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After the LRP

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User
Posted 15 Jul 2014 at 23:46
Hi all,

I'm booked for my LRP on 15th August via the Nuffield hospital funded through my works BUPA.

My pre op is 24th July, the day before I set off on my holiday.

BUPA cover the cost of the op, the pre op & consultations but not medication to take away with me. I was thinking of booking an appointment with my GP straight after the pre op to bring him up to speed & ask if he will prescribe me any meds etc on discharge from the Nuffield.

Presumably, he will need to give me a sick note too?

Any advice on what I'm likely to need or encounter? Pain killers, anti biotics, dressings? The incontinence nurse advised me to get oil free moisturiser as the pads are likely to cause me dry skin too. (I've got 12 weeks supply of pads being delivered to my house- goodness knows where I'm going to store them lol)

Thanking you,

Carlos

.

Life's a Marathon. Run in peace.
User
Posted 16 Jul 2014 at 00:59
Get a referral to the ED clinic, or mither your GP. Get ciallis (2.5mg or 5mg) to take daily to help blood flow around the nerves (assuming nerve sparing is possible, and ask for a pump to help get things moving. I've got the ciallis, but still waiting to see if I can get a pump prescribed after 14 weeks.

Paul
Stay Calm And Carry On.
User
Posted 16 Jul 2014 at 09:17
And don't forget you are entitled to free prescriptions on the NHS
User
Posted 16 Jul 2014 at 20:26

Carlos


I had LRP in April, 3 months ago and returned to work after 2 months. It's worth having a supply of paracetamol at home for when you come out. Also the operation can make you constipated and so a laxative ready at home is useful. I found Senna (a stimulant laxative suggested on the leaflet I was given) gave me abdominal cramps and that Normacol (a bulk laxative) was better combined with using some All Bran at breakfast and Activa prune yoghurt in evening. You are entitled to a prescription exemption certificate which lasts 5 years - this involves getting GP to sign a form available from the receptionist stating undergoing treatment for cancer.


I found sports briefs the best way of holding the catheter and pads in place.


Opinions differ on how soon the daily Cialis should be started after the operation. Mine was started 2 months after and seems to be helping. I have only recently been prescribed a pump and this is on order at my chemist.


Robert

User
Posted 17 Jul 2014 at 23:10

Carlos


Let us hope your next major problem is what to do with eleven and a half weeks worth of pads you do not need.


I was discharged with tramadol, 100 ml of liquid morphine and 30 anti clotting injections, some dressings for the drain wound, a second day bag to change after a week and 10 night bags (I needed 11 my catheter removal was put back a day) , which the wife did each night. I had already had a reaction to the tramadol in hospital and I took 2.5 ml of morphine as a precaution before going for that first motion and had an adverse reaction to it, so reverted to a pain killer that worked for me. We all react differently to surgery but I did not find the need to take regular pain relief.


As previous posts have some laxatives handy. Be aware some pain killers can cause constipation. My worst experience of pain was when trying to go for that first post op motion, it could have been abdominal cramps as Robert said,I was also using senna. Like Robert did the bran flakes and prunes, I could not drink the prune juice. Remember no forcing or straining when you go to the loo, I sometimes had blood and urine come out between the catheter and urethra, I was told it was fairly normal.  


I wore loose under pants and pyjamas just to keep the leg bag and pipe from getting tangled. 


The wife connected the night bag each night and disconnected in the morning, saves a bit of bending. The incontinence nurse suggested standing the night bag stand in a washing up bowl in case of accidents and a jug to empty the bag into so you do not contaminate the bag / pipe in the toilet when draining the bag. Some surgical gloves for the wife ?


I was quite surprised how long it took for the urine to be clear of blood, I was about three to four weeks after op, but no one was worried.


As an runner you are no doubt used to drinking plenty of fluids, but I struggled trying to drink enough water, but found cordials and a splash on tonic water in the water made it more palatable.


We must lucky in this area My ED appointment was about 6 weeks after the op and I got the pump 3 weeks later.


10 weeks post op life is almost back to normal, Just the ED left to sort but life is fun trying.


Have a great holiday, look forward to hear good news from you in August.


Thanks Chris


 


 


 

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User
Posted 16 Jul 2014 at 00:59
Get a referral to the ED clinic, or mither your GP. Get ciallis (2.5mg or 5mg) to take daily to help blood flow around the nerves (assuming nerve sparing is possible, and ask for a pump to help get things moving. I've got the ciallis, but still waiting to see if I can get a pump prescribed after 14 weeks.

Paul
Stay Calm And Carry On.
User
Posted 16 Jul 2014 at 09:17
And don't forget you are entitled to free prescriptions on the NHS
User
Posted 16 Jul 2014 at 18:23

Trebor Mints,... although the only wind I had was from the open window next to my bed in the hospital. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif ..Sid. 

What matters is not the years in your life, but the life in your years!
User
Posted 16 Jul 2014 at 20:26

Carlos


I had LRP in April, 3 months ago and returned to work after 2 months. It's worth having a supply of paracetamol at home for when you come out. Also the operation can make you constipated and so a laxative ready at home is useful. I found Senna (a stimulant laxative suggested on the leaflet I was given) gave me abdominal cramps and that Normacol (a bulk laxative) was better combined with using some All Bran at breakfast and Activa prune yoghurt in evening. You are entitled to a prescription exemption certificate which lasts 5 years - this involves getting GP to sign a form available from the receptionist stating undergoing treatment for cancer.


I found sports briefs the best way of holding the catheter and pads in place.


Opinions differ on how soon the daily Cialis should be started after the operation. Mine was started 2 months after and seems to be helping. I have only recently been prescribed a pump and this is on order at my chemist.


Robert

User
Posted 17 Jul 2014 at 23:10

Carlos


Let us hope your next major problem is what to do with eleven and a half weeks worth of pads you do not need.


I was discharged with tramadol, 100 ml of liquid morphine and 30 anti clotting injections, some dressings for the drain wound, a second day bag to change after a week and 10 night bags (I needed 11 my catheter removal was put back a day) , which the wife did each night. I had already had a reaction to the tramadol in hospital and I took 2.5 ml of morphine as a precaution before going for that first motion and had an adverse reaction to it, so reverted to a pain killer that worked for me. We all react differently to surgery but I did not find the need to take regular pain relief.


As previous posts have some laxatives handy. Be aware some pain killers can cause constipation. My worst experience of pain was when trying to go for that first post op motion, it could have been abdominal cramps as Robert said,I was also using senna. Like Robert did the bran flakes and prunes, I could not drink the prune juice. Remember no forcing or straining when you go to the loo, I sometimes had blood and urine come out between the catheter and urethra, I was told it was fairly normal.  


I wore loose under pants and pyjamas just to keep the leg bag and pipe from getting tangled. 


The wife connected the night bag each night and disconnected in the morning, saves a bit of bending. The incontinence nurse suggested standing the night bag stand in a washing up bowl in case of accidents and a jug to empty the bag into so you do not contaminate the bag / pipe in the toilet when draining the bag. Some surgical gloves for the wife ?


I was quite surprised how long it took for the urine to be clear of blood, I was about three to four weeks after op, but no one was worried.


As an runner you are no doubt used to drinking plenty of fluids, but I struggled trying to drink enough water, but found cordials and a splash on tonic water in the water made it more palatable.


We must lucky in this area My ED appointment was about 6 weeks after the op and I got the pump 3 weeks later.


10 weeks post op life is almost back to normal, Just the ED left to sort but life is fun trying.


Have a great holiday, look forward to hear good news from you in August.


Thanks Chris


 


 


 

 
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