of Birmingham. https://www.topdoctors.co.uk/hifu-high-intensity-focused-ultrasound/

Edited by member 20 Oct 2026 at 20:32  | Reason: to highlight links