surreal

There are many men on here who will have had a similar dx to your OH. I can't really comment as I have had my prostate removed and had radiotherapy.

I do know that for a lot of men the hormone treatment your OH is on can work for many years and then there are other treatments. You can download the toolkit from the PCUK website that gives lots of useful information.

This is the most worrying time but believe me as you get more information it will become easier as you adapt to the new 'normal'. Please ask any questions, you will find the people on here to be very supportive.

Perhaps read the stories of others eg Siimons story or Yorkhulls ever decreasing circles, they should give you some hope

Bri

Edited by member 03 Jul 2014 at 09:14  | Reason: Not specified

Hi Senga,

Welcome to the forum but sorry that you find yourself here. Those first few months waiting for the full diagnosis are as you say surreal and very scary. OK its not the best diagnosis BUT and it is a big but there are many treatments available for your hubby. You didn't say what your Husbands PSA score was, there are quite a few of us on here in a similar boat to yourselves we call it (The mets club).

It has been just over a year since my Hubby was diagnosed he had a PSA of 13000 we had the usual wait for scans etc and all of the worry that comes with it. He has Mets on his ribs, spine, shoulder blades and his pelvis. His kidney and lymph nodes are also affected. With this diagnosis and combined with how ill he was at that time I thought he had only weeks to live.

His last PSA test was 15.2 so his treatment for now is working very well, he is much more mobile and not in the pain that he was in.  He is taking Bicalutamide and 4weekly infusions of Zometa.

There are many new drugs being developed all the time, as Bri has suggested the Tool Kit is very helpful . I see Si has also replied for you.

Stay as strong as you can, we are a very friendly bunch and for me personally the forum has been a life saver.

BFN

Julie X

Hi evryone,

thanks to all who replied to my first post.

Matt is 57

Since then we have found out the cancer is on his spine too. Matt has been put on Decapeptyl monthly hormone injections and has had two. In April his PSA was 13.3 and after his first injection and 21 days of Casodex in July it was down to 7.2 :)

We are going to the Beatson on the 26th of this month and he is being put forward for a clinical trial, the Stampede Trial, so fingers crossed he gets picked.

Does anyone have any suggestions of how to overcome the hot flushes brought on by the hormone injections or will they eventually pass

Thanks

Senga