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Advanced prostat cancer part 2

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User
Posted 17 Feb 2017 at 09:42

He's your guy alright Julie and I cannot ever imagine that he would want it any other way.

Eleanor's song choice is very apt.

But for me you are nothing short of Wonder Woman.

Make sure you look after you while your looking after Trevor, the boys and the doggies. They all need you very much

We can't control the winds - but we can adjust our sails
User
Posted 17 Feb 2017 at 10:34
Best wishes to you all
User
Posted 19 Feb 2017 at 19:45

Wonder how you and Trevor are doing Julie...sending every good wish and love and hugs and hopes.

Eleanor

xxx

User
Posted 20 Feb 2017 at 04:34

What a terrible time Trevor is having, he is 'your guy' and you will support and love him through it all. Stay strong Julie.

With love Molly xx

User
Posted 20 Feb 2017 at 21:57
What a turn around Oncology today and in walks the Wiz with the biggest smile on her face so drum roll please!

PSA down from 3188- to - 30552

ALP down from 494- to - 355

So ok I know pretty scary figures BUT we are going down and we are happy with those figures especially Trevor he is now on cloud nine and after the last week this is just what he needed.

His mouth and Jaw pain is continuing to improve and he is now able to eat slightly more solid food ( cooked him a shepherds pie and added carrot , parsnip, brussel sprouts into the mash ) sounds healthy doesn't it but sorry guys inthen added cheese 2 tons of butter and a splash of double cream even the kids ate it🤗

The Wiz thinks the growth in his jaw is probably extra bone growth, and I am going to roll with that. He has lost another 2 kilos but I am planing to get some more of my special mash down him.😍

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 20 Feb 2017 at 22:19

Brilliant news both! Well done.

Suggest we bottle the magic mash as well as bottling you. World problems sorted at a stroke.

Love and hugs and multiple whoops.

Eleanor

xxx

PS something odd is happening with the link to your recent posts - just goes to a 'page unavailable' message. Hope you haven't been Nominated!

User
Posted 20 Feb 2017 at 23:30

Please tell me that new PSA is a typo :-0

Turmeric in the shepherds pie, I hope????

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 20 Feb 2017 at 23:41
Sorry Lyn yes a typo 3052😄Although some would still think a typo

Sorry again Lyn the turmeric has long been abandoned so it's just Trevor power know

Eleanor I am in the famous loop so unless some one pushes me into the next page by way of replies I will be forever in the page not found mode. (Could be the story of my life)🙃

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 21 Feb 2017 at 08:11
Julie

I do not post that much but do read daily and frequently. Love coming from the Bazza.

User
Posted 21 Feb 2017 at 09:26

I am so chuffed for you both.

Any new person coming on here and seeing those scores would recoil in horror but for you (and us!) they are magical.

Down, down down !! Go for it Trevor.

PS. Maybe I'll be the one to tip you over the edge!!

We can't control the winds - but we can adjust our sails
User
Posted 21 Feb 2017 at 09:28

Nope. Apparently won't be me.

It's like playing one of those penny games at the funfair. Roll your penny down the slot and hope you'll tip it over

We can't control the winds - but we can adjust our sails
User
Posted 21 Feb 2017 at 09:29

Ah ha. I did it!!

We can't control the winds - but we can adjust our sails
User
Posted 21 Feb 2017 at 11:44

Dear Julie,

i am so pleased to see you both get some good news after all the trauma Trevor has been through.

Those results must be such a boost for you.

Super Trevor kicks ass yet again. Amazing!


Big Hugs from George & Lynn

B2PCa
User
Posted 21 Feb 2017 at 19:09
Hi Julie,

I'm so pleased the news has been better recently. Long may it continue.

Steve

User
Posted 21 Feb 2017 at 19:53

Great news Julie....

Bri

User
Posted 21 Feb 2017 at 20:48
Flipped and rolled Guys thank you all for your support over the last four years you really don't know how important you have all been seriously you are all mega to my well being 😘

You are all my safe haven , my outlet to the roller coaster ride that this disease wants to spin me on and it spins me quite often .

Just want to say a Huge Thank You to every one of you.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 13 Mar 2017 at 20:57

Julie is having trouble accessing the forum (her log in doesn't work so perhaps it is a glitch but it may be that the moderators are finally taking action to minimise the risk of us all laughing too much) but she has asked me to pass on the following:-

"Trevor has been blue lighted today with chest pains , sweating and blurred vision to Peterborough we are still waiting on blood results.

He had a appointment for a nuclear scan on Thur to investigate but things are escalating. I will update as soon as I'm able to.
Xx"

Carol at PCUK is working to resolve the problem and get Julie back with us asap but I have asked her to let me know what is happening in the meantime. T has been blue-lighted so many times before but I know we will all be worried by this news.

Edited by member 13 Mar 2017 at 22:02  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Mar 2017 at 21:22

Lyn, thanks so much for getting that message to us all.

Please pass on our love and best wishes to Julie and Trevor.

They are in our hearts, thoughts and prayers.

George & Lynn

B2PCa
User
Posted 13 Mar 2017 at 21:35
So sorry to see this :-(

Thinking of Julie, Trevor and their boys x

User
Posted 13 Mar 2017 at 21:47

Tried to message you Lyn but your inbox is full...

Thanks for this worrying update and for the message from Julie to me - typical of her to be concerned about others even as she is in dire straits herself. Just wish I could do something useful but all I can do is send my love and hugs and appreciation for all she is to all of us. Will keep hoping/praying for a miracle turn-around.

Hugs to you too. You are such a constant support on the forum - and beyond it clearly. Thanks for everything.

Eleanor

x

 
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