Hello got a few ???

User

Posted 08 Aug 2014 at 12:03

Hello, my name is J. and I am 60,,,Prostate Biopsy on Oct 2013, GL 3+3=6 2/10. MRI Pelvis Prostate, T 1,,, A. S. advised,,, psa then was 7.5,,,,7.3,,,,7.3,,,,7.1 and this month 7.0 ,,,, DRE this month ok my GP did it,

My Sp. N. called and said I have to get another Prostate Biopsy,,, as its a year since the last one,,,

Should i get it since my psa is falling i thought that meant things were not getting worse???

after the 1st biopsy I ended up with an urgency problem and still have it, (coincidence maybe.) what causes this urgency its a lot worse now, is there any test,s or anything i can do to help it???

my spec nurse is not very nice or helpful ???, so not sure where to turn for help???

I know there are urologists and doctors above him but i have never seen them,,,my GP is great,

I hope someone here can advice me. Thanks for any help, J.

User

Posted 09 Aug 2014 at 11:00

Hi J,

Someone has asked a similar question recently about frequency and urgency of peeing.

What has helped a lot of us is taking TAMSULOSIN capsules.

You will have no problem getting a prescription for them, and they do work.

All the best,

George

B2PCa

User

Posted 09 Aug 2014 at 11:27

J, you will see a doctor to have your biopsy done so you can talk to him or her then. Often, the urology department only has one specialist nurse so might not be possible to swap but you could tell the doctor that you find the nurse unhelpful and would like to see a doctor each time instead.

What will help the urgency depends on what is causing the urgency and you need that new biopsy etc to have an idea of the cause. If your prostate is growing and pressing on the urethra or bladder then they might advise you to take tablets to reduce the size of the prostate. If the muscles around your bladder are not working correctly, they may give you tablets to relax the muscles. They might suggest a small op to make your urethra wider or they could advise you that AS is no longer the best idea and that it is time to think about some treatment for the PCa. But all of this is guesswork until you get those checks done!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 09 Aug 2014 at 13:21

Hello J.

Active surveillance is just that, Active. It should mean that you have regular blood tests and at least yearly biopsy other wise they cannot "Actively" monitor you.

My husband was on AS for a year before he needed to make a decision but it was because of those tests that he and the consultant knew what was happening.

If you were left with urgency problems following your previous biopsy, could it possibly have been caused by an infection. Were you given antibiotic following the biopsy?

You do need to get that biopsy done and dusted so that you at least know where stand.

After all, where are you now - worrying over something that may not be!

Whatever you decide, good luck and best wishes

Edited by member 09 Aug 2014 at 13:22 | Reason: Not specified

We can't control the winds - but we can adjust our sails

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User

Posted 08 Aug 2014 at 12:52

Hi J,

It isn't always a good idea for us strangers to give advice because we don't know all your details & circumstances. However, I think 3 things to consider:

- if you don't have a regular biopsy then you are not really on Active surveillance. AS is so called because it is active, so a regular biopsy and scans are part of making sure you remain healthy. If you don't get the regular tests then really you are on watchful waiting (WW) which is much more passive because it is the equivalent of crossing your fingers and hoping for the best.

- if your urgency is worse now than it was when you had the original diagnosis then you definitely need to know why ... the urgency might be because the prostate is getting larger

- you can't always rely on PSA to tell exactly what is going on inside. My father in law was on WW and his PSA went from 23 down to 16 and then eventually dropped to 2. He was ecstatic and so were his doctors - he put it down to all the fish he was eating. No-one realised the cancer had spread to his kidneys, liver etc until the day before he died.

The chances are that your G3+3 cancer is just tootling along slowly and not really doing anything very much but you can only know that for certain by having regular biopsies & scans.

Good luck

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 09 Aug 2014 at 10:00

Originally Posted by: Online Community Member

Hi J,

you can't always rely on PSA to tell exactly what is going on inside. My father in law was on WW and his PSA went from 23 down to 16 and then eventually dropped to 2. He was ecstatic and so were his doctors - he put it down to all the fish he was eating. No-one realised the cancer had spread to his kidneys, liver etc until the day before he died.

Thanks for your reply, LynEyre, i will be getting my biopsy after reading that, but what will help the urgency?

and can i change my Sp. Nurse, if so how do i go about it? thanks again J...

User

Posted 09 Aug 2014 at 11:00

Hi J,

Someone has asked a similar question recently about frequency and urgency of peeing.

What has helped a lot of us is taking TAMSULOSIN capsules.

You will have no problem getting a prescription for them, and they do work.

All the best,

George

B2PCa

User

Posted 09 Aug 2014 at 11:27

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 09 Aug 2014 at 13:21

Hello J.

Active surveillance is just that, Active. It should mean that you have regular blood tests and at least yearly biopsy other wise they cannot "Actively" monitor you.

My husband was on AS for a year before he needed to make a decision but it was because of those tests that he and the consultant knew what was happening.

If you were left with urgency problems following your previous biopsy, could it possibly have been caused by an infection. Were you given antibiotic following the biopsy?

You do need to get that biopsy done and dusted so that you at least know where stand.

After all, where are you now - worrying over something that may not be!

Whatever you decide, good luck and best wishes

Edited by member 09 Aug 2014 at 13:22 | Reason: Not specified

We can't control the winds - but we can adjust our sails

User

Posted 11 Aug 2014 at 12:53

Originally Posted by: Online Community Member

J, you will see a doctor to have your biopsy done so you can talk to him or her then.

What will help the urgency depends on what is causing the urgency and you need that new biopsy etc to have an idea of the cause.

Thank you Lyn, Johsan, and George, for your help, i got an appointment today for psa Dre and Biopsy at the end of sept,

When i get the results then i hope they can help the urgency prob, as its getting more urgent,?

I will have more ??? then, so do i just carry on here or do i have to start a new post elsewhere?

Thanks again for your help, J...

User

Posted 11 Aug 2014 at 13:04

You can do either J

If the urgency is causing you a lot of problems you could pop along to your GP to ask whether you could have a prescription for xatral or something like that. He might want to check with your specialist first.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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