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Simon Story Chapter 2

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User
Posted 13 Apr 2017 at 21:08

Well a nice 45 minute discussion and we have a plan that i will most probably agree to tomorrow.

Start bicalutamide tomorrow, this i will not do, never have.

Zoladex injection next Friday, Yep http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif Just one

Week Monday start 3 cycles of Cabazitaxel

And after that if PSA goes back to undetectable and scans show no progression then i can stop treatment again http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Happy with that

Si xx 

Don't deny the diagnosis; try to defy the verdict
User
Posted 13 Apr 2017 at 21:17

<<sigh>>

Love you, Superman Si x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Apr 2017 at 21:46
Most probably agree tomorrow? Most probably ?

What can I say except this is the song that I dedicate to you it has to be ! I Did it My Way !

I don't always agree with your choices but that's because I am a whimp but my friend I take my hat off to you , you are one heck of a guy . You have owned this cancer from day one and wether your choices are right or wrong is irrelevant. What's important to you is that you are in the driving seat and blooming heck you have never let anyone else take the wheel .

Love you loads.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 14 Apr 2017 at 10:12

Great to hear there is an agreeable plan in place. Fingers crossed for no progression etc so you can cease treatment again as I know that is what you really want

We will have to catch up for a few beers and maybe a curry

Bri

User
Posted 14 Apr 2017 at 12:02

Wow interesting plan. A different chemo will be interesting to see it's effectiveness. Sounds a good plan, well negotiated. Let's hope you get good results.

User
Posted 14 Apr 2017 at 14:54

Thanks Paul, you have summed up perfectly what I wanted to say.

 

Si, I personally think this is a good plan, and like everyone here, I'm waiting optimistically to see you report increasingly good results.

We all want to have breaks from treatment because they really seem to return us to some 'normality'. Energy back etc.

But we know only too well that eventually, we have to grudgingly accept that we're coming to the end of a break, PSA rises higher (and faster), and it's back on the treatment treadmill for us.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-frown.gif

Once back on it, we count the days till we see a chance to once more have that 'holiday'.

I have noticed that my hormone holidays have got shorter each time, but now, even a year or 18 months off treatment is like a lottery win.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-frown.gif

 

Wishing you the very best,

 

George

B2PCa
User
Posted 02 May 2017 at 20:34
Quick update

Didn't quite do the plan thought I would give the zolodex a miss for now I am sure Jamie will be fine when I see him Thursday

So last Monday I started cabazitaxel with my PSA at 4.6 and my thought was to forget the HT for now so that my cancer was all bright eyed and bushy tailed for when the chemo arrived rather than being subdued with HT

So what can I say about cabazitaxel well quite different side effects from docitaxel but not to bad. No need for all the steroids that I used to take before docitaxel which is great as I don't really like steroids

So bloods tomorrow and will see what the psa is if it is around 5 ish then the ht can wait. At the moment I am hoping to get the psa to below 1 by 4 cycles and that will be me done kids break up for summer and it's fun all the way

Still got a few months worth of Abbi that I might throw in the mix if the psa is a bit stubborn

So far in 41/2 years I managed over 2 years with no treatment and I quite like it so this will be a short sharp hit with all the nice things I still have in my cupboard 🤠🤠

Xx

Don't deny the diagnosis; try to defy the verdict
User
Posted 02 May 2017 at 23:00

Keep at it Si. I've got everything crossed for the blood test results. I know how important it is to you to be well enough to have summer fun with your girls.

When you are up to it we need to meet for beer

Bri

User
Posted 03 May 2017 at 00:19

Crazy guy, you are going to be in so much s**t on Thursday .... shall I come to counsel Jamie after he has seen you?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 May 2017 at 14:55

Quick update for anyone else going on Cabazataxal;

Before starting my PSA was quadrupling every 4 weeks, so my starting PSA was 4.6 but i made the choice not to take HT. i read a really good article once about the take up of chemo between dormant and active tumors, and looking back to when i first had chemo over 4 years ago this was started only one week after commencing HT and i had great results back then.

So after the first week of Chemo my PSA came back as 4.79 so only a small increase, my second cycle is next Monday and if the PSA is still similar then i will leave the HT for another month.

So far there has not been much difference with Docetaxel, 

Si    

Don't deny the diagnosis; try to defy the verdict
User
Posted 08 May 2017 at 15:59

Originally Posted by: Online Community Member

So far there has not been much difference with Docetaxel

Are you referring to side effects Si or something else? I suspect I may be looking at Cabazataxal before too long.

User
Posted 08 May 2017 at 16:15

Hi David

Yes side effects, i find the taste issue a bit easier this time and not being a great fan of steroids you only have some via the drip no tablets

But it has only been one cycle http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif 

Don't deny the diagnosis; try to defy the verdict
User
Posted 08 May 2017 at 16:42

Thanks Si, I hate the steroids too, they have given me fat ankles. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif Have you tried ice cubes and frozen pineapple cubes whilst you're having the infusion? It's helped me with taste whilst on docetaxel. I'll ask you again about side effects when you've had some more infusions and/or when I'm about to start Cabazataxal. In the meantime we should continue to use beer to resolve all problems and indeed discover the meaning of life itself. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

Edited by member 08 May 2017 at 16:49  | Reason: Not specified

User
Posted 08 May 2017 at 17:04

My mum always told me that fat ankles are a sign of poor breeding 🤔

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 May 2017 at 17:11

So you are both joining the cabbage club .... if you haven't already seen this thread, there may be something helpful in it? http://community.prostatecanceruk.org/posts/t7820-Cabbage-Club----------------Cabazitaxel?=#post7820

 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 May 2017 at 18:18

Originally Posted by: Online Community Member

So you are both joining the cabbage club .... if you haven't already seen this thread, there may be something helpful in it? http://community.prostatecanceruk.org/posts/t7820-Cabbage-Club----------------Cabazitaxel?=#post7820

Thanks Lyn, I hadn't seen this. You can be sure I will read every word.

User
Posted 08 May 2017 at 18:22

Originally Posted by: Online Community Member
My mum always told me that fat ankles are a sign of poor breeding 🤔

Yikes! Surely you are not suggesting that there is some correlation between poor breeding and God's county of Essex? http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

User
Posted 08 May 2017 at 18:38

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
My mum always told me that fat ankles are a sign of poor breeding 🤔

Yikes! Surely you are not suggesting that there is some correlation between poor breeding and God's county of Essex? http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

 

Just don't raise the edge of your dress above your ankles and you'll be fine.  Here in Essex we are very demure !!!!

We can't control the winds - but we can adjust our sails
User
Posted 08 May 2017 at 23:11
Sugar how I have I missed this , I wanted to say s*** but I am ever so respectful of Lyns laptop 😂

So here we go at speed reading just to play catch up.

Pineapple

Frozen

Cabbages

Essex dress code ( really not sure how this has anything to do with pca but I will read on )

HT don't tell Jamie

Don't wake Ness

Chelsea 2 Middlesbrough 0 ( sorry I got confused wrong sight)👏

Fat ankles 😂😂😂😂😂 know we are talking ( you have peeked up my Essex dress code ) 🤗 You little monkey 🐒

Love you ! Love you ! Si Superman keep doing it your way .

BFN

Julie X

Ps puppies on the way any day tell the girls x

NEVER LAUGH AT A LIVE DRAGON
User
Posted 08 May 2017 at 23:45

I heard that in Southend on Sea you can buy Ankle Spanx in natural skin tones or tangerine?

Edited by member 09 May 2017 at 00:24  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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