Feedback Appointment NHS

Hi, Fishy.

I'm sorry to see that you may have disease progression that requires further treatment, but welcome to the forum. At least your active surveillance has given you four years free of any possible side effects of radical treatments.

I was in a similar position to you. Initially diagnosed PSA 7, T2a, safely prostate confined, Gleason 6 (3+3). I went on AS. My three monthly PSA checks only fluctuated slightly. So I was surprised when a follow up MRI detected capsular breach and a subsequent biopsy showed significant change. Then T3a Gleason 8 (3+5), later upgraded to Gleason 9 (4+5).

Like you, I just got a phone call and a letter to see a consultant for ten minutes, to give me the bad news. I selected surgery. I had a much longer and in depth 30 minute consultation with my surgeon, about a month later.

I'm in North Lincs.

Good luck, mate.  👍 

Hi Fishy

Hope the appointment goes well this afternoon..

I can recommend having a look at the publications section on the PCUK site - there are documents covering all aspects and you can download them as pdf files ahead of ordering hard copies. Great clear source of information and they have lists of questions as well ( that is if you need any more!).

I had my list of queries and checked against them as we were going along to see if we were covering them off in the discussion.  I do know I was waiting past my appointment time on a couple of occasions- earlier appointments had overrun and I never felt rushed in the discussion with the consultant oncologist.  I am under QE hospital in Birmingham.

Don’t forget to check our stories by clicking on our names or roundel.

My own consultant said he got 20 min clinic slots before treatment, and 15 min slots afterwards. Apparently, this is longer than normal.