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User
Posted 17 Jul 2014 at 20:13

I would like to ask those who know about the effects of Cialis whether my understanding of its effect is correct or not. I was prescribed a 5mg tablet per day a month or so ago. My understanding was that essentially the drug is taken to improve blood flow to areas where damage has occurred during surgery and in particular nerve damage. However, it can also ‘provide’ an erection. My Dr. told me that with manual/mental stimulation an erection was possible when taking 5mg per day. However, from reading other threads on this forum I am lead to understand that 5mg Cialis is insufficient to ‘provide’ an erection. Certainly, in the month or so since I started taking Cialis I have not experienced an erection yet.

 

I put ‘provide’ in commas because I went to see my Dr. again two days ago and discussed matters with him. I thought, from what I had read on this forum, that a 20mg tablet would ‘provide’ an erection. My Dr. Tells me this is not so. Cialis doesn’t give one an erection with or without stimulation. Cialis only closes off the escape of blood from the area in question. In other words, it doesn’t give one an erection; it allows the erection to persist. That is what I understood him to say at any rate. Is he right?

 

I have a small number of 20mg Cialis tablets and I will take the first tomorrow in place of my normal 5mg tablet. Can someone tell me what I can expect please? My surgeon tells me he was able to spare nerves on one side of my prostate when he removed it 10 weeks ago. Perhaps I’m expecting too much too quickly?

 

When I mentioned a pump my Dr. totally rejected it saying that there are other better methods of obtaining an erection and a pump should be a final thought.

User
Posted 20 Jul 2014 at 21:59

IIWU

I would try 2 Cialis tablets. And see what develops. I have been plying around with the meds like they are smarties for a few months now. with mixed, ands surprising results. 2 x 5mg Cialis produced a good useable erection, sufficient to prop up the duvet for nearly 2 hours. :-)

Just need someone to use it on!!!!!!!!! beware loose women in anywhere and Duncote…………………….

dave

Edited by member 20 Jul 2014 at 22:02  | Reason: Not specified

User
Posted 22 Jul 2014 at 10:50
To Changehappens,

sorry for the delay in replying. The new site is not CB55 friendly so I am not here as often add I used to be.

My robotic op was 2 May 2013. Nerve sparing both sides as caught early so no need to remove lots of me.

My first stirring or twitching was on 26 May. A definite tensing and lifting slightly from the vertical (downwards pointing vertical ;-) ) to almost 45 degrees to the vertical. And a thickening.

I am on 5mg a day Cialis for circulation, and 20mg Viagra for an event. The Cialis pears to suit me better, and when I take 2 of them I get a good useable erection. That said on some occasions I have managed a useable erection without medication just some thoroughly enjoyable stimulation, and it's been quite capable of being used. :-)

I also have used a pump quite a bit especially early on2 months post op. I could and should have used the pump more but depression and too many beers probably held me back. That said, 6 months post op, around November 2013, I got over the depression and although I could use the pump more, I am managing quite well without it.

There are several keys to successfully regaining erection function IMHO.

Plenty of manual stimulation whenever you can as soon as possible after your operation. Plenty plenty of playing with it.

Meds, Cialis at least.

An enthusiastic caring and patient partner who works at it with you and makes you sufficiently comfortable and relaxed that if on some occasion it does not work, it does not matter because it might work tomorrow or later that day?

I masturbate to dry orgasm at least once every day. One day just for the hell of it I managed 3 x. God, I was knackered that evening! But very happy. And immediately after orgasm the penis is at it's best for penetration, so time to put a band on and have even more fun.

HTH someone

Dave

User
Posted 22 Jul 2014 at 22:31

To Colwickchris

 

Hi, my first surgeon told me that nerve sparing surgery would not be possible for me. High Gleason score/high percentage etc. There was a problem though with the DaVinci robot in my local hospital and the first surgeon, realising that time was of the essence, referred me to another surgeon at Addenbrookes which is where my operation took place. The second surgeon was/is a vastly more experienced surgeon and he and his team decided that nerve sparing was indeed possible on one side.

 

So I did, by very good fortune, received nerve sparing surgery and of course I want to do my very best to ensure that the surgeons wonderful efforts on my behalf were not in vain. I do realise that it will take time though and the second realisation is that the surgery saved my life and has probably given me a good few more years so I absolutely cannot and am not complaining.

 

Steve

 

 

 

 

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User
Posted 17 Jul 2014 at 22:52
As I understand it, a pump can help in stimulating the blood supply and eventually the need to go without one. I rang my GP on Wednesday as requested, but despite leaving my number, have not had a call back re being prescribed a pump. Since being prescribed the 5mg cialis, I can see signs of enlargement, but nothing happening erection wise.

However, the continence is improving. Only one pad all day yesterday. More today, but played golf. Much less leakage though when active. Hoping to be totally dry by the end of October.

Stay Calm And Carry On.
User
Posted 18 Jul 2014 at 19:34
paul and I saw the nurse who deals with ED at our doctors yesterday

our health authority is one that will only prescribe 4 cialis tablets a month

when paul had 1st prescription from hospital he was told to break tablet in half and take 10mg twice a week

ED nurse was horrified she said that to get an erection you have to take 20mg at least and has also said if that doesn't work then try taking 40mg eg 2 tablets

also might need to take a combination she has been dealing with ED after RP for over 20 years and said all men are different

what might work for one wont for another

but will all meds she said that they won't work without stimulation

we asked about a pump she said that it was better to use meds 1st and it would be trial and error to find what worked

User
Posted 20 Jul 2014 at 10:27
Four weeks now after RP surgery and a few days ago developed lower back ache hardly noticeable during the day but intense enough at night to keep me awake. Infection l thought or worse still, the cancer had spread to my bones! Then l read the leaflet in the cialis box and discovered a side effect can be back pain. Stopped taking the pills yesterday and last night there was almost no discomfort. So looks like cialis was the reason for my back ache. Will give the tablets a miss for time being as a good night's sleep is more important to me at this relatively early time after surgery. Anyone else experienced similar?
User
Posted 20 Jul 2014 at 10:52
I started taking the my 5 mg tablets in the evening, and suffered leg pain which kept me awake. Eventually, I found taking them in the morning gave no problems at all.
Stay Calm And Carry On.
User
Posted 20 Jul 2014 at 11:06

Interesting comment sixfoottwo,

I was prescribed Cialis 5mg at just over two weeks post op....

Initially I started taking them in the evening and found they gave me quite bad acid reflux.....

I switched to taking them in the morning and have had no more problems with side effects..... There was no specific instruction as to what time of day I had to take them other than, 'take one a day'

User
Posted 20 Jul 2014 at 21:59

IIWU

I would try 2 Cialis tablets. And see what develops. I have been plying around with the meds like they are smarties for a few months now. with mixed, ands surprising results. 2 x 5mg Cialis produced a good useable erection, sufficient to prop up the duvet for nearly 2 hours. :-)

Just need someone to use it on!!!!!!!!! beware loose women in anywhere and Duncote…………………….

dave

Edited by member 20 Jul 2014 at 22:02  | Reason: Not specified

User
Posted 21 Jul 2014 at 12:36

nurse said best to take tablets on an empty stomach
so Im wondering if this is why you dont get side effects if you take them in morning

countryboy are you on 5mg a day?

Edited by member 21 Jul 2014 at 12:37  | Reason: Not specified

User
Posted 21 Jul 2014 at 16:06
Hi, l know it's very early days for me after RP but am already convinced l will never get another erection! But very encouraging to read your experience. May l ask how long ago you had your treatment and was it surgery.
User
Posted 21 Jul 2014 at 16:10
Sorry, my question is to Countryboy55. Still trying to getbthe hang of this site!
User
Posted 21 Jul 2014 at 17:31
Well it'll be a year August 2nd since he had the RP...but then we also had all the problems afterwards which I've already put on here..so he wasn't given Cialis until January of this year! 5mg (although in the toolkit it says 10mg) ..nothing happened. Went to see GP and he gave him 20mg...again..nothing. Due to Atrial Fibrillation of the heart and being on warfarin pump and injections are totally ruled out. We were beginning to despair...and I had to keep digging him out of black holes. Saw ED nurse and she prescribed Muse which comes with an applicator that you push the pellet down the penis with....250mg..didn't work. 500mg. didn't work. 1000mg..success..albeit a 'soft' erection. We were back for PSA results on Friday (less than 0.02 undetectable - next appointment now 6 months time instead of 3)..and was talking to the practitioner at the hospital. She said that it is trial and error...and to try Muse WITHOUT taking the 5mg Cialis every day. See how that went. Another thing to try was using the 20mg Cialis (appears it stays in the body for 36 hours) eventually WITHOUT the Muse. He's going to continue on both for the moment (it seems to get better each time)..THEN try dropping the Cialis and seeing what the results are....then going to try the 'on demand' 20mg.
User
Posted 21 Jul 2014 at 20:47

 

Sorry not to have contributed to this but we've had no internet access since the big storm last weekend. It (internet access) came back earlier this evening.

 

I took the 20mg Cialis on Friday. Nothing. We tried our best too!

 

Perhaps there will need to be some nerve repair/regeneration or whatever it is before we get the result we are looking for. I hear what has been said about taking higher and higher doses but my doctor told me this simply won't work. My plan is to take another 20mg Cialis next month to see if there is any change. If anyone has experience of this and knows better please shout up,

 

Steve

User
Posted 21 Jul 2014 at 20:50
Lyn says it can take 1 to 2 years. I think patience is the key. At least I can still play golf! Well, take my clubs for a walk anyway.
Stay Calm And Carry On.
User
Posted 22 Jul 2014 at 10:30

 

Yes, I've been re-reading some earlier posts and saw the one by Lyn saying that most people see improvement between 1 and 2 years. However, some do see improvement earlier than that, we are all different after all. 

 

I'm sure I also read somewhere a report that suggested that taking Cialis improved their incontinence. I don't think it has for me though.

 

Steve  

User
Posted 22 Jul 2014 at 10:50
To Changehappens,

sorry for the delay in replying. The new site is not CB55 friendly so I am not here as often add I used to be.

My robotic op was 2 May 2013. Nerve sparing both sides as caught early so no need to remove lots of me.

My first stirring or twitching was on 26 May. A definite tensing and lifting slightly from the vertical (downwards pointing vertical ;-) ) to almost 45 degrees to the vertical. And a thickening.

I am on 5mg a day Cialis for circulation, and 20mg Viagra for an event. The Cialis pears to suit me better, and when I take 2 of them I get a good useable erection. That said on some occasions I have managed a useable erection without medication just some thoroughly enjoyable stimulation, and it's been quite capable of being used. :-)

I also have used a pump quite a bit especially early on2 months post op. I could and should have used the pump more but depression and too many beers probably held me back. That said, 6 months post op, around November 2013, I got over the depression and although I could use the pump more, I am managing quite well without it.

There are several keys to successfully regaining erection function IMHO.

Plenty of manual stimulation whenever you can as soon as possible after your operation. Plenty plenty of playing with it.

Meds, Cialis at least.

An enthusiastic caring and patient partner who works at it with you and makes you sufficiently comfortable and relaxed that if on some occasion it does not work, it does not matter because it might work tomorrow or later that day?

I masturbate to dry orgasm at least once every day. One day just for the hell of it I managed 3 x. God, I was knackered that evening! But very happy. And immediately after orgasm the penis is at it's best for penetration, so time to put a band on and have even more fun.

HTH someone

Dave

User
Posted 22 Jul 2014 at 19:31
To Countryboy55.

Thank you for the response Dave and l am grateful for the information. Like you l was able to have nerve sparing surgery on both sides and l guess l shouldn't get anxious as it will be only four weeks on Friday since the op. I must remind myself that the purpose of the op is to save my life and that all else is secondary. Take care and best wishes, David

(I was playing around with the icons at the side of your message to see what they mean and may have sent "report message." This was done in error and my appologies if it causes any inconvenience.)

User
Posted 22 Jul 2014 at 19:59
Steve

Our ops were only a couple of days apart, mine was non nerve sparring and from memory yours was the same, correct if I am wrong, I saw my ED consultant a few weeks later and he prescribed Sildenafil and a pump. I saw my surgeon a week later and he said the Sildenafil would not work, so far I have only tried the Sildenafil a couple of times and it felt like my head was going to explode. The pump certainly gives a good erection but lacks strength at the base and is obviously not the same as pre op. I have seen some reports that "suggest" the Sildenafil will work after non nerve sparring surgery but it was a very low percentage of patients surveyed. So is Cialis expected to work after non nerve sparring surgery.

Thanks Chris

User
Posted 22 Jul 2014 at 21:56

In November 2013 I sent to see an ED specialist at Reading, wjere I and my op. Dr ****. Site rules prevent me naming him, but, what a lovely lovely man.

HE explained to me that it can take up to two years for anyone to recover any function after PCa surgery, and you will read from Lynne's posts that her John is still improving after 3 years plus.

Dave

Edited by member 23 Jul 2014 at 06:31  | Reason: Not specified

User
Posted 22 Jul 2014 at 22:31

To Colwickchris

 

Hi, my first surgeon told me that nerve sparing surgery would not be possible for me. High Gleason score/high percentage etc. There was a problem though with the DaVinci robot in my local hospital and the first surgeon, realising that time was of the essence, referred me to another surgeon at Addenbrookes which is where my operation took place. The second surgeon was/is a vastly more experienced surgeon and he and his team decided that nerve sparing was indeed possible on one side.

 

So I did, by very good fortune, received nerve sparing surgery and of course I want to do my very best to ensure that the surgeons wonderful efforts on my behalf were not in vain. I do realise that it will take time though and the second realisation is that the surgery saved my life and has probably given me a good few more years so I absolutely cannot and am not complaining.

 

Steve

 

 

 

 

User
Posted 30 Jul 2014 at 23:23
Originally Posted by: Online Community Member
IIWU

I would try 2 Cialis tablets. And see what develops. I have been plying around with the meds like they are smarties for a few months now. with mixed, ands surprising results. 2 x 5mg Cialis produced a good useable erection, sufficient to prop up the duvet for nearly 2 hours. :-)

Just need someone to use it on!!!!!!!!! beware loose women in anywhere and Duncote…………………….

dave

Can you just give me directions to Duncote???

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Jul 2014 at 23:38
Originally Posted by: Online Community Member
I would like to ask those who know about the effects of Cialis whether my understanding of its effect is correct or not. I was prescribed a 5mg tablet per day a month or so ago. My understanding was that essentially the drug is taken to improve blood flow to areas where damage has occurred during surgery and in particular nerve damage. However, it can also ‘provide’ an erection. My Dr. told me that with manual/mental stimulation an erection was possible when taking 5mg per day. However, from reading other threads on this forum I am lead to understand that 5mg Cialis is insufficient to ‘provide’ an erection. Certainly, in the month or so since I started taking Cialis I have not experienced an erection yet.

I put ‘provide’ in commas because I went to see my Dr. again two days ago and discussed matters with him. I thought, from what I had read on this forum, that a 20mg tablet would ‘provide’ an erection. My Dr. Tells me this is not so. Cialis doesn’t give one an erection with or without stimulation. Cialis only closes off the escape of blood from the area in question. In other words, it doesn’t give one an erection; it allows the erection to persist. That is what I understood him to say at any rate. Is he right?

I have a small number of 20mg Cialis tablets and I will take the first tomorrow in place of my normal 5mg tablet. Can someone tell me what I can expect please? My surgeon tells me he was able to spare nerves on one side of my prostate when he removed it 10 weeks ago. Perhaps I’m expecting too much too quickly?

When I mentioned a pump my Dr. totally rejected it saying that there are other better methods of obtaining an erection and a pump should be a final thought.

It will be a few days ago now but my guess is that you took the 20mg and got nothing? Try not to have too high expectations; the biggest inhibitor to you regaining a healthy sex life is going to be disappointment and anxiety.

Yes your doctor is correct. Cialis works differently to Viagra and Levitra. All three depend on you being in the mood. None can give you an erection on their own, but how they assist is different. John has tried taking 4 x 5mg but it didn't really give him the start he needed; that was quite some time ago so perhaps he should try it again now that he gets natural erections just to see if 20mg helps with longevity.

I am depressed at your GP's ignorance of the benefits of the pump. I may raffle ours off as a fundraiser :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jul 2014 at 01:26
I will post results on my own thread, but I have a form from Christie's to take to my GP which should help me to get a pump. Appointment is next Wednesday am. Here's hoping!!!! And let's hope it will do the business!!
Stay Calm And Carry On.
User
Posted 23 Dec 2022 at 06:42

I am in my early 50's and suffered with erectile dysfunction and benign prostatic hyperplasia the last few years. I love Cialis. After ONE WEEK, I was urinating normal, and not waking in the middle of the night to go! After two weeks I was getting erections like a teen again, middle of the night, mornings and when I wanted sex. I couldn't be happier, no more pain, more sex and a happier wife - https://1rx-pharmacy.com/c2831/cialis.html

Edited by member 19 Jul 2023 at 19:38  | Reason: Not specified

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