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Simon Story Chapter 2

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User
Posted 16 Jan 2015 at 22:20
love Dave's post ...just so you know Dave I have also booked a non refundable room if Si is momentarily incapacitated I will do my best to drink you under the table...but of course Si superman will be there.

Course I am far too lady like to comment on such matters as a permanent erection other than 50 shades of grey the movie is out on Monday

Xxx

User
Posted 16 Jan 2015 at 23:33

Anyone wanting to get in line for the man with the prolonged erection will have to queue behind me :-#

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 Jan 2015 at 09:57

That poor bloke it really must have been a yes get in, oh no! moment when the erection he had possibly been waiting some time for disqualified him from the trial.

Lyn I'm shocked ;-)

Bri

User
Posted 17 Jan 2015 at 12:56

LYN!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif


You're a very naughty girl.

(I love it!)http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

 

B2PCa
User
Posted 17 Jan 2015 at 15:34

HOLY KAMOLI What has been going on.

Si is clogging up A&E and Lyn is first in line in a very long queue. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

Trevor is exactly the same for phoning an ambulance, he didn't want me to ring when he had the pneumonia but sometimes it is needed so stop arguing with Ness .http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

I just had a terrible thought it could be the Fosters OHHHHHHHHHHHHH NOOOOOOOOOOOOOOOOOO.

BFN

Julie X

 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 17 Jan 2015 at 22:27

Originally Posted by: Online Community Member

Anyone wanting to get in line for the man with the prolonged erection will have to queue behind me :-#

 

Totally misunderstood your post Lynne.  Had an image, the wrong image. lol.  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

 

x

Edited by member 18 Jan 2015 at 10:39  | Reason: Not specified

User
Posted 23 Jan 2015 at 14:32

Hi All, time for another update,

After my medication induced Supraventricular tachycardia two weeks ago all my stats went back to normal yesterday, no more problems and I feel good again, now we need to find out the bugger that set it off.

Bone scan today, was feeling a little bit apprehensive after the two new mets appeared last time, but everything is good no progression.

Good old Jamie, belt and braces, i finished my bone scan to find out that he had also booked a SPECT-CT scan, never heard of this one before but it was very nice.

So three more months of Abbi, will soon be hitting the 2 year mark on this drug.

Looking forward to the meet up at Newark, hope you have been practicing Dave http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Best Wishes to all

Si xx

 

Don't deny the diagnosis; try to defy the verdict
User
Posted 23 Jan 2015 at 15:08

Who here ever imagined that the words "SPECT-CT, it was very nice" could ever seem like a normal thing to say or read? Pleased that you have another 3 months stability Si.

CB, there's no HT inhibiting your imagination then?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 Jan 2015 at 15:14

 

 

"CB, there's no HT inhibiting your imagination then?"

 

Edited by member 23 Jan 2015 at 16:15  | Reason: Not specified

Don't deny the diagnosis; try to defy the verdict
User
Posted 23 Jan 2015 at 17:29
Si, some great news to head into the weekend then, I am beginning to worry about your slightly S&M approach to scans they are meant to be tolerated not enjoyed like a bloody massage or something had you been slurping the Fosters before you went in??

Not sure what the HT imaginary inhibitions are all about, I am afraid that one has gone straight over my head. I am simply not as sharp as I used to be. I think the one hour one to one I had with the Physical trainer at the gym yesterday has finished me off, well that and this no alcohol school nights mallarky ... OMG it is Friday yay hooray glass of wine time and no more gym until Sunday afternoon.

All looking good for Newark, just remind me to point out to the lovely waitress there that Dave does not like eating off a roof slate so can he have an ordinary one !!

It was great to see you looking like your normal self again yesterday

xxxx

Mandy Mo

User
Posted 23 Jan 2015 at 17:51

CB = Countryboy

Ref his last comment about my comment. It's more complicated if you have started the weekend red Mo.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 Jan 2015 at 23:06

Great news Si, the diet is working!

User
Posted 24 Jan 2015 at 12:22

Really good news Si, I am so happy for you. I have looked up this new scan on the internet but I couldn't find it. The only reference to a SPECT-ST was

S-SI'S

P-PRETTY

E-ELECTRIFYING

C-COME ON EVERYBODY

T-TRY IT 

_

C- COOL DUDE

T- TYPE OF SCAN

Was that the one ?

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 24 Jan 2015 at 21:44
This morning I typed up this really cool answerand pressed the tab to post it, it explained away the reason I missed CBs edited comment about his vison of Lyn, where the Holy Grail really is, the Meaning of Life etc. Then you never guess what happened ... got it in one, the website crashed and my darkest wittiest moment was lost forever ...poop

xx

Mandy Mo

User
Posted 25 Jan 2015 at 10:58

Great scan results Si. Hope all goes well when you meet Jamie in a couple of weeks

Bri

User
Posted 03 Feb 2015 at 12:41
Wow, Si, just been catching up in all the posts. What a roller coaster, but great news all is still going well and that you had a great Christmas. Good on you for continuing to kick ass!

My Dad is off to see Jamie today (or whoever it is that's there - sometimes Jamie, sometimes one of his registrars but they've all been nice). Hope he gets some positive news too!

Belated happy new year and enjoy your Feb meet-up.

X

User
Posted 03 Feb 2015 at 13:47

Hi Debbie,

Great to hear from you, and a happy new year to you and your family.

Bad news im afraid Jamie is on holiday this week so i guess your dad will be seeing one of the registrars, so glad to see he is still doing well and i hope today is good news for him, please let me know how he gets on.

Things have moved on a bit my end and not all good i am afraid, just working on a new plan and to get my head round things.

If your dad or yourself is around on Saturday you are more the welcome to join us, just a nice lunch with some great people and a couple of beers http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

All my best

Si xx

 

Don't deny the diagnosis; try to defy the verdict
User
Posted 09 Feb 2015 at 10:52

Update of the last 3 weeks,

After the medication induced heart problem my appointment with Jamie was brought forward two weeks, after consulting two other oncologists they placed the blame on abiraterone and the plan was to stop these and start on Cabaztaxel straight away.

Didn't really fancy that so after a little debate Jamie agreed that i could stay on Abbi but i had to promise if my heart rate hit 150 straight to hospital. Well that was a Thursday  and by Saturday it all went tits up again so like a good boy i stayed at home but stopped taking abbi.

Rang the nurses Monday who contacted Jamie, my journey of 18 months with abbi is now over. So as Jamie was on holiday last week i will be seeing him this Thursday. I see the heart man at 10am then back at 8pm for the big discussion.

Not really sure what route to take next, not sure i fancy chemo again apparently its not the right time for Radium 223 but i will find out why.

So for the first time in over two years i am on no treatment and i am quite enjoying it, so unless Jamie comes up with something out the box that really appeals to me i think for the time being i will stay as i am.

Bloods are still good, PSA & testosterone all undetectable, bone scan showed no progression and the SPECT CT scan the report was lost but now found and i will get the results of that Thursday.

Si   

Don't deny the diagnosis; try to defy the verdict
User
Posted 09 Feb 2015 at 11:12

Hello again Si,

I am sorry that you now have to forget about Abiraterone.
Like every other drug, it can work well for years for some, yet be ineffective or harmful to some other guys.in a relaltively short time.

I have seen cases this like before where the heart has been affected.

Fortunately, your results remain excellent. I hope the missing (now found) report shows good news too, and I wish you the very best with your big appointment with Jamie.

Looking forward to a positive post from you on Friday!


All the best,


George

B2PCa
User
Posted 09 Feb 2015 at 12:38
Si

your Jamie never does anything predictable so I wouldn't show any surprise at what he comes up with no matter how radical or crazy it sounds. I did think that the peroni and chips diet may not actually be top of the list and it seemed to have a slighty debilitating effect on you this weekend ...maybe we got the dosage wrong? not that you could tell from that stonking Sunday lunch.

Seriously though the last 2 months have given you a harsh taste of things not going to plan and I know just how much that rattled your cage, so now you need to move on and get ready for whatever comes next. Knowing you there will be a short spell of FFS, WTF and other utterances not everyone wants or needs to understand and then you will just get on with things in your own way as you almost certainly have had to all your life. You are a true inspiration to a lot of people here (even if your responses seem to be from a very select group of followers, there are many who read and say nothing) You have been the most incredble friend to me as you were for Mick from the first day of knowing you, your family are like my own whenever you need me I will most definitely be there for you with a peroni and chips take away if necessary.

I will be doing the proverbial beads for you on Thursday and as your appointment is late probably into Friday as well.

xxxx

Mo

 
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