I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error
<12

Petition for National Prostate Cancer Screening Started

User
Posted 04 September 2015 23:24:50(UTC)

Yes a very interesting article and a clear indication that screening is beneficial all round.

Thanks for the link Roy

User
Posted 06 May 2016 07:41:36(UTC)

Hi everyone

6 months on.

I am almost bedridden now. Pain is bad but pain meds help.
After numerous communications with government departments, PCUK, Public Health England, National Screening Committee and other bodies, it was clear that no national screening for PCa would be put in place until there was a more accurate test.

After I started the petition a company from Cambridge contacted me about a test they had developed. I had a friend who was a Clinical Biologist lecturer at UClan. I introduced them which formed the collaboration with researchers at the university and the company from Cambridge. Since then they have won a biotech award from PitchPalace which is run by the Duke of York and recently they have begun crowdfunding for the first phase of their objectives which is to produce a home test kit for consumers See more here Myself and my wife are featured in their video.
The second and third phase will be aimed at clinical trials for NHS approval. 

I personally, have been in the press, on radio and TV talking about my story and the new test.
I was also involved with PCUK with their PSA Consensus

The links below should give you all the information you may wish to know.

BBC Radio Lancashire interview (includes Dr Carole Rolph and myself)

BBC North West Tonight

My time is running out but this test may just be something that could  help many thousands of men avoid this awful disease in the future.

Best wishes to you all
Kevin

Thanked 7 times
User
Posted 31 August 2015 23:24:48(UTC)

Good Lord!!! I have only been away a few days!

Lovely friends who jumped in to defend, there was no need. I am neither offended nor hurt by Quantum's post. Debate is good - it gets people thinking rather than just going along with whatever they last read in their newspaper. If one person gets a PSA test as a result of the petition, that is progress for that man. If one more GP begins to understand how and when to offer PSA tests - and when to refer on - that is progress for many men.

For the record Q, I had most of one breast removed years ago, being too young for the screening programme :-( I had also had my cervix removed by the time I was old enough for the national smear tests. Both John and my dad had low PSA and probably wouldn't have been picked up in screening. So no, I don't support the idea of a national screening programme for PSA which would undoubtedly have a lower age limit making it less likely for men under that age limit to get a test when they need it. There are better-worded petitions out there offering our politicians a more coherent argument and part solution - including one shared on our forum last year which perhaps you all signed?

What I do believe vehemently in and will continue to try to contribute towards is raising money to fund research into a better understanding of this cancer - differentiating between the tigers and pussycats, the end of the postcode lottery on life-prolonging drugs, and better mental health services for men affected by the disease or its side effects. I would like to see more doctors disciplined for shocking practice and more education and training for the good doctors to get even better. I channel my thoughts and hopes into action - we fundraise hard as a family and I think between the London marathon and our last couple of charity balls we have raised a few thousand pounds for PC research. This is in addition to a number of other charities we support. Changing the world takes so much more than a few angry words on here - fortunately, I know that Quantum is a man of action who does his own bit to change things so I can stomach a lashing from him without becoming broken 😢

Wishing you all a peaceful and calm night x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


Thanked 5 times
User
Posted 01 September 2015 16:07:46(UTC)

Really interesting and controversial debate ! I signed the petition, I know the pros and cons of the argument and admit to signing for very emotional and some might argue, not entirely rational reasons, that being the loss of my partner nearly a year ago from advanced PCa, too late by the time symptoms began. I bet Neil wouldnt have gone for a PSA test even if it was on offer because he wasnt bothered about his health, many are the same. My neighbour was accidentally discovered to have PCa when his cardiologist happened to say 'let's do a PSA test along with all the cardiology tests.' That saved my neighbour's life. I am so aware when I listen to radio phone ins, how many respondants have approached their GP's, with symptoms of concern, to be discouraged from any further cancer tests and when they are finally investigated, the disease is there and spreading. No test or regime will ever be perfect, but if it's all you have got, I don't blame people wanting to go for it.

I recently responded to an article in the Daily Mail I happened to read ;  a man who had an increased PSA, had a TURP on recommendation of his urologist, no cancer found, but his complaint was that the repercussion of the TURP had serious side effects for him. This was next to an article by Micheal Mosely about unneccessary health tests. In my letter, which they published, I did comment that unfortunate though the repercusssions of the Turp was for the writer, at least he was still alive, and my partner damn well isnt !!

Fiona. ( Will have to rename myself ' Angry of Bristol' at this rate ! )

Thanked 5 times
Show Most Thanked Posts
User
Posted 05 September 2015 08:03:47(UTC)

Roy thanks for the link. No doubts it will stir the emotions. Also from past experience those strongly opposed to screening will blast holes through it, perhaps via the opportunistic aspect. However I leave that to them.

From my humble PCa guy view I read it as screening is better than opportunistic but it's not saying it's better than the current voluntary GP system, however full of holes, we have in place now is it?

Just my view folks.

Ray

User
Posted 06 May 2016 07:41:36(UTC)

Hi everyone

6 months on.

I am almost bedridden now. Pain is bad but pain meds help.
After numerous communications with government departments, PCUK, Public Health England, National Screening Committee and other bodies, it was clear that no national screening for PCa would be put in place until there was a more accurate test.

After I started the petition a company from Cambridge contacted me about a test they had developed. I had a friend who was a Clinical Biologist lecturer at UClan. I introduced them which formed the collaboration with researchers at the university and the company from Cambridge. Since then they have won a biotech award from PitchPalace which is run by the Duke of York and recently they have begun crowdfunding for the first phase of their objectives which is to produce a home test kit for consumers See more here Myself and my wife are featured in their video.
The second and third phase will be aimed at clinical trials for NHS approval. 

I personally, have been in the press, on radio and TV talking about my story and the new test.
I was also involved with PCUK with their PSA Consensus

The links below should give you all the information you may wish to know.

BBC Radio Lancashire interview (includes Dr Carole Rolph and myself)

BBC North West Tonight

My time is running out but this test may just be something that could  help many thousands of men avoid this awful disease in the future.

Best wishes to you all
Kevin

Thanked 7 times
User
Posted 06 May 2016 11:38:14(UTC)

Hi Kevin,Thank you for all your efforts with this particularly when you are severely effected by PCa . I have contributed to this as two generations have had it and two to possibly come....

Does anyone know what happened to the urine test(EN2?) . It was trialled by Surrey 2 years ago and under development by Zeus Labs. It was originally posted March 2014 by Cityboy,also called Kevin (don't know if you are one and the same.)

Best wishes to you in your continuing fight,Elajai .

User
Posted 06 May 2016 17:25:17(UTC)

Thanks Kevin for all your efforts to help others, you are a inspiration to me and many others,that when faced with such a bleak out look. that you have the determination to try to make things happen for those  yet to face this awful disease. yours Andy

Thanked 1 time
User
Posted 06 May 2016 18:20:46(UTC)

Kevin

I am sorry to hear things are not going well. Very well done for all your efforts, although I understand and respect the arguments and impracticalities of a screening programme, is it not better to have an over treated husband, father, brother, rather than a prematurely dead husband, father, brother. It is not great living with incontinence and ED but at least I am still here.

If only one person's life is saved as a result of your media appearances and publicity then you and we can be very proud of your efforts. 

As people have said getting the message across is the answer, PCUK launched their new advert a few weeks ago and in my opinion it does not get the message across, using an actor who has portrayed a light hearted character seems to be the wrong choice. There are many men's and women's stories on here that would be more hard hitting and get the message across.

Thanks Chris

 

 

 

Thanked 2 times
User
Posted 07 May 2016 16:01:22(UTC)

I agree with Chris -the advert is terrible and more likely to put men off being tested, Our son has already decided not to have his psa assessed despite his father's consultant's advice, Please sign the crowdfunding appeal if you can.

User
Posted 08 May 2016 17:53:27(UTC)

Who is the actor, and where can the advert be seen please?

dave

Be content with your choice of treatment at the time you make it. Then make the best of every minute, every hour, every day.
User
Posted 08 May 2016 19:17:45(UTC)

I have to say I have 'liked' the new advert a couple of times on facebook just to get it shared a bit , but in my opinion ( and I'm terribly sorry PCUK who have been such a tremendous help ) it is quite terrible. I think it achieves virtually nothing whatsoever. I fail to see it even puts a point across ???




If life gives you lemons , then make lemonade
User
Posted 08 May 2016 20:48:51(UTC)
CB

The actor is Jeremy Swift who played a brilliant but rather humourous butler in Downton Abbey and The Durrell's.

The advert can be seen on youtube and I think there is a link on the site.

Thanks Chris
User
Posted 09 May 2016 07:18:40(UTC)

Thanks for that Chris C, found it on U-Tube.

See your point Chris J.

No doubt someone thought it was a good idea. Comedy, well written considering it uses the "awkward" terminology that might have been used by a parent to a child 30 years or so ago.

Most parents I know use the name of the body part when discussing health with their kids these days.

The message is in there somewhere, among the comedy.

If it makes one man checkout online, and saves one man's life, it will have done some good.

dave

Be content with your choice of treatment at the time you make it. Then make the best of every minute, every hour, every day.
User
Posted 09 May 2016 12:02:34(UTC)

It is also on tv between the football matches on Saturday. Sorry I was more impressed with Jeff's walk for Pca with friends.

User
Posted 09 May 2016 17:55:32(UTC)
I was chatting with PCUK Amy and Merry on Friday about some stuff I have worked with them on that is being released this week, heavy reading stuff released to coincide with the National Dying Matters week.

They asked me if I had seen the advert and if so what I thought of it. I did say that In my personal opinion it was pretty awful. I suppose trying to get a very serious message over using comedy will always be a tall ask especially if they are aiming this at 2 or more generations. I just can't see a son talking to his Dad in such an awkward and nerdy way. However, if it gets watched and causes this kind of debate in pubs, clubs or at home and in the workplace then it will at least have raised awareness.
xx
Mo
Thanked 1 time
User
Posted 09 May 2016 18:46:52(UTC)

I quite like it. Younger people that have had to experience 'that conversation' will recognise it and if it makes our children more aware then they might hassle their dads or grandads to get tested? Is it any worse than the posters in ladies' toilets?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 09 May 2016 21:24:30(UTC)
My girls saw the advert and both commented that they thought it was quite good too. They know what I'd gone through and related to it quite well. One said it wasn't 'heavy ' and was good in that the son was taking the lead in concern for his father . Any awareness is surely good ?

John
User
Posted 27 May 2016 22:14:21(UTC)
Signed. My father has locally advanced Pca, my oh had contained Pca.

For me, its not so much about a screening programme, more that if men want a test, they shouldn't have to justify their reason.
User
Posted 17 October 2016 19:44:40(UTC)
Rest in peace Kevin and condolences to your family.

Thanks Chris
User
Posted 17 October 2016 22:00:54(UTC)

I'm very saddened to hear this news.
Kevin seemed like a man of strong principle.
I hope his legacy will be the introduction of screening as soon as viable.

User
Posted 17 October 2016 23:54:17(UTC)

Sleep peacefully Kevin

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 18 October 2016 11:59:14(UTC)

RIP Kev

I've since signed the petition. I'm not sure if I am in total agreement with a national screening programme but if nothing else this will help to raise awareness which Kev was clearly passionate about.

Pity his thread turned pretty sour in some parts ....

Bri

User
Posted 18 October 2016 14:08:54(UTC)

so sorry to hear this news as Kevin campaigned for national screening even though his outlook was bleak ,who also went on radio and tv so others may benefit in the future RIP Kev

 
<12
©2017 Prostate Cancer UK