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Simon Story Chapter 2

User
Posted 13 Oct 2016 at 22:25

Good for you Si.

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 14 Oct 2016 at 02:20

This is just superb news Si; I wish the research projects would all come and have a look at you as your cancer is simply like nothing else!

Lots of love to you all xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Oct 2016 at 17:38

Brilliant news - great to hear!

Flexi

User
Posted 14 Oct 2016 at 18:31
Si

Well done and good news, look forward to seeing you again.

Thanks Chris

User
Posted 15 Oct 2016 at 20:42

Good news Si.

User
Posted 15 Oct 2016 at 21:05
Couldn't just leave it there , You are Rocking it Dr Foster.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 16 Oct 2016 at 01:27

Hi Si,

Great news, really pleased for you.

Was in my old hometown the other day, would have been good to meet for a drink.  Anyway, see you at the Flyer in December, hopefully.

Has the Advertiser moved offices?

Steve

User
Posted 07 Nov 2016 at 12:32

Great stuff Si. See you in the Flyer

 

Gary

User
Posted 15 Nov 2016 at 19:15
Thank you for all your comments

Latest update after restarting HT after PSA reached 1.2 after 4 weeks PSA dropped to 0.4 and my latest bloods came back at 0.11 not bad after 8 weeks of HT

So now a meeting with Jamie in two weeks to discuss stopping HT after one injection should be fun

Si xx

Don't deny the diagnosis; try to defy the verdict
User
Posted 15 Nov 2016 at 19:40
I u sure there is going to be a discussion 😜 I am pretty sure Jamie talks very calmly and with great knowledge and is a very smart oncologist but and you know me guys there is always a but ( picture the scene) in walks Superman and leaves Jamie thinking WTF just happened there.🙃

The Upside down face is because my Si Superman you turn pca on its head and long may that continue .

Not enough wing men in life .

Absolutely love you and your gang (Ness and the girls )

Keep rocking it .

BFN

Julie X

Ps Mr email thank you Xx

NEVER LAUGH AT A LIVE DRAGON
User
Posted 04 Dec 2016 at 10:00

Just a quick update,

After being off HT for nearly a year and with my PSA rising quite quickly and the only person that thought i should stay off it a bit longer was me, i succumbed to the pressure and restarted HT.

My first injection was 8 weeks ago with my PSA at 1.2 after four weeks it was 0.4 then it went to 0.11. I met with Jamie last week and armed with these good results i was going to stop HT again and not have the December HT.

But after nearly 4 years with Jamie i believe we are beginning to understand each other, as soon as i sat down he just said great results we will stop HT wait for it to rise to 2.0 then we are going right off piste.

Best meeting ever the nurse said your eyes just lit up http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif so with a prognosis of maybe 3 years but definitely not 4 we continue, not sure of the plan it is still under discussion.

We all get dealt a hand and it is down to us how we play it, i just choose to play it my way, and with a great Onco as my wing man.

Si xx     

Don't deny the diagnosis; try to defy the verdict
User
Posted 04 Dec 2016 at 10:21

Off piste? You are on the black run I think but there are a few landmarks to guide you and you are skiing with an expert x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 Dec 2016 at 10:31

Bet that stopped you in your tracks !!    http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Loins girded but not needed. He obviously knows his man.

Good luck Si

We can't control the winds - but we can adjust our sails
User
Posted 04 Dec 2016 at 10:52

I'm liking the style Si.
A lot.
There has to be something to make it more bearable. Take it on face to face.
Good luck

User
Posted 04 Dec 2016 at 13:27

Si, I am SO CHUFFED to read this!

 

I like the plan, and your wingman Jamie is definitely on the same page as you now.

 

The Zoladex worked brilliantly for you, in such a short time, and I think it proves that sensible breaks off the treatment makes it remain effective each time you need to return.

 

Fingers crossed, I'll not need my next Zoly injection in January. After 15 months on it this time, I can't wait for my 'holiday'.

 

Great post, and a lift for us all, Si.

 

Hope to see you at The Flyer on Wednesday if you're coming.

 

 

All the very best,

 

 

George 

 

 

Edited by member 04 Dec 2016 at 13:28  | Reason: Not specified

User
Posted 04 Dec 2016 at 21:08
Top news Si and a win for Cambridge ( and AFC Wimbledon) , see you Wednesday , Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 04 Dec 2016 at 23:08
So Si Superman in the words of the song !I I Did It My Way!

You most certainly have and I for one take my hat of to you. From a rocky start you have taken control and not only flown your plane into calm waters but have made a safe landing.

Your choices have never been for the faint hearted and most would have bottled out years ago , many people I know thought WTF is he doing but I have always been behind you .

It is your Cancer and you have Done It Your Way. 🙃

Love and admire you loads. ❤️️

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 05 Dec 2016 at 00:24
Great news Si, your a man after my own heart, I can't wait to hear the new plan, maybe utilise the new machine they have and kick its butt.

All the best

Roy

User
Posted 05 Dec 2016 at 07:48
Great news, Si, long may it continue!
User
Posted 05 Dec 2016 at 09:33

I'm intrigued to hear what the next plan is. Lots hope it's not for quite some time yet though.
Good to see you last week, you are looking really well

Bri

 
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